Search
Search
About
Log in
Join
Experiences with
TDT 064
Posts
Communities
13,399 public posts
Filter results
18 vs 24 mos ADT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
Oceankayaker
in
Advanced Prostate Cancer
1 year ago
Help with compounding ingredients
Considering having NDT compounded, to not have lactose & as few ingredients as possible. We do not have a lactose,-free levothyroxine in Canada. And I know Thyroid S has lactose. The pharmacist has asked me about cellulose as the filler, and how I do on that. I have no clue & when researching it comes
Considering having NDT compounded, to not have lactose & as few ingredients as possible. We do not have a lactose,-free levothyroxine in Canada. And I know Thyroid S has lactose. The pharmacist has asked me about cellulose as the filler, and how I do on that. I have no clue & when researching it comes
Litatamon
in
Thyroid UK
1 year ago
Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Can cancer grow while PSA stays undetectable ?
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
mynacho
in
Advanced Prostate Cancer
1 year ago
Can anyone recommend an online doctor. I am looking to get a prescription for NDT
I used to see a doctor privately, who had my blood tested every year and prescribed NDT to me, but he has retired and I am somewhat lost. My GP is prescribing levothyroxine, but I don’t really feel well, ever. I understand you can now have a blood test and a doctor who will read it and write you
I used to see a doctor privately, who had my blood tested every year and prescribed NDT to me, but he has retired and I am somewhat lost. My GP is prescribing levothyroxine, but I don’t really feel well, ever. I understand you can now have a blood test and a doctor who will read it and write you
Hidden
in
Thyroid UK
1 year ago
GP surgery declined levo private endo prescribed- how to complain?
I recently saw a GP to prescribe the levo that my private endocrinologist recommended in a letter sent to my GPs but she refused because she didn’t see an indication as my tsh was fine and wrote to my endocrinologist questioning it. I made an appointment with my named GP but unfortunately as the other
I recently saw a GP to prescribe the levo that my private endocrinologist recommended in a letter sent to my GPs but she refused because she didn’t see an indication as my tsh was fine and wrote to my endocrinologist questioning it. I made an appointment with my named GP but unfortunately as the other
Kitkat1982
in
Thyroid UK
1 year ago
NEW NDT ADTHYZA
I am not sure if anyone has heard of the latest NDT. It is free of the following, Gluten, Lactose, Corn, Dyes, and Latex. The main drawback is the fact that it contains, guess what, Mannitol.
I am not sure if anyone has heard of the latest NDT. It is free of the following, Gluten, Lactose, Corn, Dyes, and Latex. The main drawback is the fact that it contains, guess what, Mannitol.
Brightness14
in
Thyroid UK
1 year ago
Can I travel to Spain with NDT
Hi everyone, We are travelling to Fuerteventura in the Canary Islands in a few weeks and I am on Erfa Thyroid NDT. What do I need to travel with this please? And is it legal in Spain (I’m just found out from an old post on here it’s illegal in France 😱). I will ask my private Doctor for a letter
Hi everyone, We are travelling to Fuerteventura in the Canary Islands in a few weeks and I am on Erfa Thyroid NDT. What do I need to travel with this please? And is it legal in Spain (I’m just found out from an old post on here it’s illegal in France 😱). I will ask my private Doctor for a letter
franniebabes
in
Thyroid UK
1 year ago
Inspiration
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
Gym-rat
in
Advanced Prostate Cancer
1 year ago
Can you combine levo and NDT?
Hello All, I wonder if any of you are successfully combining levo and NDT together and if you can even do it? I am currently taking levo only, alternating 88-88-75, but my T3 could be a bit higher. It was at 4.1 and I would like to see it around 5. I have a lot of hair loss, some fatigue and also
Hello All, I wonder if any of you are successfully combining levo and NDT together and if you can even do it? I am currently taking levo only, alternating 88-88-75, but my T3 could be a bit higher. It was at 4.1 and I would like to see it around 5. I have a lot of hair loss, some fatigue and also
Juliet_22
in
Thyroid UK
1 year ago
Xgeva side effects?????
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
MydogisTed
in
Advanced Prostate Cancer
1 year ago
SBRT to Prostate and Lymph node ?
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
dudubaya
in
Advanced Prostate Cancer
1 year ago
Is NMN (β-Nicotinamide Mononucleotide safe and/or effective?
Hello lovely people I’ve been reading about NMN. What do we know about it? Is it safe for people with seondary hypothyroidism? To take with NDT? thank you!
Hello lovely people I’ve been reading about NMN. What do we know about it? Is it safe for people with seondary hypothyroidism? To take with NDT? thank you!
PixieElv
in
Thyroid UK
1 year ago
Supplier needed for ERFA or Armour without prescription
Hi I am looking for online reliable supplier for ERFA or Armour NDT without a prescription, can anyone help, PM please thanks
Hi I am looking for online reliable supplier for ERFA or Armour NDT without a prescription, can anyone help, PM please thanks
ainslie
in
Thyroid UK
1 year ago
Metastatic PC
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
saniku
in
Advanced Prostate Cancer
1 year ago
? Ashwagandha and Maca Root If Hypo
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hidden
in
Thyroid UK
1 year ago
Weight LOSS on ADT
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
LessPaul
in
Advanced Prostate Cancer
1 year ago
Hypothyroidism, chronic cystitis and histamine intolerance
Can anyone recommend good sources of information on the connection between hypothyroidism, recurrent cystitis and histamine/oxalate intolerance or possibly MCAS? I have had recurrent cystitis for many years, but in the past 2 years, it has become unbearable and I can be on antibiotics for weeks on end
Can anyone recommend good sources of information on the connection between hypothyroidism, recurrent cystitis and histamine/oxalate intolerance or possibly MCAS? I have had recurrent cystitis for many years, but in the past 2 years, it has become unbearable and I can be on antibiotics for weeks on end
Reefseeker
in
Thyroid UK
1 year ago
Goserelin - side effects profile variability between implants
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
SimMartin
in
Advanced Prostate Cancer
1 year ago
Endo F/up soon,how best to handle criticism of TSH being 0.083 (0.27-4.2) please.
Hello again Everyone, I am dreading my F/up with a 'gestational diabetes' endocrinologist this week. I am neither diabetic or pregnant (ha! at my age). A very nice lady but knows nothing of NDT, very little on Hashi's,and obsessed with science based evidence. I am currently taking 1 3/8 grain of
Hello again Everyone, I am dreading my F/up with a 'gestational diabetes' endocrinologist this week. I am neither diabetic or pregnant (ha! at my age). A very nice lady but knows nothing of NDT, very little on Hashi's,and obsessed with science based evidence. I am currently taking 1 3/8 grain of
Gillybean1
in
Thyroid UK
1 year ago
1
...
65
66
67
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
7895 results
Advanced Prostate Cancer
4006 results
Prostate Cancer Network
430 results
View top 10 communities
Sort by
Most Relevant
Newest