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Bone Marrow and blood cells
My husband has been in the hospital for a week. He had been struggling to eat and drink due to nausea. His oncologist had him come in and they gave him a liter of saline and sent him home. We are rural and live an hour from the oncologist and any hospitals. When we got home that evening, it took him
My husband has been in the hospital for a week. He had been struggling to eat and drink due to nausea. His oncologist had him come in and they gave him a liter of saline and sent him home. We are rural and live an hour from the oncologist and any hospitals. When we got home that evening, it took him
Wyldhare22
in
Advanced Prostate Cancer
1 year ago
Further advice please
As mentioned in an earlier post, I will be entering into deliberations this coming week with my oncologist and our Nuclear Medicine Team to determine my next therapy steps. As previously noted, I am currently on Cabazitaxel which is suspected to be failing due to rising PSA after three cycles. Options
As mentioned in an earlier post, I will be entering into deliberations this coming week with my oncologist and our Nuclear Medicine Team to determine my next therapy steps. As previously noted, I am currently on Cabazitaxel which is suspected to be failing due to rising PSA after three cycles. Options
Univs
in
Advanced Prostate Cancer
1 year ago
Advice Please
Currently assessing efficacy of Cabazitaxel and possible next steps. Future options could include, Radium 223, Pluvicto, other. Also, Dr has put Carbolatin on the table as a “stand alone” therapy i.e., not combined with Cabazitaxel. My question: Does anyone have experience/advice with respect to
Currently assessing efficacy of Cabazitaxel and possible next steps. Future options could include, Radium 223, Pluvicto, other. Also, Dr has put Carbolatin on the table as a “stand alone” therapy i.e., not combined with Cabazitaxel. My question: Does anyone have experience/advice with respect to
Univs
in
Advanced Prostate Cancer
1 year ago
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Muscle cramps and increased leg fatigue and aching
My HWP exercises regularly (boxing, walking, pickleball), but lately is experiencing frequent cramps after any/all of these. He has had to cut walks short because he finds them too painful and the cramps are occurring immediately after exercise and again at night. Any more suggestions? He is taking
My HWP exercises regularly (boxing, walking, pickleball), but lately is experiencing frequent cramps after any/all of these. He has had to cut walks short because he finds them too painful and the cramps are occurring immediately after exercise and again at night. Any more suggestions? He is taking
bibsie
in
Cure Parkinson's
2 years ago
Levothyroxine sodium loaded dissolving microneedle arrays for transdermal delivery
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Thybon Henning doesn’t contain acacia?!
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
hjh88
in
Thyroid UK
2 years ago
Got the Second Opinion
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
And I am SO glad I did! In a prior post, I had told about events leading up to a cardiologist getting snippy with me because I questioned the need for an ablation. The more research I did the more convinced I became that my gut feeling was right and I set up an appt. with a different doctor. Monday
Elsie1955
in
Atrial Fibrillation Support
2 years ago
History of Epileptic Seizure
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
I am 60 years old male from India. I had my first onset of seizure in my youth days ( 35 years ago). Though it was not clear from EEG but I was put on Dilantin 200 mg. It was controlled for 3 years and then started again from 1990. Eptoin was started in place of Dilantin for 250mg. But the episodes
das1234
in
Epilepsy Action
2 years ago
How did we arrive at Disease?
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
Cons10s
in
Cure Parkinson's
2 years ago
Nephrologist Visit
I saw the nephrologist today and am so glad that I did. First, she is a total sweetheart and spent a lot of time asking questions and really listening to the answers. Then she spent time telling me what she thinks happened and what she thinks will happen in the future. Everything was positive and
I saw the nephrologist today and am so glad that I did. First, she is a total sweetheart and spent a lot of time asking questions and really listening to the answers. Then she spent time telling me what she thinks happened and what she thinks will happen in the future. Everything was positive and
TopazForests
in
Kidney Disease
2 years ago
Maize starch, Sodium Metabisuphate and validation at home
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Blimey what a week! After months of elimination diet, AI diet and feeling really well on it. I’ve had a recurrence of gastro symptoms, IBS type looseness, scared to fart type days. Heightened anxiety. Aches and pains. First bout followed some Kokos coconut yogurt that we can only assume the maize
Regenallotment
in
Thyroid UK
2 years ago
Depressing example of medical intransigence
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
For a long time, the medical world has ignored the potential effects of valproate on infant health after birth. Even though guidance commitees have cautioned against giving valproate to pregnant women. This scandal continues, and babies are still being born with serious problems. The response of the
diogenes
in
Thyroid UK
2 years ago
Medichecks results guidance appreciated
I have received my most recent blood results from medichecks. I followed the adviced protocol before the early morning blood test. I take 100mcg of thyroxine daily Selenium Magnesium citrate Vitamin D3 with k2 Thorne Basic B comple Sublingual b12 lozenge CRP 0.49 mg/L. (0.-5) Ferritin 48.2ug
I have received my most recent blood results from medichecks. I followed the adviced protocol before the early morning blood test. I take 100mcg of thyroxine daily Selenium Magnesium citrate Vitamin D3 with k2 Thorne Basic B comple Sublingual b12 lozenge CRP 0.49 mg/L. (0.-5) Ferritin 48.2ug
Starmen
in
Thyroid UK
2 years ago
What Does Everyone Do For Diet?
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
I am going to start the Mediterranean diet, with some modifications because I need lower sodium. if you do it, please let me know how its going for you. I have to drop 50 pounds, most of which I gained back :( I got lazy.
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Can probiotics ease diarrhoea and daily loose stools?
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
I have tried so, so many things over the years to help my IBS. I am low fodmap, dairy free and am very careful with my food and drink intake, listen to gut directed hypnotherapy, exercise, I drink mint tea, have peppermint capsules, Imodium, mebeverine, alverine etc. But not much helps. The daily
rustydog
in
IBS Network
2 years ago
radium 223
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
looking for info on side effects. We are 5 hours from a treatment center and would like to be comfortably at home for any side effects. I’d love to hear side effect experiences for this treatment. Thanks
Mcrpca
in
Advanced Prostate Cancer
1 year ago
Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hanna_josef
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
IBS after eating evening meal
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
I have been a coeliac for many years, when I was diagnosed I thought my diarrhoea would cease. I also have trouble with an over active bladder. My diarrhoea seems to arrive about 4 hours after my evening meal. It can happen up to 4 times a week then perhaps nothing the next week. I get very painful cramps
PayPal
in
IBS Network
2 years ago
What first?: Provenge or Nubeqa?
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
Practical Advice for having a social life with IBS-D
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
I'm determined not to let IBS-D stop me from living an active lifestyle. I'm a married mom of 3 and also very social however most people around me don't know about my daily struggle with IBS-D. I'm not looking to share this information either. If I'm going anywhere with friends or family, I generally
MeliHere2
in
IBS Network
2 years ago
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