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Made a desicion, went private
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
TwigwithaWig
in
Thyroid UK
5 months ago
still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
7 months ago
Online/Meet ups for people with Hypertrophic Cardiomyopathy struggling with Mental Health?
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Chunkiedog
in
British Heart Foundation
5 months ago
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Robert
Robert was diagnosed with Parkinson’s in 2018 PSP in 2021 progression was slow at first. Last year Robert was walking with a cane and dragging his feet. In September he began to fall daily sometimes more. He got weaker every day and finally allowed me to call a rescue. What followed was a whirlwind
Robert was diagnosed with Parkinson’s in 2018 PSP in 2021 progression was slow at first. Last year Robert was walking with a cane and dragging his feet. In September he began to fall daily sometimes more. He got weaker every day and finally allowed me to call a rescue. What followed was a whirlwind
Wrski
in
PSP Association
8 months ago
Results after T3/T4 trial...is this it?
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Klawd
in
Thyroid UK
6 months ago
Light Therapy Celeste
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Pegcity
in
Cure Parkinson's
8 months ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
8 months ago
Extremely interesting....
The Swinging Pendulum in Treatment for Hypothyroidism: From (and Toward?) Combination Therapy - PMC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6629976/
The Swinging Pendulum in Treatment for Hypothyroidism: From (and Toward?) Combination Therapy - PMC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6629976/
Easylover
in
Thyroid UK
8 months ago
Combination therapy T4 + T3
Hi, since 2 weeks I started to take 10 mcg T3/ 2 days on top of my daily levothyroxine. I remember my periodic cycle was 24 days instead of 28 days when TSH was rising before. Today I was surprised to get my period at d23?! I am confused again. Was expecting the opposite.
Hi, since 2 weeks I started to take 10 mcg T3/ 2 days on top of my daily levothyroxine. I remember my periodic cycle was 24 days instead of 28 days when TSH was rising before. Today I was surprised to get my period at d23?! I am confused again. Was expecting the opposite.
Balou23
in
Thyroid UK
8 months ago
Recording available for NoSilverBullet interview of Dr Wayne Markman, CEO of SYMBYX, on "Light therapy for Parkinson's".
Thank you to Dr Wayne Markman for this very detailed interview on the topic of "Light Therapy for Parkinson's". It was a fascinating presentation with an excellent Q&A afterwards. It is available now on our YouTube channel so please take a look: https://youtu.be/E9XSIzblucc?feature=shared It is also
Thank you to Dr Wayne Markman for this very detailed interview on the topic of "Light Therapy for Parkinson's". It was a fascinating presentation with an excellent Q&A afterwards. It is available now on our YouTube channel so please take a look: https://youtu.be/E9XSIzblucc?feature=shared It is also
Michel0220
in
Cure Parkinson's
8 months ago
Is this something that needs investigating/Or Thoughts on cause?
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Milky99
in
Women's Health
6 months ago
Sigmoid colon stuck to small bowel due to endometrial scarring.
Hi all. I'm 5 years post hysterectomy due to stage 4 endometriosis and adenomyosis leaving ovaries. Visited the gynecologist regarding hrt and whilst there I mentioned that the area where my left ovary is was tender. Long story short, after a mri scan to check endo hadn't returned, it appears that my
Hi all. I'm 5 years post hysterectomy due to stage 4 endometriosis and adenomyosis leaving ovaries. Visited the gynecologist regarding hrt and whilst there I mentioned that the area where my left ovary is was tender. Long story short, after a mri scan to check endo hadn't returned, it appears that my
RaRa74
in
Endometriosis UK
15 hours ago
Testosterone
Good morning, After years of hormone therapy and low testosterone, my bloodwork from Thursday shows an increase of testosterone. My chart shows it’s been less that 7 for a number of years, now it’s listed as 8. Does this mean that the Xtandi/Eligard is not working anymore?
Good morning, After years of hormone therapy and low testosterone, my bloodwork from Thursday shows an increase of testosterone. My chart shows it’s been less that 7 for a number of years, now it’s listed as 8. Does this mean that the Xtandi/Eligard is not working anymore?
