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Experiences with
Stem cell and bone marrow transplants
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Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
He refused
stem
cell
transplant
therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN (Low Dose Naltrexone). His latest PET scans show no signs of cancer! Listen to his compelling story.
He refused
stem
cell
transplant
therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN (Low Dose Naltrexone). His latest PET scans show no signs of cancer! Listen to his compelling story.
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Incisional Hernia Experiences
Hello I had my liver transplant on the 15th August 2017 and a few months later started feeling a bit of pain on my right side and also a lump started to appear. This was identified as an incisional hernia and it became very large. It was repaired on the 23rd March this year but unfortunately I had a
Hello I had my liver transplant on the 15th August 2017 and a few months later started feeling a bit of pain on my right side and also a lump started to appear. This was identified as an incisional hernia and it became very large. It was repaired on the 23rd March this year but unfortunately I had a
AndyEssex
in
British Liver Trust
5 years ago
Over sensitive ??
Going on a 3 day cruise in October and just been asked on Facebook if I would like one of these!! Is it silly to get upset - since my husband's illness (not alcohol related) and subsequent liver transplant I'm not sure if I'm being over sensitive or just stupid. My husband intends to take his transplant
Going on a 3 day cruise in October and just been asked on Facebook if I would like one of these!! Is it silly to get upset - since my husband's illness (not alcohol related) and subsequent liver transplant I'm not sure if I'm being over sensitive or just stupid. My husband intends to take his transplant
Kimlescam
in
British Liver Trust
5 years ago
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Keep Active to Stay Healthy
After my kidney transplant in 2012, I experienced two below-knee amputations in the next two years. I learnt to walk using two prosthetic legs, aided by two walking sticks. I am encouraged to keep active to stay healthy, so I go on twice weekly walks, one with my walking coach, and twice weekly gym sessions
After my kidney transplant in 2012, I experienced two below-knee amputations in the next two years. I learnt to walk using two prosthetic legs, aided by two walking sticks. I am encouraged to keep active to stay healthy, so I go on twice weekly walks, one with my walking coach, and twice weekly gym sessions
richardzach
in
Weight Loss Support
5 years ago
Please watch Video (Giant Cell and PMR and Tocilizumab)
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
lemarie1
in
PMRGCAuk
5 years ago
Good news from Tricity125
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Hi, I’m a member of the NRAS group and we’ve 3 posts appeared from Tricity 125 about 10 hours ago - I think they are meant for you peeps as he’s never posted with us before. The post lung transplant op news from Tricity 125 is he’s alive and doing relatively well. Please do pop over to his posts on NRAS
Ali_H
in
Lung Conditions Community Forum
5 years ago
Vaccines
I’m traveling to Thailand in September and I need to two vaccines: MMR and Varicella. I received my kidney transplant in 4/2007. What should I do ? I remembered being vaccinated back in the early 70s but I can’t find my records. I took the blood test and my results was negative.
I’m traveling to Thailand in September and I need to two vaccines: MMR and Varicella. I received my kidney transplant in 4/2007. What should I do ? I remembered being vaccinated back in the early 70s but I can’t find my records. I took the blood test and my results was negative.
Deelyn21
in
Kidney Transplant
5 years ago
Thin skin
Hi I have had a kidney transplant for 28 years I have very thin skin which is causing a lot of problems I bruise very easy especially on legs is there anyone who could tell me if there is anything I can do especially the legs as I am getting paranoid about anyone touching them I have been told by the
Hi I have had a kidney transplant for 28 years I have very thin skin which is causing a lot of problems I bruise very easy especially on legs is there anyone who could tell me if there is anything I can do especially the legs as I am getting paranoid about anyone touching them I have been told by the
Rusty8
in
Kidney Transplant Patient Support
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or
Stem
Cell
Transplant
. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point?
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or
Stem
Cell
Transplant
. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point?
