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Tietze's syndrome
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High Beta HCG at 15dp5dt
Hi ladies, I’m new on this group as I have only recently managed to get pregnant after my 3rd IVF transfer. My beta hcg was 3733 at 15dp5dt which my clinic were very happy about but it seems a bit high and I wonder if I may be pregnant with twins (we have put 2 embryos back). I have already spoken on
Hi ladies, I’m new on this group as I have only recently managed to get pregnant after my 3rd IVF transfer. My beta hcg was 3733 at 15dp5dt which my clinic were very happy about but it seems a bit high and I wonder if I may be pregnant with twins (we have put 2 embryos back). I have already spoken on
Kari55
in
Pregnancy and Parenting Support
5 years ago
Dental care - amazing article.. Ive been doing it ALL wrong...!! Essential reading..
Hi all - just read this amazing article. If, like me, your teeth and mouth are not very happy due to your SLE, Sicca, Sjogrens or just anything.. this article was so good I just had to post it... you may have other advice/specific needs/products from your dental professionals but this is pretty damn
Hi all - just read this amazing article. If, like me, your teeth and mouth are not very happy due to your SLE, Sicca, Sjogrens or just anything.. this article was so good I just had to post it... you may have other advice/specific needs/products from your dental professionals but this is pretty damn
DJK99
in
LUPUS UK
5 years ago
Chronic Fatigue Syndrome
Hi, from New Zealand. I have been CLL diagnosed for 2years +--No treatment but am not handling the Chronic fatigue at all well . ANY suggestions please !!!. I feel my reason for living is disappearing because of being unable to do as I wish /need each day. Have learnt a lot from this site __thank
Hi, from New Zealand. I have been CLL diagnosed for 2years +--No treatment but am not handling the Chronic fatigue at all well . ANY suggestions please !!!. I feel my reason for living is disappearing because of being unable to do as I wish /need each day. Have learnt a lot from this site __thank
barbkay17
in
CLL Support
5 years ago
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Hypermobility
Hello, I am looking for some advice, my 3 year old son has got joint hypermobility, he’s in pain every night to the point he is in tears with it, he’s on calpol regularly but it’s not having a huge affect on his pain,. The doctor said to get him to sit still for half an hour every few hours but he is
Hello, I am looking for some advice, my 3 year old son has got joint hypermobility, he’s in pain every night to the point he is in tears with it, he’s on calpol regularly but it’s not having a huge affect on his pain,. The doctor said to get him to sit still for half an hour every few hours but he is
LavernAngela
in
Pain Concern
5 years ago
Second go round
Has anyone come off of Ropinirole or the patches due to augmentation, then gone back to taking it after a break of a year or two Just wondered as both of these worked really well for me for a couple of years each I have been taking Tramadol for 9 months and that is beginning to be less effective now
Has anyone come off of Ropinirole or the patches due to augmentation, then gone back to taking it after a break of a year or two Just wondered as both of these worked really well for me for a couple of years each I have been taking Tramadol for 9 months and that is beginning to be less effective now
99selkies
in
Restless Legs Syndrome
5 years ago
My medication for rls
I am 72 and looking back I guess I have experienced rls for at least 30 years but early on not serious enough to warrant medication. It was always in the evening when I lay down to go to sleep. Early on it was sufficient to merely get up and do some exercises and leg stretching exercises would resolve
I am 72 and looking back I guess I have experienced rls for at least 30 years but early on not serious enough to warrant medication. It was always in the evening when I lay down to go to sleep. Early on it was sufficient to merely get up and do some exercises and leg stretching exercises would resolve
m1946
in
Restless Legs Syndrome
5 years ago
Sub cut - size needles
Hi I ran out of needles and syringe I was using fine... Couldn’t get same ones advised on size of needle as threw out the box but I think maybe to short as can’t notice it as much and I feel very drained It’s hydroxy 1 ml I got 2ml syringes Needles: 30g x 1/2 “ O,3mm x 13mm Are they too small
Hi I ran out of needles and syringe I was using fine... Couldn’t get same ones advised on size of needle as threw out the box but I think maybe to short as can’t notice it as much and I feel very drained It’s hydroxy 1 ml I got 2ml syringes Needles: 30g x 1/2 “ O,3mm x 13mm Are they too small
Mandlou
in
Pernicious Anaemia Society
5 years ago
Just been told i am hyper-mobile. hEDS? This might explain my chronic fatigue / post exercise malaise and more!
