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The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
The day all treatment ended and I was released to begin life without the benefit of seeing my radiation oncologist or the infusion nurse on a weekly basis was a scary day. The idea that it would be three months before I saw anyone again left me overwhelmed. Finding web boards like these and in person
Denzie
Volunteer
in
Lung Cancer Support
2 months ago
Just saying hello as a new member
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
2 months ago
Moved from Abi to Nubeqa and saw a PSA increase
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
Steel67
in
Advanced Prostate Cancer
7 months ago
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Pulmonary metastasectomy anyone?
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
Kahe
in
SHARE Metastatic Breast Cancer
3 months ago
Bladder Cancer Update and More. UPDATE.
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Ern007
in
Lung Conditions Community Forum
3 months ago
Fulvestrant side effects and updates
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
JonaC38
in
SHARE Metastatic Breast Cancer
3 months ago
Slowly Rising PSA - Getting Nervous
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
raisin123
in
Advanced Prostate Cancer
7 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
3 months ago
? Cover required for endometrial biopsy
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
PPop
in
PMRGCAuk
7 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
3 months ago
Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
5 months ago
6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Vasili
in
Advanced Prostate Cancer
7 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
3 months ago
Enhancing my urinating experience?
Guys, Several weeks ago I started experiencing slow and weak urine stream for first time since diagnosis almost 6 years ago. This, coupled with rise in PSA, triggered my oncologist to order both MRI and PSMA scan. Would appear things are progressing and got referrals to radiation oncologist and urologist
Guys, Several weeks ago I started experiencing slow and weak urine stream for first time since diagnosis almost 6 years ago. This, coupled with rise in PSA, triggered my oncologist to order both MRI and PSMA scan. Would appear things are progressing and got referrals to radiation oncologist and urologist
3putt
in
Advanced Prostate Cancer
7 months ago
Ascites coming back,primary peritoneal
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
SupportingmyMum
in
My Ovacome
3 months ago
Blood Test
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
bungi1961
in
IBS Network
3 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
7 months ago
Just been told…I have a Brain Tumour
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
EllieMay7
in
Acoustic Neuroma Support
3 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
5 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
5 months ago
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