Experiences with

Tiludronic acid

Hi, I’ve been prescribed these two by the GP to treat my pain. Can you please tell me if I understand well - so the landoprazole I should take like after food together with mefenamic acid at the same time or leave some period inbetween? I’m trying to figure out how am I going to sort an order o taking

I came off of alendronic acid over 7 years ago and now need a tooth extracted. Has anyone had this done that long after treatment and had any problems? My dentist is referring me to the hospital to have it extracted, but I am concerned it may be too risky.

Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013

I have been on zoledronic acid infusion for 1yr 3 months, are you supposed to take a calcium supplement while I am on it.

Took Evenity for 11 months, then Actonel low does caused bad migraine, then Raloxifine caused 5 day migraine now Alendronic Acid at only 20mg and non stop migraine for nearly a week, plus swollen feet, sleeping heavy and low mood. Has anyone come off Alendronic Acid after bad migraine, how long for

I have been on prednisone since January 2017…it seems a lifetime ago☹️ I was put on Alendronic Acid which in turn gave me a hiatus hernia/GERD (2019) ...the consultant I saw said he was positive it happened because of the AA…☹️ It has undoubtedly had a major affect on my life making PMR almost acceptable

If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left

Hi Everyone, I was hoping to get some guidance on managing Seborrheic Keratosis. I'm 53 and I have a seborrheic keratosis under my eye, on my forehead, right side of my face and left ear. Is there any proven ways of managing them? I started washing my face with a wash that has salicylic acid and

I have been diagnosed with psoriatic arthritis/axial and peripheral spondlyarthritis seems to vary. I've been taking COSENTYX 300 for about 3 years, plus MTX currently 15mg. This was working well at the beginning of the year. I started on Alendronic acid in Feb and had a big flare. Stopped Alendronic

They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html

I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit

Thanks everyone for your replies to my previous post re taking Alendronic Acid. All the information posted has been very helpful and answered things I was not told or aware of. Result it my Surgery is giving me a Telephone Consultation next Thursday to my Sister and Carer. Christine Bettany x

Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of the room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch us on Facebook Live at 2pm UK time.#PBCQuestions #PBCAnswers #SupportForLife

Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched

I have been taking the above for 5 years and until a visit to my Dentist to have a loose tooth removed, I wasn't aware taking it can cause dental problems and hair loss.How long should it be taken for? Christine

I broke my foot following a fall off a high kerb in August 2021 and should have been referred for a DEXA scan by the minor injuries unit who treated this, but wasn't until I asked my GP for one, following a tip off from a friend who knew that that is NHS guidance. Following the DEXA scan and recommendation

Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?

Alongside alendronic acid, I have been prescribed calcium tabs. I started them, but every time I take 1, I'm getting awful constipation, tried halving and separating dose, same problem. Do I really need to take these?? I am now taking more calcium in diet than I was before. I'm happy to take my vit

from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk

Prof David Jones talks us through the current situation around the future of obeticholic acid (OCA) in Europe and what this means. Ckick here for the video: https://ow.ly/enRi50SzrF6 Read the news article on our website: https://ow.ly/PYh150SzrF7 Please add your voice by signing the petition here: