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Experiences with
Sudden infant death syndrome (SIDS)
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RLS, tramadol and the opiate epidemic.
I wish we could start a movement promoting opiates for RLS. John Hopkins University states that "Dr. Willis (as in Willis-Ekbom diesease) in his description of this disease in 1685 also reported on the benefits of opiates for treating the symptoms. Thus for over 300 years opiates remained the only truly
I wish we could start a movement promoting opiates for RLS. John Hopkins University states that "Dr. Willis (as in Willis-Ekbom diesease) in his description of this disease in 1685 also reported on the benefits of opiates for treating the symptoms. Thus for over 300 years opiates remained the only truly
Stdorn
in
Restless Legs Syndrome
4 years ago
Feeling more positive
Hi I posted about 3 weeks ago really at the end of my tether, and wondering if I would be able to return to work again. Since then I have contacted the hospital and I have a telephone appointment with an EP at the end of Sept and then out of the blue I got a call from the cardiologist who suggested I
Hi I posted about 3 weeks ago really at the end of my tether, and wondering if I would be able to return to work again. Since then I have contacted the hospital and I have a telephone appointment with an EP at the end of Sept and then out of the blue I got a call from the cardiologist who suggested I
Dickieticker
in
AF Association
4 years ago
Restless leg medication side effects
Had bad restless legs for few months now as have A/f so taking Amiodarone and Bisoprolol and 5mg Zoplicone to help me sleep. Have tried Ropinirole 0.25mg and Pramipexole 0.088mg and finally Gabapentin 100mg for my restless legs which all seem to work to a degree if helped by Restless leg calming cream
Had bad restless legs for few months now as have A/f so taking Amiodarone and Bisoprolol and 5mg Zoplicone to help me sleep. Have tried Ropinirole 0.25mg and Pramipexole 0.088mg and finally Gabapentin 100mg for my restless legs which all seem to work to a degree if helped by Restless leg calming cream
Mike-tyson
in
Restless Legs Syndrome
4 years ago
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Can Ubiquinol and other muscle supplements CAUSE muscle aches?
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hidden
in
Fibromyalgia Action UK
4 years ago
Nightwalkers Magazine from the RLS Foundation and opiates
There was a great article from the latest issue of Nightwalkers which is the quarterly journal from the Restless Legs Syndrome Foundation. They were describing some of the studies on opiates and RLS. There was lots of information on the ramifications of using opiates like oxycodone and methadone for
There was a great article from the latest issue of Nightwalkers which is the quarterly journal from the Restless Legs Syndrome Foundation. They were describing some of the studies on opiates and RLS. There was lots of information on the ramifications of using opiates like oxycodone and methadone for
Hidden
in
Restless Legs Syndrome
4 years ago
Ropinirole
Hello everyone, new to this group been suffering with RLS for a few years but its got to the point I want to chop my legs off, having tried amatryptaline, codeine magnesium and ibuprofen gel nothing has worked . Had a consultation with a GP tonight not my own and she has put me on Ropinirole which I
Hello everyone, new to this group been suffering with RLS for a few years but its got to the point I want to chop my legs off, having tried amatryptaline, codeine magnesium and ibuprofen gel nothing has worked . Had a consultation with a GP tonight not my own and she has put me on Ropinirole which I
Louise121179
in
Restless Legs Syndrome
4 years ago
A cheeky rash!
After several incidents of having a photosensitive rash on my cheeks, I sent photos to my rhuematologist. I have just recieved a letter from the Rhuemy stating that the opionion of dermatologist is being sought. The photos show lovely red cheeks (sparing nasolabial fold) on two seperate times. Can the
After several incidents of having a photosensitive rash on my cheeks, I sent photos to my rhuematologist. I have just recieved a letter from the Rhuemy stating that the opionion of dermatologist is being sought. The photos show lovely red cheeks (sparing nasolabial fold) on two seperate times. Can the
RosieA
in
LUPUS UK
4 years ago
Barium swallow with hx of DLBCL and low WBC
hx of dlbcl as well as thyroiditis and esophagitis with low WBC. Is barium swallow fluoroscopy risky or dangerous given history.
