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Experiences with
Sodium tetradecyl sulfate (STS)
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b12 purchase
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Maximus2222
in
Pernicious Anaemia Society
9 months ago
Itchy Rash Help Please!
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Urbanski
in
Thyroid UK
8 months ago
Tenesmus - Urgency
Anyone out there struggling with tenesmus? Been experiencing urgency for 3 months virtually nonstop. Only a couple of days relief here and there. Also it gets worse whenever I walk or stand, if I sit all day I am usually fine. Also seems to get worse after a shower or after bm. Tried everything from
Anyone out there struggling with tenesmus? Been experiencing urgency for 3 months virtually nonstop. Only a couple of days relief here and there. Also it gets worse whenever I walk or stand, if I sit all day I am usually fine. Also seems to get worse after a shower or after bm. Tried everything from
yakodik
in
IBS Network
1 month ago
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6 Months on and we’re making some progress 🌞🌞
Having found a Late Side Effects clinic thanks to this site around November 2023 I am so pleased with where I’m at. I’ve had the ‘poo’ tests done. There is nothing showing there. No IBS or IBD. I’ve had my kidneys scanned. Some scarring but no damage and fully functional. I’ve had my bladder function
Having found a Late Side Effects clinic thanks to this site around November 2023 I am so pleased with where I’m at. I’ve had the ‘poo’ tests done. There is nothing showing there. No IBS or IBD. I’ve had my kidneys scanned. Some scarring but no damage and fully functional. I’ve had my bladder function
Hidden
in
Pelvic Radiation Disease Association
2 months ago
Valproate: new safety and educational materials to support regulatory measures in men and women under 55 years of age
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
helvella
Thyroid UK
in
Thyroid UK
6 months ago
Desperately need help pls
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
Lisamarsh
in
Headway
6 months ago
My response to WinnieThePoo.
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
SilentEchoes
in
Cure Parkinson's
9 months ago
Medscape article on RLS
Restless legs Medscape Medscape is the leading online global destination for physicians and healthcare professionals worldwide, offering the latest medical news and expert perspectives; essential point-of-care drug and disease information; and relevant professional education and CME. This is
Restless legs Medscape Medscape is the leading online global destination for physicians and healthcare professionals worldwide, offering the latest medical news and expert perspectives; essential point-of-care drug and disease information; and relevant professional education and CME. This is
thorp
in
Restless Legs Syndrome
2 months ago
Bowel and bladder problems after Radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Maz131
in
Pelvic Radiation Disease Association
2 months ago
EU introduces valproate measures
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
6 months ago
Switch diet to Vegetarian - save your kidneys
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
geewhiz
in
Kidney Disease
9 months ago
10 years of constant pain.....
Hi everyone I'm new here writing first time. I'm 29 years old. I didnt have any health issues untill 16-17 at that age my period started to be very painfull at age 18-19 I went to doctor for BV and candida they prescribed a lot of antibiotics including fluoroquinolones, since then I'm in constant pain
Hi everyone I'm new here writing first time. I'm 29 years old. I didnt have any health issues untill 16-17 at that age my period started to be very painfull at age 18-19 I went to doctor for BV and candida they prescribed a lot of antibiotics including fluoroquinolones, since then I'm in constant pain
Maramava
in
Thyroid UK
2 months ago
Undiagnosed for years
hello , I’ve read many of your stories and whilst it is never good to hear of people suffering I’m heartened to read of symptoms that others experience very similar to me I have genital ulcers, gastro problems, very very occasional mouth ulcer, eye problems, hear and balance problems and continual
hello , I’ve read many of your stories and whilst it is never good to hear of people suffering I’m heartened to read of symptoms that others experience very similar to me I have genital ulcers, gastro problems, very very occasional mouth ulcer, eye problems, hear and balance problems and continual
Swimbler
in
Behçet's UK
3 months ago
Diverticulosis etc
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
Calceolaria
in
Thyroid UK
3 months ago
Pain killers and Hip replacement
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Hildrethbird
in
MPN Voice
9 months ago
Dry eyes
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Groda
in
PMRGCAuk
9 months ago
Ferritin results
Hi, I had my blood test results back today and my serum ferritin is 30ug/L. No TSAT. Results tho. I've been prescribed ferrous sulphate 200mg. Not sure what 30ug/L means though can anyone enlighten me?
Hi, I had my blood test results back today and my serum ferritin is 30ug/L. No TSAT. Results tho. I've been prescribed ferrous sulphate 200mg. Not sure what 30ug/L means though can anyone enlighten me?
Ragdoll1
in
Restless Legs Syndrome
3 months ago
Heme vs Non-Heme Iron Supplements
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
ReallyWondering
in
Thyroid UK
3 months ago
constipation help
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
Radars
in
Bone Health and Osteoporosis UK
9 months ago
Advice needed re Hashimotos.
Hi, I would love to understand more about my thyroid. I’ve been on Levothyroxine since diagnosis some 20 years ago. It’s crept up to 175mcg last week. Here are my latest bloods from my GP. TSH 2.71 Free t4 14 Ferritin 84 Folic Acid 15.5 Vitamin D 95 I am on b12 injections and supplementing with
Hi, I would love to understand more about my thyroid. I’ve been on Levothyroxine since diagnosis some 20 years ago. It’s crept up to 175mcg last week. Here are my latest bloods from my GP. TSH 2.71 Free t4 14 Ferritin 84 Folic Acid 15.5 Vitamin D 95 I am on b12 injections and supplementing with
Artist23
in
Thyroid UK
3 months ago
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