Hi EDS forum! For most of my adult life if have suffered with poor sleep, chronic fatigue and severe physical exhaustion after what might be considered normal exercise. I go mountain biking with friends who the next day would be feeling amazing but i am totally debilitated, limbs shaking/buzzing, can
Hi EDS forum! For most of my adult life if have suffered with poor sleep, chronic fatigue and severe physical exhaustion after what might be considered normal exercise. I go mountain biking with friends who the next day would be feeling amazing but i am totally debilitated, limbs shaking/buzzing, can
TranceW1974
in
Ehlers-Danlos Support UK
5 years ago
PVT or PAD, Over the past 5 yrs. I've notice pain and heaviness in my legs and the last few weeks I can barely walk.
I went to my Dr. and she told me I was out of shape. I said he'll no. I know I am out of shape, but you know when something is not right. So, I told her I was going to see the vein Dr. That afternoon. Well sure enough I have dilated veins in my legs and they are going to do mapping on them in about a
I went to my Dr. and she told me I was out of shape. I said he'll no. I know I am out of shape, but you know when something is not right. So, I told her I was going to see the vein Dr. That afternoon. Well sure enough I have dilated veins in my legs and they are going to do mapping on them in about a
Seehowyour
in
Restless Legs Syndrome
5 years ago
Made me laugh!
Picked up my grey and white ball of paired gloves and set off for my run. Phone sorted in my belt, I went to put on my gloves, only to find that I'd picked up socks! Oh, well, you can cover your hands with socks - until you need to get a hanky out of a pocket!
Picked up my grey and white ball of paired gloves and set off for my run. Phone sorted in my belt, I went to put on my gloves, only to find that I'd picked up socks! Oh, well, you can cover your hands with socks - until you need to get a hanky out of a pocket!
Runawaytrainer
Graduate
in
Couch to 5K
5 years ago
Opiate study
This is a link to the first year of a study of rls patients taking opiates for relief. I have obtained permission from the administrators to share this here. Interesting to see the place of Fentanyl and methadone in usage figures. Cheers. https://partners.us20.list-manage.com/track/click?u
This is a link to the first year of a study of rls patients taking opiates for relief. I have obtained permission from the administrators to share this here. Interesting to see the place of Fentanyl and methadone in usage figures. Cheers. https://partners.us20.list-manage.com/track/click?u
Madlegs1
in
Restless Legs Syndrome
5 years ago
OTD 13dp5dt BFN
I tested yesterday as I wanted the weekend to process things. I was sure it hadn’t worked, and I was sadly correct. I’ve not slept at all well this week and the anxiety really got to me. I just knew when we went for transfer our chances were so slim. The embryo had just reached a blastocyst but was
I tested yesterday as I wanted the weekend to process things. I was sure it hadn’t worked, and I was sadly correct. I’ve not slept at all well this week and the anxiety really got to me. I just knew when we went for transfer our chances were so slim. The embryo had just reached a blastocyst but was
Wrighty82
in
Fertility Network UK
5 years ago
Diagnosed with Joint Hypermobility Syndrome but I’m not sure.
