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Experiences with
Sudden infant death syndrome (SIDS)
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Form of Magnesium?
Hi all, my daughter is suggesting I try Magnesium Malate as it is suggested for Fibromyalgia
Hi all, my daughter is suggesting I try Magnesium Malate as it is suggested for Fibromyalgia
serengazer
in
Restless Legs Syndrome
1 year ago
Advice about hair loss please
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Catsrock23
in
Thyroid UK
1 year ago
6 weeks baby implanted on the low side of the womb
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
MariannaB
in
Fertility Network UK
1 year ago
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Alternating meds
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
WelbyB
in
Restless Legs Syndrome
1 year ago
kratom vs Gabapentin
those of you who have switched from kratom to Gabapentin, or to something else… do you find if better or worse? I’d love to hear from some of you who used to use kratom but don’t anymore… do you feel better ? Do you feel less anxious? Has your sleep improved? Has your life improved? Is it possible to
those of you who have switched from kratom to Gabapentin, or to something else… do you find if better or worse? I’d love to hear from some of you who used to use kratom but don’t anymore… do you feel better ? Do you feel less anxious? Has your sleep improved? Has your life improved? Is it possible to
RCHD
in
Restless Legs Syndrome
1 year ago
subutex
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
RlS2023
in
Restless Legs Syndrome
1 year ago
length of time for biopsy results
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hidden
in
Lung Conditions Community Forum
1 year ago
School experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
theia
in
Myalgic Encephalomyelitis Community
1 year ago
Shortage of Pramipexole 0.18mg? UK
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Felixstowe
in
Restless Legs Syndrome
1 year ago
GBAPENTIN TIMES
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
auldreekie18
in
Restless Legs Syndrome
1 year ago
kratom issues
my husband started using kratom about 6 months ago because we can’t get cbd where we live. It was working ok but it’s no longer Easy which has been my problem with it from the Start. We will go back to usa in about 6 weeks. Until then his only option is kratom. he can’t use opiods because he’s bipolar
my husband started using kratom about 6 months ago because we can’t get cbd where we live. It was working ok but it’s no longer Easy which has been my problem with it from the Start. We will go back to usa in about 6 weeks. Until then his only option is kratom. he can’t use opiods because he’s bipolar
RCHD
in
Restless Legs Syndrome
1 year ago
GABA Nutrientsupplement vs Gabapentin and other Prescription Drugs of the same order
I have had RLS for about 6 years. The first medication was Levodopa 100mg as usual. After about 2 years it didn‘t do anything for me anymore. My new medication was Pramipexol 0.088 mg, which for 6 months worked OK. Then continuesly insomnia set in and I was sleeping or better just dosing off for 1-2
I have had RLS for about 6 years. The first medication was Levodopa 100mg as usual. After about 2 years it didn‘t do anything for me anymore. My new medication was Pramipexol 0.088 mg, which for 6 months worked OK. Then continuesly insomnia set in and I was sleeping or better just dosing off for 1-2
Ohmg
in
Restless Legs Syndrome
1 year ago
ChatGPT and Restless legs
many. of us now use ChatGPT to answer any questions we might. have. I asked ChatGPT about restless leg syndrome. Below are the answers. How do you deal with a severe case of a patient with restless leg syndrome? How can you help them with the discomfort and sleepless nights? 1. Use medication
many. of us now use ChatGPT to answer any questions we might. have. I asked ChatGPT about restless leg syndrome. Below are the answers. How do you deal with a severe case of a patient with restless leg syndrome? How can you help them with the discomfort and sleepless nights? 1. Use medication
thorp
in
Restless Legs Syndrome
1 year ago
Syringe
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
Wantplaytennis
in
NRAS
1 year ago
Surgery
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
davissw
in
Cure Parkinson's
1 year ago
Catastrophic APS
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Lind8
in
Hughes Syndrome APS Forum
1 year ago
Caffeine / pregabalin / conflicting advice
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
67Waterman
in
Restless Legs Syndrome
1 year ago
Hell: Weaning off pramipexole
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
Happyfriday123
in
Restless Legs Syndrome
1 year ago
Opioids
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Simkin
in
Restless Legs Syndrome
1 year ago
any experience with vitex / agnus castus / herbs? Help!
I’m in a real panic. I took the Holland and Barrett vitex/Agnus castus supplement for about a week in December (at a high dose). I immediately experienced sore boobs and my period came dramatically a week early. The two cycles after this i have not ovulated but had a period. As I’m TTC this is the
I’m in a real panic. I took the Holland and Barrett vitex/Agnus castus supplement for about a week in December (at a high dose). I immediately experienced sore boobs and my period came dramatically a week early. The two cycles after this i have not ovulated but had a period. As I’m TTC this is the
CarlottaD27
in
Fertility Network UK
1 year ago
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