Anyone else on tocilizumab?

[kittykat79]

Hi, I've just started on tocilizumab I wondered how others have found this drug and how long it took to work?

[asasmum]

Hi there!

For me: I am on my 5/6th infusion, after having to stop one mid way due to infection. Last week I was on antibiotics for the same and finished 2 days before but was advised to take the infusion this time. Positive thing is it is reducing the swellings in all joints after the first week and up to the 3rd week, so better than previous 4 biologics I have taken but the pain remains although at times less than previous. Sadly this week the swellings have returned in my hands and I have inflamed tendon sheath/lump in my arm. I also see ENT and Maxillo facial for ongoing face and jaw infection/inflamation. At the moment I am waying up the pros and cons as this is somewhat working for me but not as much as I had hoped. I cannot tolerate methotrexate which I know would be a definate bonus but liver dont do well with it!! RA clinic say it can take up to 6 months for pain to decrease as well. As we know everyone is different. I have had RA diagnosed now for over 5 years and tried alot of drugs to no effect so here's hoping. I do hope it works for you. Asa's mum xx