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
browny52
in
Ehlers-Danlos Support UK
5 years ago
The Silly Side: More Tasty Morsels from the Small Ads. Well, it helps to pass the time when under the influence of the DF... ;-)
Greetings All Just when you thought (er, hoped?) I'd gone quiet here, I have in fact been quite busy behind the scenes. Well, yep: the dreaded DF does has its drawbacks. But, as they say, there are 2 sides to every coin. Here are the latest Gems spotted in the small ads... 1973 Mk.1 Batmobile. 1
Greetings All Just when you thought (er, hoped?) I'd gone quiet here, I have in fact been quite busy behind the scenes. Well, yep: the dreaded DF does has its drawbacks. But, as they say, there are 2 sides to every coin. Here are the latest Gems spotted in the small ads... 1973 Mk.1 Batmobile. 1
markbenjamin57
in
PMRGCAuk
5 years ago
Calling All USA Suffers This is Your Chance to Help Us All!
Hi, I know there are a number of people on here from the US and there is some very important legislation about to be made that could affect us all or at the very least those of us with Refractory RLS where nothing BUT opioids will help. Or even if this isn’t you and you know a fellow sufferer like this
Hi, I know there are a number of people on here from the US and there is some very important legislation about to be made that could affect us all or at the very least those of us with Refractory RLS where nothing BUT opioids will help. Or even if this isn’t you and you know a fellow sufferer like this
Not-methadone-addict
in
Restless Legs Syndrome
5 years ago
Ups and downs
Sorry if this post appears twice don't think first one went. I was asking if it is too much to expect to feel 100% all of the time whilst taking pred. Currently on 12.5 for last 3 and half weeks. 15 for three weeks before. Am now pretty much pain free but some days my muscles ache and feel sore and I
Sorry if this post appears twice don't think first one went. I was asking if it is too much to expect to feel 100% all of the time whilst taking pred. Currently on 12.5 for last 3 and half weeks. 15 for three weeks before. Am now pretty much pain free but some days my muscles ache and feel sore and I
Healthworrier
in
PMRGCAuk
5 years ago
Advice please ✈️
Im currently 31 weeks pregnant and after a long road to get here I’m getting myself in such a dilemma. My best friend gets married in Ireland roughly 8 weeks after I’m due 🤞🏻I’ve been putting off booking the flights for months because I’m so anxious of booking for a baby that isn’t yet safely here.
Im currently 31 weeks pregnant and after a long road to get here I’m getting myself in such a dilemma. My best friend gets married in Ireland roughly 8 weeks after I’m due 🤞🏻I’ve been putting off booking the flights for months because I’m so anxious of booking for a baby that isn’t yet safely here.
E_05
in
Pregnancy and Parenting Support
5 years ago
Feel like being ignored by Rheumatologist and GP not sure what to do next?
Hi guys, I posted here a while back because I had suspected EDS (probably Type 3), as I slipped a disc at 15 from stopping suddenly at the bottom of the stairs, my ligaments in my ankle are very loose and I have a lot of the other symptoms and commodities. I also have Vocal Cord Dysfunction Disorder
Hi guys, I posted here a while back because I had suspected EDS (probably Type 3), as I slipped a disc at 15 from stopping suddenly at the bottom of the stairs, my ligaments in my ankle are very loose and I have a lot of the other symptoms and commodities. I also have Vocal Cord Dysfunction Disorder
emilyhedgehog
in
Ehlers-Danlos Support UK
5 years ago
Family with vascular EDS but I have hypermobility...
Hello So on my mother's side there is Vascular type EDS unfortunately. My brother, who sadly passed away from a rupture inherited it from my mum who is thankfully still with us at a pretty good age of 62 and 2 pregnancies which seems like a miracle with this terrible defect. Anyway I wanted to ask
Hello So on my mother's side there is Vascular type EDS unfortunately. My brother, who sadly passed away from a rupture inherited it from my mum who is thankfully still with us at a pretty good age of 62 and 2 pregnancies which seems like a miracle with this terrible defect. Anyway I wanted to ask
Dumplinglife19
in
Ehlers-Danlos Support UK
5 years ago
Madopar - does anyone take it?
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
Jeverleybane
in
Restless Legs Syndrome
5 years ago
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