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Experiences with
Tibolone
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Can tibolone make endo worse?
Hi everyone, Quick question but has anyone found
tibolone
makes their endo worse? I did one month of prostap with no
tibolone
and after the initial two week awfulness I was actually pain free for the first time in years!
Hi everyone, Quick question but has anyone found
tibolone
makes their endo worse? I did one month of prostap with no
tibolone
and after the initial two week awfulness I was actually pain free for the first time in years!
Medicalmenopause
in
Endometriosis UK
1 year ago
Laparoscopy oophorectomy
So I had surgery on Tuesday, was supposed to be a full open hysterectomy but I opted for laparoscopy removal of large endometrioma which may have been cancerous and removal of ovary and fallopian tube. I now have a 2 week wait for results of endometrioma and omental biopsy, if positive then I will have
So I had surgery on Tuesday, was supposed to be a full open hysterectomy but I opted for laparoscopy removal of large endometrioma which may have been cancerous and removal of ovary and fallopian tube. I now have a 2 week wait for results of endometrioma and omental biopsy, if positive then I will have
Booty42
in
Endometriosis UK
11 months ago
Zoladex delay
I also haven’t been able to tolerate HRT with it due to thundercrack headaches (
Tibolone
) so am loathed to take Zoladex when I’m not feeling great on it as it is.
I also haven’t been able to tolerate HRT with it due to thundercrack headaches (
Tibolone
) so am loathed to take Zoladex when I’m not feeling great on it as it is.
Saffie123
in
Endometriosis UK
8 months ago
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bleeding after first prostap injection
I had my first prostap injection on Monday and started my
tibolone
along with it, I’ve been so exhausted all week, no energy, very emotional, I had some light bleeding but on Saturday (yesterday) I’ve started bleeding more and now it’s like I’m taking my period, has anyone else experienced this?
I had my first prostap injection on Monday and started my
tibolone
along with it, I’ve been so exhausted all week, no energy, very emotional, I had some light bleeding but on Saturday (yesterday) I’ve started bleeding more and now it’s like I’m taking my period, has anyone else experienced this?
Tootie2008
in
Endometriosis UK
1 year ago
Can menopause trigger hypothyroidism?
I was started on [i]Estradot[/i], then [i]Estradiol[/i], then the gel, then the spray, then the vaginal oestrogen, then [i]
Tibolone
[/i], then back to [i]Estradot [/i]at a higher dose, then I stopped dead, because..... past few months, I was bleeding my insides out for 2 months without a break; using
I was started on [i]Estradot[/i], then [i]Estradiol[/i], then the gel, then the spray, then the vaginal oestrogen, then [i]
Tibolone
[/i], then back to [i]Estradot [/i]at a higher dose, then I stopped dead, because..... past few months, I was bleeding my insides out for 2 months without a break; using
M33R4
in
Menopause and Perimenopause Support
1 year ago
Not sure what to do....
As of December 2023, I have been put on GnRH (Triptorelin) with add back (
Tibolone
) and frankly I am wondering where this merry-go-round of feeling dreadful stops?! 🤯 My day-to-day quality of life is not good at all.
As of December 2023, I have been put on GnRH (Triptorelin) with add back (
Tibolone
) and frankly I am wondering where this merry-go-round of feeling dreadful stops?! 🤯 My day-to-day quality of life is not good at all.
fed_up_of_endo
in
Endometriosis UK
1 month ago
Decapeptyl and bone thinning
I was put on Decapeptyl injections 11.25mg every 3 months and take
tibolone
daily. I had this for two years and it was then stopped as my DEXA showed significant osteopenia (5th centile for pelvis). I started on the combined pill which then caused my symptoms of bleeding and pain to return.
I was put on Decapeptyl injections 11.25mg every 3 months and take
tibolone
daily. I had this for two years and it was then stopped as my DEXA showed significant osteopenia (5th centile for pelvis). I started on the combined pill which then caused my symptoms of bleeding and pain to return.
tiger6
in
Endometriosis UK
1 year ago
Prostap3 and bleeding
hi ladies, im on prostap3 with
tibolone
, due my 2nd 3 monthly injection tomorrow, but ive been having light bleeding (bit more than spotting) everyday, ive read that it could be a side effect of the
tibolone
?.
hi ladies, im on prostap3 with
tibolone
, due my 2nd 3 monthly injection tomorrow, but ive been having light bleeding (bit more than spotting) everyday, ive read that it could be a side effect of the
tibolone
?.