Survivor1965
in
Advanced Prostate Cancer
21 hours ago
GP visit
Hi there. I've had PMR/GCA for 10 years which once diagnosed was reasonably managed until 2018 when having tapered to 3.5 mgs, I was told to stop Pred within a fortnight by my rheumatologist who was confident it had gone. The resulting flare was worse even than the initial onset and after a good deal
Hi there. I've had PMR/GCA for 10 years which once diagnosed was reasonably managed until 2018 when having tapered to 3.5 mgs, I was told to stop Pred within a fortnight by my rheumatologist who was confident it had gone. The resulting flare was worse even than the initial onset and after a good deal
k-mac
in
PMRGCAuk
2 days ago
Finding consensus on treatment and side effects
As per earlier posts I’m 72 yrs old with Stage 4 Gleason 9 with some spread outside of prostate. I started ADT treatment in April and finished 4 weeks of radiation therapy on July 5. Statistically I think I’m doing well. My PSA went from 8.4 to .012 in two months. Until recently I had really no side
As per earlier posts I’m 72 yrs old with Stage 4 Gleason 9 with some spread outside of prostate. I started ADT treatment in April and finished 4 weeks of radiation therapy on July 5. Statistically I think I’m doing well. My PSA went from 8.4 to .012 in two months. Until recently I had really no side
Willie51
in
Prostate Cancer And Gay Men
2 days ago
FND and hormones
Hiya everyone, I was diagnosed with FND in 2021, my symptoms started in 2018 after many stressful life events. I’ve noticed my symptoms get worse just before my period. I’m perimenopausal so I started HRT (oestrogen gel and progesterone oral capsules). The progesterone seemed to cause a massive relapse
Hiya everyone, I was diagnosed with FND in 2021, my symptoms started in 2018 after many stressful life events. I’ve noticed my symptoms get worse just before my period. I’m perimenopausal so I started HRT (oestrogen gel and progesterone oral capsules). The progesterone seemed to cause a massive relapse
Xani24
in
Functional Neurological Disorder - FND Hope
2 days ago
Tibolone or sequential hrt?
I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I have Endometriosis as my pain has flared up since starting hrt. I'm on Tibolone but I'm still in so much pain. Has anyone had experience of this and have they found sequential hrt better? I don't think the Tibolone is strong
I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I have Endometriosis as my pain has flared up since starting hrt. I'm on Tibolone but I'm still in so much pain. Has anyone had experience of this and have they found sequential hrt better? I don't think the Tibolone is strong
Mindfullness4791
in
Endometriosis UK
2 days ago
intermittent ADT+Abiraterone
Six months ago I ended a 12 month holiday from my ADT + abiraterone. (In this post, I’m not asking for evaluations of the advisability of intermittency.) In making the decision to do the intermittency, my MO, among other things, said that the fact that I was on abiraterone was a positive factor for
Six months ago I ended a 12 month holiday from my ADT + abiraterone. (In this post, I’m not asking for evaluations of the advisability of intermittency.) In making the decision to do the intermittency, my MO, among other things, said that the fact that I was on abiraterone was a positive factor for
Catskills
in
Advanced Prostate Cancer
2 days ago
I owe you an update
Many thanks to the members of this forum. FYI, I was diagnosed with a DRE last October, 2023. I had a biopsy in November and confirmed an aggressive stage 5, Gleason 9 in 6 of 12 cores prostate cancer. A series of scans did not detect involvement beyond the prostate. My PSA was 9 at that time. I began
Many thanks to the members of this forum. FYI, I was diagnosed with a DRE last October, 2023. I had a biopsy in November and confirmed an aggressive stage 5, Gleason 9 in 6 of 12 cores prostate cancer. A series of scans did not detect involvement beyond the prostate. My PSA was 9 at that time. I began
Worked_the_World
in
Advanced Prostate Cancer
3 days ago
catheter for urinary retention
Does anyone have advice or tips on getting a catheter removed? My husband had it inserted due to urinary retention. The oncologist said his prostrate is full of cancer and pressing on the urethra. He has started adt with casodex and lupron. Soon to add zytiga. He also takes flomax. He’s tried twice
Does anyone have advice or tips on getting a catheter removed? My husband had it inserted due to urinary retention. The oncologist said his prostrate is full of cancer and pressing on the urethra. He has started adt with casodex and lupron. Soon to add zytiga. He also takes flomax. He’s tried twice
debbied1215
in
Advanced Prostate Cancer
3 days ago
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