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Ferritin and Haemoglobin levels
Hi All, my husband had to abandon radium 223 when it was discovered that he had several lung nodules (around 8mm). His PSA has been increasing for the last 18 months (he was diagnosed August 2022) so his oncologist sent him for a scan after the 4th radium infusion which is how the lung nodules were discovered
Hi All, my husband had to abandon radium 223 when it was discovered that he had several lung nodules (around 8mm). His PSA has been increasing for the last 18 months (he was diagnosed August 2022) so his oncologist sent him for a scan after the 4th radium infusion which is how the lung nodules were discovered
NLondon43
in
Advanced Prostate Cancer
18 days ago
loperamide
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
my doctor has advised I take this daily but I’m worried they will lose their effect over time and stop working. Does anyone else take Imodium daily and if so has this happened?
Finefornow
in
IBS Network
7 months ago
Time to come off Ropinerole 4 years after being on Pramepexole 7 years. What else can I try????
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
Maddie1000
in
Restless Legs Syndrome
1 year ago
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AGA - American College of Gastroenterology Clinical Practice Guideline: Pharmacological Management of Chronic Idiopathic Constipation - 2023
https://journals.lww.com/ajg/fulltext/2023/06000/american_gastroenterological_association_american.13.aspx Abstract INTRODUCTION: Chronic idiopathic constipation (CIC) is a common disorder associated with significant impairment in quality of life. This clinical practice guideline, jointly developed
https://journals.lww.com/ajg/fulltext/2023/06000/american_gastroenterological_association_american.13.aspx Abstract INTRODUCTION: Chronic idiopathic constipation (CIC) is a common disorder associated with significant impairment in quality of life. This clinical practice guideline, jointly developed
Meleber
in
IBS Network
9 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
2 months ago
My husband has passed.
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
rhenrick
in
Advanced Prostate Cancer
2 months ago
3B and falling fast
Good day: Age 68, farm wife. BMI 25. (about 20# overweight) Non-smoker. Stage 3B kidney disease, and GFR falling every month. Right now at 30 with creatinine at 1.81. Comorbidities are Polymyalgia Rheumatica , Giant Cell Arteritis, MGUS, resistant hypertension. This morning was 185/107
Good day: Age 68, farm wife. BMI 25. (about 20# overweight) Non-smoker. Stage 3B kidney disease, and GFR falling every month. Right now at 30 with creatinine at 1.81. Comorbidities are Polymyalgia Rheumatica , Giant Cell Arteritis, MGUS, resistant hypertension. This morning was 185/107
phebamom
in
Kidney Disease
10 months ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
8 months ago
ileostomy surgery recovery
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my ileostomy 3 weeks today and whilst I love having the ileostomy my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
8 months ago
any info please
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
soupersuzy
in
Restless Legs Syndrome
9 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
3 months ago
Dialysis
Hello Just looking for some advice as we are completely stumped over the lack of information my mam has been giving.... My mam starts dialysis 3 times a week starting tomorrow she also has diabetes and we are so confused as to what she can eat after her dialysis the dietician we spoke to was completely
Hello Just looking for some advice as we are completely stumped over the lack of information my mam has been giving.... My mam starts dialysis 3 times a week starting tomorrow she also has diabetes and we are so confused as to what she can eat after her dialysis the dietician we spoke to was completely
Jk2023
in
Kidney Disease
1 year ago
tablet advice
hi. I currently take Candesartan for HBP but I've had low blood sodium readings for a couple of years. GP says nothing to worry about. But as I've been experiencing dizzy spells and anxiety etc I would like to change to something that wont affect my sodium. I've tried felodpine and ramipril. I don't
hi. I currently take Candesartan for HBP but I've had low blood sodium readings for a couple of years. GP says nothing to worry about. But as I've been experiencing dizzy spells and anxiety etc I would like to change to something that wont affect my sodium. I've tried felodpine and ramipril. I don't
philippa1412
in
High Blood Pressure Support
1 year ago
Blood sodium levels
Stage 3b My last labs over the past year have had a decrease in my blood sodium levels. Last test was 131. Nephrologist said I need to start eating more protein as that helps to keep sodium in your bloodstream instead of getting out in your body tissue. I don’t have any edema and take a diuretic. Not
Stage 3b My last labs over the past year have had a decrease in my blood sodium levels. Last test was 131. Nephrologist said I need to start eating more protein as that helps to keep sodium in your bloodstream instead of getting out in your body tissue. I don’t have any edema and take a diuretic. Not
MGsolid
in
Kidney Disease
1 year ago
Help with bloods please
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
Licklemoose
in
Thyroid UK
1 year ago
Radium-223 and [177Lu]Lu-PSMA
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
Has anyone here from Canada had experience with either of the two PSMA treatments. I was all excited about this until I looked into it a bit more and the results seem to be very mixed not to mention the cost of upwards of $27K per treatment (5 or 6 treatments seems to be typical). I have completed 8
westjl2
in
Advanced Prostate Cancer
4 months ago
ketchup
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
can anyone with experience taking Radium 223 tell me the experience they went thru. I am staring on the 8th and want to know if there were side effects and if you managed to do all 6 doses. Cheers
catsup
in
Advanced Prostate Cancer
4 months ago
Preventing IBS diarrhea before plane travel
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
MrsSJO
in
IBS Network
8 months ago
At the crossroads (again)
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
rsgdmd
in
Advanced Prostate Cancer
4 months ago
Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
4 months ago
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