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Mitral Valve re-repair
In November 2023 I found out I had endocarditis. As a result I had surgery to repair my mitral valve. At the time it was successful and I was recovering well. However, when I had my follow up echo, around 3 months later, I found out the valve was leaking again and I am now waiting for surgery once I
In November 2023 I found out I had endocarditis. As a result I had surgery to repair my mitral valve. At the time it was successful and I was recovering well. However, when I had my follow up echo, around 3 months later, I found out the valve was leaking again and I am now waiting for surgery once I
sshady
in
British Heart Foundation
4 months ago
Cyanocobalamin
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Syuri
in
Pernicious Anaemia Society
4 months ago
Blood
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
ChillyAsh34
in
MPN Voice
4 months ago
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Not feeling to well.. BP abnormal 🤦
Hi everyone ❤️ Can I ask for a bit of advice 🙏 Backstory... Started to feel ill on Sunday 28th with a cough and aches and pains with a slight bad headache, thought ho it's probably a head cold /flu. Started with paracetamol for symptoms all was OK, by Wednesday my aches and pains were easing my cough
Hi everyone ❤️ Can I ask for a bit of advice 🙏 Backstory... Started to feel ill on Sunday 28th with a cough and aches and pains with a slight bad headache, thought ho it's probably a head cold /flu. Started with paracetamol for symptoms all was OK, by Wednesday my aches and pains were easing my cough
birkie
in
Thyroid UK
4 months ago
Inflammatory Arthritis with Levothyroxine
Has anyone else had severe pains in their tendons and muscles due to Levothyroxine? 18 years ago I had an ESR blood test at my G.P.'s surgery as I had severe pains on Levothyroxine, this proved I had Inflammatory Arthritis, so I bought Armour Thyroid from the US as the only alternative at that time.
Has anyone else had severe pains in their tendons and muscles due to Levothyroxine? 18 years ago I had an ESR blood test at my G.P.'s surgery as I had severe pains on Levothyroxine, this proved I had Inflammatory Arthritis, so I bought Armour Thyroid from the US as the only alternative at that time.
Denise500
in
Thyroid UK
4 months ago
Update - experiene so far.!
Hi All, Well I am now 7 weeks post my Ivor Lewis surgey in Broomfield (Chelmsford UK) which is a regional center for this type of operation as not done in my home county of Suffolk. Surgery went well , and was out in 7 days..I quite determnned type and was fit prior to my diagnosis of OC. Had 4 lots
Hi All, Well I am now 7 weeks post my Ivor Lewis surgey in Broomfield (Chelmsford UK) which is a regional center for this type of operation as not done in my home county of Suffolk. Surgery went well , and was out in 7 days..I quite determnned type and was fit prior to my diagnosis of OC. Had 4 lots
LarryLamb69
in
Oesophageal & Gastric Cancer
4 months ago
waiting for surgery
hi all not been on here for same time, I've started my new role at work due to my redeployment because of my AF/heart failure condition. It's been 15 months now still waiting for my operation to replace my aortic and valve. I've seen my cardiac consultant who asked me if I had my operation yet,of course
hi all not been on here for same time, I've started my new role at work due to my redeployment because of my AF/heart failure condition. It's been 15 months now still waiting for my operation to replace my aortic and valve. I've seen my cardiac consultant who asked me if I had my operation yet,of course
chrisboxall
in
British Heart Foundation
4 months ago
Severe Morning headaches
hi I was diagnosed some years ago with hyperthyroidism I was prescribed Carbimazole and in more recent years changed to PTU. Both have horrible side effects for me, but I’ve lived with it as I don’t want to loose my thyroid. Side effects are, Mainly severe headaches. I have recently taken a break from
hi I was diagnosed some years ago with hyperthyroidism I was prescribed Carbimazole and in more recent years changed to PTU. Both have horrible side effects for me, but I’ve lived with it as I don’t want to loose my thyroid. Side effects are, Mainly severe headaches. I have recently taken a break from
melross
in
Thyroid UK
4 months ago
Surgery or radiation, looking for some advices
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Healing1826
in
Advanced Prostate Cancer
4 months ago
Unexplained “rash”
I’m currently into 6 years of PMR, having had my fair share of ups and downs, and am now on 3.5mg of Pred, which the Rheumatologist thinks will be necessary for a while. Other than that I’ve been in reasonable health. But a couple of months ago I had to have a biopsy on a lesion on my back. Whilst the
I’m currently into 6 years of PMR, having had my fair share of ups and downs, and am now on 3.5mg of Pred, which the Rheumatologist thinks will be necessary for a while. Other than that I’ve been in reasonable health. But a couple of months ago I had to have a biopsy on a lesion on my back. Whilst the
Janann25
in
PMRGCAuk
4 months ago
Thank you!