hx of dlbcl as well as thyroiditis and esophagitis with low WBC. Is barium swallow fluoroscopy risky or dangerous given history.
ugon
in
Thyroid UK
4 years ago
Pregabalin
Hi everyone I’ve just been reading some posts . I can’t believe the affect RLS has on so many people’s lives . It is just so so sad 😞. I started Pregabalin nearly 3 weeks ago . I know the dose of 25 mg is far too low but have requested a higher dose from my gp . I rang my pharmacy today and they have
Hi everyone I’ve just been reading some posts . I can’t believe the affect RLS has on so many people’s lives . It is just so so sad 😞. I started Pregabalin nearly 3 weeks ago . I know the dose of 25 mg is far too low but have requested a higher dose from my gp . I rang my pharmacy today and they have
Esme2007
in
Restless Legs Syndrome
4 years ago
Is Clomid works?
Hello, I am new here. I'm waiting to do the IVF treatment and they sent a letter from the clinic to postpone I think it must be because of the covid because they didn't even explain the reason. I'm 40 and I'm getting worried because I don't know when they're going to call me back. I would like to know
Hello, I am new here. I'm waiting to do the IVF treatment and they sent a letter from the clinic to postpone I think it must be because of the covid because they didn't even explain the reason. I'm 40 and I'm getting worried because I don't know when they're going to call me back. I would like to know
Borbolet
in
Fertility Network UK
4 years ago
Eosinophils blood test
My consultant at the Royal Brompton wants me to have a blood test to check for eosinophils when I have an asthma flare up and before starting pred. He is also happy for me to stay on a low dose if I need to, I'm currently on a very slow taper. Was just wondering if a low dose of pred 5 or 10mg would
My consultant at the Royal Brompton wants me to have a blood test to check for eosinophils when I have an asthma flare up and before starting pred. He is also happy for me to stay on a low dose if I need to, I'm currently on a very slow taper. Was just wondering if a low dose of pred 5 or 10mg would
Angelgoth
in
Asthma Community Forum
4 years ago
RLS Medication priblems
What is the best medication for RLS in Uk. I am currently on Pramipexole after trying Ropinirole and Gabapentin I also take 5mg of Zolpidem to help me sleep as taking Amiodarone and Bispoprol for A/F My GP says I should stop taking the Zolpidem as could interact with Promipexole don’t wish to
What is the best medication for RLS in Uk. I am currently on Pramipexole after trying Ropinirole and Gabapentin I also take 5mg of Zolpidem to help me sleep as taking Amiodarone and Bispoprol for A/F My GP says I should stop taking the Zolpidem as could interact with Promipexole don’t wish to
Mike-tyson
in
Restless Legs Syndrome
4 years ago
IVF pregnancy and stopping meds
Hi all, Still in disbelief that I am actually pregnant and anxiously waiting for a second scan next week to check that wee heartbeat. Pregnancy after IVF is so stressful! Question is how and when did people stop all their drugs? I’m on lubion, progynova, and crinone. Clinics instructions are to reduce
Hi all, Still in disbelief that I am actually pregnant and anxiously waiting for a second scan next week to check that wee heartbeat. Pregnancy after IVF is so stressful! Question is how and when did people stop all their drugs? I’m on lubion, progynova, and crinone. Clinics instructions are to reduce
Kseye
in
Fertility Network UK
4 years ago
Withdrawal symptoms
I talked to my Doctor yesterday about my RLS as he put me on Gabapentin 3 a day just before the lockdown but they were making me so tired and fall asleep so i weaned myself off them. he's now putting me on Pregabalin 1 tablet 2 to 3 hours before i go to bed for a month then let him know how i'm getting
I talked to my Doctor yesterday about my RLS as he put me on Gabapentin 3 a day just before the lockdown but they were making me so tired and fall asleep so i weaned myself off them. he's now putting me on Pregabalin 1 tablet 2 to 3 hours before i go to bed for a month then let him know how i'm getting
Madolegs
in
Restless Legs Syndrome
