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Experiences with
Tocilizumab
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Tocilizumab or abatacept
My rheumy is giving me a choice of
tocilizumab
or abatacept. Just wondered what everyone's views of them are. Xx
My rheumy is giving me a choice of
tocilizumab
or abatacept. Just wondered what everyone's views of them are. Xx
juju74
in
NRAS
11 years ago
Tocilizumab anyone? Been told that they're trying to arrange this next.
Has anyone used it or know much info? Just got A phone call telling me to come in for bloods by the rheumy nurse so they have all the precautionary measures as my rheumatologist is putting things I to place to get access to this drug. Wasn't really aware he was going to consider an infusion so soon but
Has anyone used it or know much info? Just got A phone call telling me to come in for bloods by the rheumy nurse so they have all the precautionary measures as my rheumatologist is putting things I to place to get access to this drug. Wasn't really aware he was going to consider an infusion so soon but
Scoofiecoo
in
LUPUS UK
11 years ago
The Shrinking Woman
Rheumy gave me a nice shot of steroids before I left on 29th april and a leaflet for
Tocilizumab
with another appointment for 1st August. I've lost 7lbs since the steroid inj - nice as hands look like hands and knees although not to be displayed are a much better shape.
Rheumy gave me a nice shot of steroids before I left on 29th april and a leaflet for
Tocilizumab
with another appointment for 1st August. I've lost 7lbs since the steroid inj - nice as hands look like hands and knees although not to be displayed are a much better shape.
Hils
in
NRAS
11 years ago
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A query on the dmards and the newer drugs......
Just I'm on methortexate injection at the moment and if this doesn't work for me this time...my consultant mentioned
tocilizumab
...anyone heard of this...thanks prairie x
Just I'm on methortexate injection at the moment and if this doesn't work for me this time...my consultant mentioned
tocilizumab
...anyone heard of this...thanks prairie x
Prairie
in
NRAS
11 years ago
Tocilizumab infusion
Hi, I am sooooooo excited because I m going to have my
tocilizumab
infusion today! (Most people get excited about a holiday or new car - not us on this site, we get excited about a medical procedure!!) Please wish me well that it works.
Hi, I am sooooooo excited because I m going to have my
tocilizumab
infusion today! (Most people get excited about a holiday or new car - not us on this site, we get excited about a medical procedure!!) Please wish me well that it works.
tilstongal
in
NRAS
11 years ago
Query
My rheumatologist is treating the ra with
tocilizumab
(roactmera) with the thinking that if he treats the ra, the rv will take care of itself. The other problem with the rv I have is that it affects my bowel and causes diverticular type problem.
My rheumatologist is treating the ra with
tocilizumab
(roactmera) with the thinking that if he treats the ra, the rv will take care of itself. The other problem with the rv I have is that it affects my bowel and causes diverticular type problem.
Wolf52
in
Vasculitis UK
11 years ago
Anyone else on tocilizumab?
Hi, I've just started on
tocilizumab
I wondered how others have found this drug and how long it took to work?
Hi, I've just started on
tocilizumab
I wondered how others have found this drug and how long it took to work?
kittykat79
in
NRAS
11 years ago
Thanks to all but I am still not sure...
At the moment my RA is awaiting the start date of
tocilizumab
and as it is in chronic stage both my RA and me can't wait. I have RA in nearly every joint and it seems a daily occurance for me to discover it starting in different places.
At the moment my RA is awaiting the start date of
tocilizumab
and as it is in chronic stage both my RA and me can't wait. I have RA in nearly every joint and it seems a daily occurance for me to discover it starting in different places.
DandyLad
in
NRAS
11 years ago
Shoulder pain
I have had RA for 4 years tried everything going & i have been on
tocilizumab
monthly infusion for 5 months. I have managed to work up until September last year when i got up one morning & felt the worse i've ever felt.
I have had RA for 4 years tried everything going & i have been on
tocilizumab
monthly infusion for 5 months. I have managed to work up until September last year when i got up one morning & felt the worse i've ever felt.
Hidden
in
NRAS
11 years ago
New clinical trial planned in Giant Cell Arteritis (GCA)
Pharma company Roche are planning a clinical trial of
tocilizumab
(TCZ) with GCA to start in a few months time. TCZ has been trialled with success in the treatment of RA (rheumatoid arthritis).
Pharma company Roche are planning a clinical trial of
tocilizumab
(TCZ) with GCA to start in a few months time. TCZ has been trialled with success in the treatment of RA (rheumatoid arthritis).
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
11 years ago
Your support really helped!
She told me that the Rituximab should have worked by now as I am seronegative, and that there was no point perservering with it and that she would move me on to another infusion called
Tocilizumab
. This is a monthly infusion, but I don't mind that if it works!
