I thought that it would be nice to let you know how I got on yesterday with the new rheumatologist, particularly for those of you who gave help and support when I asked your opinions on how to deal with the consultation. You will remember I was worried that she may think that I didn't need immediate help after the Rituximab hadn't worked.
She was lovely! A tiny little young lady who was sympathetic and very helpful. She told me that the Rituximab should have worked by now as I am seronegative, and that there was no point perservering with it and that she would move me on to another infusion called Tocilizumab. This is a monthly infusion, but I don't mind that if it works! Sadly my liver function is not what it should be so we have to wait a couple of weeks to see if the readings are coming down. I am going on holiday for a few days the weekend and she offered me another steroid injection to tide me over, even though I had had one just before Xmas. I jumped at that and this morning feel so much better with little pain. I might not have to wear my splints at Pilates today! She examined my hands, shoulders and knees very gently and said she could see the swelling and lack of mobility.
She has just this minute phoned me to say my LFT is worse! Oh dear it's just wait and see for that. I told her about my new grandson and my fears for not being able to hold him (I got a bit upset) and she was very reassuring.
So all in all a good consultation and your support and advice was really useful. So a huge thank you for taking the time to reassure me and being so kind.
Here's a pic of my new tiny grandson.