Hi everyone, Just wanted to say a huge thank to everyone who responded to my various messages over the last couple of days about my mums surgery. Not to jinx anything but everything seems to be on track for mum to be discharged tomorrow (a week after her op) and shes feeling so much better both physically
Hi everyone, Just wanted to say a huge thank to everyone who responded to my various messages over the last couple of days about my mums surgery. Not to jinx anything but everything seems to be on track for mum to be discharged tomorrow (a week after her op) and shes feeling so much better both physically
georgiageorgia182
in
My Ovacome
4 months ago
Need practical advice re:RRP for 76 year-old in fair shape
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
AliceinW57
in
Prostate Cancer Network
4 months ago
Excision surgery tips
hi all. Hope you’re well. 💛 I’m having excision surgery in 2 weeks, could you kindly share any recovery tips? I’m also having Endometrioma and fibroids removed. If you had an Endometrioma removed, did it impact your amh and by how much? Thanks so much xx
hi all. Hope you’re well. 💛 I’m having excision surgery in 2 weeks, could you kindly share any recovery tips? I’m also having Endometrioma and fibroids removed. If you had an Endometrioma removed, did it impact your amh and by how much? Thanks so much xx
Hidden
in
Endometriosis UK
4 months ago
1 year anniversary of Hybrid Mini maze
My 1 year anniversary is actually Saturday but I’m sitting in a church hall acting as a polling Clark for the police and crime commissioners election, I’ve been here since 6:15 am and will finish about 10:15 pm, that alone would of been impossible 12months ago. There’s been highs and lows over the 12months
My 1 year anniversary is actually Saturday but I’m sitting in a church hall acting as a polling Clark for the police and crime commissioners election, I’ve been here since 6:15 am and will finish about 10:15 pm, that alone would of been impossible 12months ago. There’s been highs and lows over the 12months
4chickens
in
Atrial Fibrillation Support
4 months ago
TPO positive, history of early miscarriage's, no need to medicate however still being referred to endocrinologist?
Previously when speaking with my GP's I have not really got very far and didn't really feel like my concerns were being addressed or even acknowledged. No face to face or even telephone conversations, just the same old cycle of being sent for bloods then being told all ok or 'currently stable' etc.
Previously when speaking with my GP's I have not really got very far and didn't really feel like my concerns were being addressed or even acknowledged. No face to face or even telephone conversations, just the same old cycle of being sent for bloods then being told all ok or 'currently stable' etc.
DaisyChain22
in
Thyroid UK
4 months ago
New Here - Type 3c diabetes.
Hi there, Looking for support groups / networking groups of folks with type 3c diabetes. Long story short: - Necrotic Pancreatitis in 2022 - Hospitalized 4 months - Developed gastroparesis - Surgery, removed gallbladder and performed gastrojejunostomy Now I have type 3c diabetes, as well as a
Hi there, Looking for support groups / networking groups of folks with type 3c diabetes. Long story short: - Necrotic Pancreatitis in 2022 - Hospitalized 4 months - Developed gastroparesis - Surgery, removed gallbladder and performed gastrojejunostomy Now I have type 3c diabetes, as well as a
Silly_Dumpling
in
Chronic Pancreatitis Support
4 months ago
Endometriomas and IVF
Just looking for some advise or from anyone who has gone through similar! I had surgery last June to remove bilateral cysts diagnosed with stage 4 endo and was put on Decaptyl for 3 months following this to stop regrowth. However within 6 months of TTC I now have 2 Endometriomas on my right ovary
Just looking for some advise or from anyone who has gone through similar! I had surgery last June to remove bilateral cysts diagnosed with stage 4 endo and was put on Decaptyl for 3 months following this to stop regrowth. However within 6 months of TTC I now have 2 Endometriomas on my right ovary
Amy2106
in
Endometriosis UK
4 months ago
Pulmonary Vein Isolation
What has been the experience with pulmonary vein isolation I am seriously considering it. Risks? Results? Recovery time? I am 84 Permanent afib that no longer responds to cardioversion. The Electrophysiologist told me 70% chance for results but may not last longer than 7 months. If I do not elect
What has been the experience with pulmonary vein isolation I am seriously considering it. Risks? Results? Recovery time? I am 84 Permanent afib that no longer responds to cardioversion. The Electrophysiologist told me 70% chance for results but may not last longer than 7 months. If I do not elect
farewelltoarms
in
Atrial Fibrillation Support
4 months ago
depression
It,s now five years since I had an oesphagectomy. I find that I,m suffering from flashbacks a lot of the time. It was eighteen months of continual tests before I was diagnosed then I had chemotherapy and radiotherapy followed by surgery. I,m used to my new normal now regarding diet etc however it’s this
It,s now five years since I had an oesphagectomy. I find that I,m suffering from flashbacks a lot of the time. It was eighteen months of continual tests before I was diagnosed then I had chemotherapy and radiotherapy followed by surgery. I,m used to my new normal now regarding diet etc however it’s this
Summerson
in
My Cancer Community
4 months ago
Transplant clinic
Hi on Tuesday I was at clinic for the first time after my surgery to make sure that everything with my heart was ok. I got an echo scan which was fine, I have mild regurgitation (I am not really sure what that means) my consultant is not too concerned about it. The main worry for me is my blood pressure
Hi on Tuesday I was at clinic for the first time after my surgery to make sure that everything with my heart was ok. I got an echo scan which was fine, I have mild regurgitation (I am not really sure what that means) my consultant is not too concerned about it. The main worry for me is my blood pressure
Thanksnhs
in
British Heart Foundation
4 months ago
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