Doremefasol
in
CLL Support
5 years ago
10 months post Stem Cell Transplant
For anyone out there facing a
stem
cell
transplant
, I wish you luck and if you want to chat, drop me a line. Good health everyone 🤗
For anyone out there facing a
stem
cell
transplant
, I wish you luck and if you want to chat, drop me a line. Good health everyone 🤗
KAS8
in
CLL Support
5 years ago
Jaycee's Journey - continues
Our poor Jaycee is back in the wars again. She’s once again back in hospital. She was admitted yet again last Wednesday. As many of you may know, Jaycee has been suffering with some post-transplant issues. Her body it would appear isn’t making enough white blood cells, and those ones it is making are
Our poor Jaycee is back in the wars again. She’s once again back in hospital. She was admitted yet again last Wednesday. As many of you may know, Jaycee has been suffering with some post-transplant issues. Her body it would appear isn’t making enough white blood cells, and those ones it is making are
Hidden
in
British Liver Trust
5 years ago
Taking 195mg of iron pills a day: did you lose your appetite?
My spouse with doctor's orders around July 8 started taking 195mg of iron pills a day (had been taking 65 mg for months) due to "low iron stores"/low hemoglobin and severe fatigue since February. Did anyone take a high dose of iron for a long time and lose their appetite? HE received his kidney transplant
My spouse with doctor's orders around July 8 started taking 195mg of iron pills a day (had been taking 65 mg for months) due to "low iron stores"/low hemoglobin and severe fatigue since February. Did anyone take a high dose of iron for a long time and lose their appetite? HE received his kidney transplant
Gardner-NY
in
Kidney Transplant
5 years ago
Transplant
Hi all, hope you are well as can be. I haven't been in touch for a while as nothing had changed with my hubby's condition. Saw his consultant today thinking he would be able to go on the list but again we were turned down because she said he seemed well. so not ill enough to be put on the list. It has
Hi all, hope you are well as can be. I haven't been in touch for a while as nothing had changed with my hubby's condition. Saw his consultant today thinking he would be able to go on the list but again we were turned down because she said he seemed well. so not ill enough to be put on the list. It has
Catmeow
in
British Liver Trust
5 years ago
Colonoscopy Whilst on Steroids
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! 😊 My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! 😊 My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Songbird69
in
PMRGCAuk
5 years ago
CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Kidney transplant
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the surgery are brutal. Those of you who’ve had transplants, (or knew someone who has) what was your/their experience? Thank you in advance ❤️
Christina1960
in
Vasculitis UK
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Question: bone marrow biopsy after transplant
The kidney transplant appointment yesterday did not yield good news for my spouse as we hoped about his declining hemoglobin numbers the past 6 months and now white blood count went down from 7.27 last month to 1.59 yesterday. CMV blood lab taken yesterday (last time negative and hope this is negative
The kidney transplant appointment yesterday did not yield good news for my spouse as we hoped about his declining hemoglobin numbers the past 6 months and now white blood count went down from 7.27 last month to 1.59 yesterday. CMV blood lab taken yesterday (last time negative and hope this is negative
Gardner-NY
in
Kidney Transplant
5 years ago
The real Silent Heroes
I have mentioned on here before, about those very special people who care and look after us during our liver disease journey. Those wonderful people who put up with us during those terrible moments of HE. Those who stand by us and help us through our Liver Transplant convalescence. Sometimes a simple
I have mentioned on here before, about those very special people who care and look after us during our liver disease journey. Those wonderful people who put up with us during those terrible moments of HE. Those who stand by us and help us through our Liver Transplant convalescence. Sometimes a simple
Hidden
in
British Liver Trust
5 years ago
Can I get a kidney transplant if I have tattoos?
I asked my nephrologist if I could get tattoos before I got them and he said yes so I did. But come to find out I'm allergic to the ink and keep getting rashes on them so I called to make an appointment with my family doctor but she was on vacation so I made an appointment with the nurse practitioner
I asked my nephrologist if I could get tattoos before I got them and he said yes so I did. But come to find out I'm allergic to the ink and keep getting rashes on them so I called to make an appointment with my family doctor but she was on vacation so I made an appointment with the nurse practitioner
Mindy73
in
Kidney Transplant
5 years ago
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