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Primary Peritoneal Cancer
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
Hockeymom52
in
My Ovacome
5 months ago
Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
5 months ago
What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
God_Loves_Me
in
Advanced Prostate Cancer
8 months ago
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left side throat ,tongue discomfort
I am very worried though as my brother had
throat
cancer
which started in his tonsil bed, anything unusual in that area really scares me, but I feel my GP will probably just dismiss this feeling.
I am very worried though as my brother had
throat
cancer
which started in his tonsil bed, anything unusual in that area really scares me, but I feel my GP will probably just dismiss this feeling.
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
NEPC RESEARCH
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
Any research done on NEPC (neuroendocrine prostate cancer) ie ademo that morphs into a neuroendocrine carcinoma?
safari123
in
Advanced Prostate Cancer
8 months ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
8 months ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Update for kestrel5
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Kestrel5
in
Advanced Prostate Cancer
8 months ago
Intraductal Prostate Carcinoma
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
bdrakes
in
Advanced Prostate Cancer
5 months ago
Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
8 months ago
Humorous/informative videos on prostate cancer
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
…at least I hope so. I’ve been documenting “My Journey With Prostate Cancer” in hopes of amusing myself and others. Please don’t watch if you think humor is verboten in regards to cancer. https://youtube.com/playlist?list=PLnTvlPIMC_V3Otqe-SUGyufm4STqY3wYa&si=bLnPUuDrOrWXPkAN
Caldonia
in
Advanced Prostate Cancer
8 months ago
fatique
diagnosed Dec 2022 with stage IV advanced metastatic prostate cancer spread to most bones primarily spine and pelvis - pelvis area continues to be an issue for me. had 10 quick radiation sessions on some spinal drop tumours the Decatoxel x 10 rounds of chemo, ended May 2023 plus Firmagon (Degarelix
diagnosed Dec 2022 with stage IV advanced metastatic prostate cancer spread to most bones primarily spine and pelvis - pelvis area continues to be an issue for me. had 10 quick radiation sessions on some spinal drop tumours the Decatoxel x 10 rounds of chemo, ended May 2023 plus Firmagon (Degarelix
Nyon
in
Advanced Prostate Cancer
5 months ago
terrified of oc
during a routine gynae appt I was found to have a fallopian tube complex mass with septations and solid components inside. I am 36 and we were trying to conceive. Now they think I have cancer and need surgery to remove everything. I am terrified
during a routine gynae appt I was found to have a fallopian tube complex mass with septations and solid components inside. I am 36 and we were trying to conceive. Now they think I have cancer and need surgery to remove everything. I am terrified
Vivibeatris
in
My Ovacome
8 months ago
About ATR Inhibitors… I Have a Tier 1 ATM Frameshift Mutation is response better than Keytruda perhaps?
Started Chemotherapy yesterday with Cabazitoxel And Carboplatin For Liver Mets & Lung Nodules I have to have pathology on tissue done for second opinion as I’m not sure if they did a complete staining histology It Thankfully came back as pca Adenocarcinoma Still believe it seeded the liver
Started Chemotherapy yesterday with Cabazitoxel And Carboplatin For Liver Mets & Lung Nodules I have to have pathology on tissue done for second opinion as I’m not sure if they did a complete staining histology It Thankfully came back as pca Adenocarcinoma Still believe it seeded the liver
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
8 months ago
Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
6 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
8 months ago
Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
6 months ago
Apalutamide/ADT Confers 100% Recurrence-Free Survival in High-Risk Prostate Cancer
https://www.oncnursingnews.com/view/apalutamide-adt-confers-100-recurrence-free-survival-in-high-risk-prostate-cancer So if I have this right high risk patients who got RP are put on adt and apalutamide for 12 months and after two years, now with recovered tst none have had a recurrence. am a little
https://www.oncnursingnews.com/view/apalutamide-adt-confers-100-recurrence-free-survival-in-high-risk-prostate-cancer So if I have this right high risk patients who got RP are put on adt and apalutamide for 12 months and after two years, now with recovered tst none have had a recurrence. am a little
street-air
in
Advanced Prostate Cancer
5 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
8 months ago
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