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End of holiday??
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
R1166
in
Advanced Prostate Cancer
1 year ago
Need help to fight fatigue from Radium 223
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Ronnie7C
in
Advanced Prostate Cancer
1 year ago
Levo side effects
so was on ndt for ages but felt it wasn’t working as well and swapped for my usual 100 levothyroxine but for over the past week I have been having a tight feeling in my throat. I stopped taking my thyroid meds and it subsided but it’s taking days to go away. Is this due to having too much T4 as I was
so was on ndt for ages but felt it wasn’t working as well and swapped for my usual 100 levothyroxine but for over the past week I have been having a tight feeling in my throat. I stopped taking my thyroid meds and it subsided but it’s taking days to go away. Is this due to having too much T4 as I was
Carriebaby
in
Thyroid UK
1 year ago
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What are capsule shells made of?
A few months ago a post mentioned capsule shells. They said that there is an ingredient which is not allowed in the UK but is allowed abroad. I'm asking because my doctor recommended an NDT from Germany. I reacted badly to it and the only thing we could think of was that it might be caused by the
A few months ago a post mentioned capsule shells. They said that there is an ingredient which is not allowed in the UK but is allowed abroad. I'm asking because my doctor recommended an NDT from Germany. I reacted badly to it and the only thing we could think of was that it might be caused by the
Anthea55
in
Thyroid UK
1 year ago
PSMA PET Scan Shows no mets?!
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
groth12345
in
Advanced Prostate Cancer
1 year ago
2 Questions
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
revchris77
in
Advanced Prostate Cancer
1 year ago
Just a little update - Cautious optimism...!
Hi all, Just wanted to update in case it's helpful for anyone. 4 weeks and 2 days ago I started taking 125mcg levo and 20mcg T3 a day, split as levo & 10mcg T3 in the morning and 10mcg T3 at 2:30/3ish. (I was previously taking 50mcg Levo/10mcg T3/60mg Erfa NDT.) Week 1: Fine - no real obvious difference
Hi all, Just wanted to update in case it's helpful for anyone. 4 weeks and 2 days ago I started taking 125mcg levo and 20mcg T3 a day, split as levo & 10mcg T3 in the morning and 10mcg T3 at 2:30/3ish. (I was previously taking 50mcg Levo/10mcg T3/60mg Erfa NDT.) Week 1: Fine - no real obvious difference
Hidden
in
Thyroid UK
1 year ago
Anyone have a high testosterone after SBRT?
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
Yearofthecow
in
Prostate Cancer Network
1 year ago
Enhertu next treatment??
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
Blood Test Result
After being on ADT for two weeks, my blood test shows my Testosterone to be 109 (low). I guess this is the goal of ADT, to lower my Testosterone. However, in the same test result, the following was flagged as either low or high. Can my ADT attributed to the issues flagged by the test result? RBC
After being on ADT for two weeks, my blood test shows my Testosterone to be 109 (low). I guess this is the goal of ADT, to lower my Testosterone. However, in the same test result, the following was flagged as either low or high. Can my ADT attributed to the issues flagged by the test result? RBC
toyman79912
in
Advanced Prostate Cancer
1 year ago
Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
1 year ago
Requesting Help to Develop Bespoke BAT Protocol
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Advanced Prostate Cancer
1 year ago
I think I’ve messed up!
Started to feel not so great. Was taking 2 grains of NDT and 25mcg T3( background RAI therapy around 10 yrs ago) I went to the doctors who took bloods. Results as detailed. I am not sure why my results are so low. I have been on the same dosage for a long time- blood results were always good! Has NDT
Started to feel not so great. Was taking 2 grains of NDT and 25mcg T3( background RAI therapy around 10 yrs ago) I went to the doctors who took bloods. Results as detailed. I am not sure why my results are so low. I have been on the same dosage for a long time- blood results were always good! Has NDT
SophiaR
in
Thyroid UK
1 year ago
PSA Went Up After Start of ADT
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
toyman79912
in
Advanced Prostate Cancer
1 year ago
Does anyone know of a connection between undermedication and histamine intolerance, or if there are histamines in Armour thyroid?
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
Reefseeker
in
Thyroid UK
1 year ago
Docetaxel and deterioration
My oncologist last Tuesday informed me that: 1. The drug I am on, Xtandi, is going to fail. The is hoping it will manage the rest of this year and the next. 2. After that, all she has in her armoury is docetaxel, with 6 - 10 cycles spaced at 3 weekly intervals. She expressed concern that, as I
My oncologist last Tuesday informed me that: 1. The drug I am on, Xtandi, is going to fail. The is hoping it will manage the rest of this year and the next. 2. After that, all she has in her armoury is docetaxel, with 6 - 10 cycles spaced at 3 weekly intervals. She expressed concern that, as I
BrentW
in
Advanced Prostate Cancer
1 year ago
Refused surgery due to Surpressed TSH
Hi has anyone been refused surgery due to surpressed TSH ?My daughter is on Armour thyroid. Her TSH is surpressed, I know this is normal with NDT. Her T4 and T3 are optimal. She was due to have Gynae surgery in 2 weeks but it has been cancelled due to supressed TSH. Any advice what to do ? Thank
Hi has anyone been refused surgery due to surpressed TSH ?My daughter is on Armour thyroid. Her TSH is surpressed, I know this is normal with NDT. Her T4 and T3 are optimal. She was due to have Gynae surgery in 2 weeks but it has been cancelled due to supressed TSH. Any advice what to do ? Thank
Millie103538
in
Thyroid UK
1 year ago
PSA Nadir After RT+ADT for Prostate Cancer Predicts Outcomes
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
Scout4answers
in
Advanced Prostate Cancer
1 year ago
Castrate Resistance Mechanism & Statins
https://medicine.wustl.edu/news/study-reveals-how-treatment-resistant-prostate-cancer-supplies-its-own-hormonal-fuel/ Good afternoon chaps - read the above article re mechanisms leading to castrate resistance ; In summary it appears to conclude that the PCa tumours sense the lack of testosterone
https://medicine.wustl.edu/news/study-reveals-how-treatment-resistant-prostate-cancer-supplies-its-own-hormonal-fuel/ Good afternoon chaps - read the above article re mechanisms leading to castrate resistance ; In summary it appears to conclude that the PCa tumours sense the lack of testosterone
PSA680
in
Advanced Prostate Cancer
1 year ago
Goat whey, casein, IGF-1 etc. - Do they promote or slow cancer growth?
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
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