4 years ago
Grade 1 embryo 🎉
Fantastic news this morning from the embryologist. One embryo is only a Grade 1 😀First time in 5 years of IVF managed anything higher than a Grade 2. Am putting it down to ubiquinol ladies so please keep taking it does work 👌🏻 It is currently a 4 cell embryo and it will definitely be transferred
Fantastic news this morning from the embryologist. One embryo is only a Grade 1 😀First time in 5 years of IVF managed anything higher than a Grade 2. Am putting it down to ubiquinol ladies so please keep taking it does work 👌🏻 It is currently a 4 cell embryo and it will definitely be transferred
Hope76
in
Fertility Network UK
4 years ago
Bisoprolol Fumarate or Nebivolol to avoid ED
Nebivolol / Bisoprolol Fumarate. I’ve been on 5mg Bisoprolol Fumarate during the last 5 years or so. I started experiencing weak erections. I didn’t payed attention at the beginning as I thought it was due to daily working stress and any other regular effect from the life routine but the problem grew
Nebivolol / Bisoprolol Fumarate. I’ve been on 5mg Bisoprolol Fumarate during the last 5 years or so. I started experiencing weak erections. I didn’t payed attention at the beginning as I thought it was due to daily working stress and any other regular effect from the life routine but the problem grew
Nanirightnow
in
AF Association
4 years ago
Query re Oxycodone new guidlines re pain- restless legs and Amytriptaline experiences.
Good afternoon fellow RL sufferers. Spoke with my GP yesterday who mentioned the new guidlines re Oxycodone and pain. ie that it's not found to be effective long term and I might have this slightly wrong but they are suggesting that Oxy is not always to be the go to option for pain scripts in the future
Good afternoon fellow RL sufferers. Spoke with my GP yesterday who mentioned the new guidlines re Oxycodone and pain. ie that it's not found to be effective long term and I might have this slightly wrong but they are suggesting that Oxy is not always to be the go to option for pain scripts in the future
smilingjane
in
Restless Legs Syndrome
4 years ago
Shoes
Hi everyone Hoping everyone is as good as can be, and managing well as things begin to open up a little more. Following recent ankle replacement, my ankle and foot are still hugely swollen and, which is feeling worse, I seem to have developed 2/3 calluses in the bottom of the same foot, making walking
Hi everyone Hoping everyone is as good as can be, and managing well as things begin to open up a little more. Following recent ankle replacement, my ankle and foot are still hugely swollen and, which is feeling worse, I seem to have developed 2/3 calluses in the bottom of the same foot, making walking
Eiram50
in
NRAS
4 years ago
Trying to drop Neupro and manage RLS without drugs
I’ve been on Neupro 1mg for about 1.5 years for RLS. I tried Horizant first but it didn’t help so my neuro put me on Neupro and I do well with it but I’m concerned about augmentation and side effects. I’m going to talk to my neuro about making a change. Has anyone tried Restiffic foot wraps? https:/
I’ve been on Neupro 1mg for about 1.5 years for RLS. I tried Horizant first but it didn’t help so my neuro put me on Neupro and I do well with it but I’m concerned about augmentation and side effects. I’m going to talk to my neuro about making a change. Has anyone tried Restiffic foot wraps? https:/
Discopage
in
Restless Legs Syndrome
4 years ago
6 week scan anxiety
I’ve got my 6 week scan in an hour and my anxiety is all over the place. I just want to hide away and pretend it’s not happening. I don’t have the best track record with scans, my 1st BFP ended in a MMC at the 8 week scan, my 2nd BFP ended in a pregnancy of unknown location/MMC at the 6 week scan.
I’ve got my 6 week scan in an hour and my anxiety is all over the place. I just want to hide away and pretend it’s not happening. I don’t have the best track record with scans, my 1st BFP ended in a MMC at the 8 week scan, my 2nd BFP ended in a pregnancy of unknown location/MMC at the 6 week scan.
Kitty230515
in
Fertility Network UK
4 years ago
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