Gemma3835
in
Endometriosis UK
2 years ago
alternative to Tibolone?
on decapeptyl and
Tibolone
add back hrt, the
Tibolone
is really not agreeing with me! Any one know of any good alternatives? My consultant just said to ask go for another but didn’t tell me the names of any particular ones!
on decapeptyl and
Tibolone
add back hrt, the
Tibolone
is really not agreeing with me! Any one know of any good alternatives? My consultant just said to ask go for another but didn’t tell me the names of any particular ones!
M1673402
in
Endometriosis UK
2 years ago
Pain, exercise and weight gain
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Awwy
in
LUPUS UK
1 year ago
Pain, exercise and weight gain
HiI have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
HiI have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Awwy
in
Endometriosis UK
1 year ago
sensitive skin after taking Decapeptyl and tibolone
I started taking decapeptyl and
tibolone
2 months ago. Whilst I think things have started to improve, my skin is irritated by everything. Has anyone else experienced this whilst on the medications?
I started taking decapeptyl and
tibolone
2 months ago. Whilst I think things have started to improve, my skin is irritated by everything. Has anyone else experienced this whilst on the medications?
Emmy31
in
Endometriosis UK
2 years ago
Decaptyl and bleeding
Im all taking
tibolone
?
Im all taking
tibolone
?
Mastiffmum1980
in
Endometriosis UK
2 years ago
Estrogen HRT after Hysterotomy
I am wondering why my gynae (who specialises in Endo) would've prescribed
Tibolone
rather than proper HRT.
I am wondering why my gynae (who specialises in Endo) would've prescribed
Tibolone
rather than proper HRT.
catsrule40
in
Endometriosis UK
2 years ago
Spotting mid Zoladex treatment
I’m also on
Tibolone
and I don’t think that I missed any tabs so oestrogen withdrawal bleeding not possible.
I’m also on
Tibolone
and I don’t think that I missed any tabs so oestrogen withdrawal bleeding not possible.
Ugnele
in
Endometriosis UK
2 years ago
Hi everyone I'm new to the group 😊 has anyone had their work contract terminated due to time off with endometriosis?
I'm waiting to start prostap 3 injections and
tibolone
hrt which I was supposed to start this week but now been pushed back to next month as doctors messed up my period dates.
I'm waiting to start prostap 3 injections and
tibolone
hrt which I was supposed to start this week but now been pushed back to next month as doctors messed up my period dates.
PurpleChase39
in
Endometriosis UK
2 years ago
Decapeptyl and evorel hrt
Hi, I’m on Decapeptyl for large fibroids- went for 4 months on the injections with add back
tibolone
, during which time heavy bleeding never ceased. I stopped
tibolone
and went a few months without hrt with no adverse effects and no bleeding.
Hi, I’m on Decapeptyl for large fibroids- went for 4 months on the injections with add back
tibolone
, during which time heavy bleeding never ceased. I stopped
tibolone
and went a few months without hrt with no adverse effects and no bleeding.
Jlg-
in
Endometriosis UK
2 years ago
HRT injection today
What shall I expect in the coming days after please to any of you lovely ladies that have had this along with
tibolone
hrt , thanks in advance
What shall I expect in the coming days after please to any of you lovely ladies that have had this along with
tibolone
hrt , thanks in advance
Pinklady83
in
Endometriosis UK
2 years ago
Starting Prostap next week
Afternoon ladies, I’ve had a confirmation I’ll be seeing my gynae next week (Monday) to start prostap injections and
tibolone
(HRT) can anyone share their experience with these medications? I’m 29 and needing to have this in the run up to my surgery which could be anytime up to 2 years.
Afternoon ladies, I’ve had a confirmation I’ll be seeing my gynae next week (Monday) to start prostap injections and
tibolone
(HRT) can anyone share their experience with these medications? I’m 29 and needing to have this in the run up to my surgery which could be anytime up to 2 years.
Leenie0811
in
Endometriosis UK
2 years ago
Decapeptyl & HRT making me hate everything
Hi I’ve had 6 decapeptyl injections due my 7 later this week and I started taking HRT
tibolone
a week ago as the insomnia and anxiety was getting too much.. the last few days my mood has been all over the place & today I hate everyone and everything which I’m aware is very unreasonable and I’m blaming
Hi I’ve had 6 decapeptyl injections due my 7 later this week and I started taking HRT
tibolone
a week ago as the insomnia and anxiety was getting too much.. the last few days my mood has been all over the place & today I hate everyone and everything which I’m aware is very unreasonable and I’m blaming
CupcakeL
in
Endometriosis UK
2 years ago
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