She told me that the Rituximab should have worked by now as I am seronegative, and that there was no point perservering with it and that she would move me on to another infusion called
Tocilizumab
. This is a monthly infusion, but I don't mind that if it works!
tilstongal
in
NRAS
11 years ago
Possible new option for CNS lupus, lupus nephritis, and lupus polyarthritis
In some RA patients,
tocilizumab
was so effective that the patients eventually were symptom-free and able to stay that way without any kind of drug therapy. Let's hope
tocilizumab
offers the same relief to at least a subset of lupus patients.
In some RA patients,
tocilizumab
was so effective that the patients eventually were symptom-free and able to stay that way without any kind of drug therapy. Let's hope
tocilizumab
offers the same relief to at least a subset of lupus patients.
lupuswriter
in
LUPUS UK
11 years ago
Tocilizumab
Hi all, am due to have my first
Tocilizumab
infusion tomorrow (wednesday), as the Humira injections aren't working anymore and my bone density test was bad so they took me off the steroids which I have taken for 5 years and which have obviously been masking the severity of the disease.
Hi all, am due to have my first
Tocilizumab
infusion tomorrow (wednesday), as the Humira injections aren't working anymore and my bone density test was bad so they took me off the steroids which I have taken for 5 years and which have obviously been masking the severity of the disease.
tamnwill
in
NRAS
11 years ago
Between RA therapies......can you advise? (tocilizumab )
Good morning, thanks for looking :o) Had first Toc' infusion 2 weeks ago (3 weeks ago took last Humira jab) I know it can take up to 12 weeks to become effective (if it's going to work) but experiencing lots of swelling and pain in more areas (more than I thought were affected by RA) but... my
Good morning, thanks for looking :o) Had first Toc' infusion 2 weeks ago (3 weeks ago took last Humira jab) I know it can take up to 12 weeks to become effective (if it's going to work) but experiencing lots of swelling and pain in more areas (more than I thought were affected by RA) but... my
tamnwill
in
NRAS
11 years ago
Please see below.
Have had 2g of steroid infusions and will be restarting my treatment (
tocilizumab
) for rheumatoid arthritis on 9 November. Am taking daily prednisolone between 10 and 20 mg and tramadol for pain at night (it makes me sleepy so cannot take whilst at work/driving).
Have had 2g of steroid infusions and will be restarting my treatment (
tocilizumab
) for rheumatoid arthritis on 9 November. Am taking daily prednisolone between 10 and 20 mg and tramadol for pain at night (it makes me sleepy so cannot take whilst at work/driving).
Wolf52
in
Vasculitis UK
12 years ago
Tocilizumab
Hi, Are any of you on the biologic called
tocilizumab
, i expect to be starting it soon and would love to hear from anyone that is on it and how they feel on it. Hope everyone is doing ok.
Hi, Are any of you on the biologic called
tocilizumab
, i expect to be starting it soon and would love to hear from anyone that is on it and how they feel on it. Hope everyone is doing ok.
mille
in
NRAS
12 years ago
RA and Erythema Nodosum/Vasculitis
Hi I became ill with RA four years ago (aged 40) and have unsuccessfully been on MTX, HCQ, Leflunomide, Humira, Rituximab and
Tocilizumab
.
Hi I became ill with RA four years ago (aged 40) and have unsuccessfully been on MTX, HCQ, Leflunomide, Humira, Rituximab and
Tocilizumab
.
Wolf52
in
NRAS
12 years ago
Tocilizumab has anyone had any problems with drug
Amy48
in
NRAS
12 years ago
Abatacept
I have been told the next drug they will try will be
Tocilizumab
but after reading about the drugs on the internet i came across one called ABATACEPT that is supposed to be as effective as the others but with a lot less side effects but no one has mentioned this one to me.
I have been told the next drug they will try will be
Tocilizumab
but after reading about the drugs on the internet i came across one called ABATACEPT that is supposed to be as effective as the others but with a lot less side effects but no one has mentioned this one to me.
mille
in
NRAS
12 years ago
"2 weeks after infusion of tocilizumab at hospital,-has anyone had any positive or negative results so far ?
This is my fourth biologic drug and I am desparate to get some relief, after 4 years diagnosed. It would be great to hear from those who have also tried it. At the moment I have been having terrible side effects including, nausea,mouth ulcers, v. loose bowels, bloating and remain in flare up. How long
This is my fourth biologic drug and I am desparate to get some relief, after 4 years diagnosed. It would be great to hear from those who have also tried it. At the moment I have been having terrible side effects including, nausea,mouth ulcers, v. loose bowels, bloating and remain in flare up. How long
asasmum
in
NRAS
12 years ago
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