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Experiences with
Small lymphocytic lymphoma (SLL)
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Colon cancer as secondary cancer
Hi I just got diagnosed with colon cancer last week and I am lucky I will have the operation to remove it on Tuesday - a very good Kaiser surgeon got me in quickly. It's not clear if it has advanced - I hope not- so we will see. I had a CT scan for the CLL in March when they saw something in the colon
Hi I just got diagnosed with colon cancer last week and I am lucky I will have the operation to remove it on Tuesday - a very good Kaiser surgeon got me in quickly. It's not clear if it has advanced - I hope not- so we will see. I had a CT scan for the CLL in March when they saw something in the colon
angelikab
in
CLL Support
1 year ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
[/i] [i]https://theconversation.com/just-5-of-therapies-tested-in-animals-end-up-as-as-human-drugs-new-study-shows-231920[/i] We think of CLL as a leukaemia, but CLL/SLL (Chronic
Lymphocytic
[u]Leukemia[/u],
Small
Lymphocytic
[u]
Lymphoma
[/u]), is the most commonly diagnosed adult Non-Hodgins [u]Lymphoma
[/i] [i]https://theconversation.com/just-5-of-therapies-tested-in-animals-end-up-as-as-human-drugs-new-study-shows-231920[/i] We think of CLL as a leukaemia, but CLL/SLL (Chronic
Lymphocytic
[u]Leukemia[/u],
Small
Lymphocytic
[u]
Lymphoma
[/u]), is the most commonly diagnosed adult Non-Hodgins [u]Lymphoma
AussieNeil
Partner
in
CLL Support
2 months ago
Why white blood counts can be high or low. Could a high count be blood cancer, in particular Chronic Lymphocytic Leukemia (CLL)?
Here's the index to the rest: https://healthunlocked.com/cllsupport/posts/143482731/cll-for-dummies-index )
2) Newly diagnosed with Chronic
Leukemia or
Small
Lymphocytic
Lymphoma
- CLL/SLL or just found us? This post is for you!
Here's the index to the rest: https://healthunlocked.com/cllsupport/posts/143482731/cll-for-dummies-index )
2) Newly diagnosed with Chronic
Leukemia or
Small
Lymphocytic
Lymphoma
- CLL/SLL or just found us? This post is for you!
AussieNeil
Partner
in
CLL Support
1 year ago
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Latest bloodwork
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
rubberlegs68
in
CLL Support
1 year ago
Foundation One heme blood test results
Hi, I wonder if somebody knows about this topic. My platelets have been high for six years; the bone marrow biopsy was incomplete because the nurse could not obtain the solid part. Anyway, the liquid aspiration was analyzed, and the bone marrow looked normal; the next-generation sequencing panel from
Hi, I wonder if somebody knows about this topic. My platelets have been high for six years; the bone marrow biopsy was incomplete because the nurse could not obtain the solid part. Anyway, the liquid aspiration was analyzed, and the bone marrow looked normal; the next-generation sequencing panel from
Cusube1967
in
CLL Support
1 year ago
The current status and challenges of CAR-T therapy in CLL
A few members of this group are scheduled for CAR-T and others might find themselves in the same situation in the future so I thought this would be of interest. "[i]In recent years, novel immunotherapies, including CAR-T cell therapy, have greatly improved treatment options for patients with hematological
A few members of this group are scheduled for CAR-T and others might find themselves in the same situation in the future so I thought this would be of interest. "[i]In recent years, novel immunotherapies, including CAR-T cell therapy, have greatly improved treatment options for patients with hematological
Jm954
Administrator
in
CLL Support
1 year ago
Dr. John Allan - Chronic Lymphocytic Leukemia (CLL) Patients @Undetectable Measurable Residual Disease (MRD) after Ibrutinib Plus Venetoclax
The Bottom Line: Patients with chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL) who achieved undetectable measurable (or minimal) residual disease (uMRD) after fixed-duration ibrutinib + venetoclax treatment continue to have excellent outcomes four years after stopping initial
The Bottom Line: Patients with chronic
lymphocytic
leukemia (CLL) or
small
lymphocytic
lymphoma
(SLL) who achieved undetectable measurable (or minimal) residual disease (uMRD) after fixed-duration ibrutinib + venetoclax treatment continue to have excellent outcomes four years after stopping initial
lankisterguy
Volunteer
in
CLL Support
1 year ago
Loxo305 trial
/
Small
Lymphocytic
Lymphoma
.
/
Small
Lymphocytic
Lymphoma
.
Alex830
in
CLL Support
2 years ago
An indicator in the blood could guide lupus treatment
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Brother’s passing away
it is with great devastation and heartbreak that my 65 yo brother passed on Monday 13/3/23. He was released from his 10th hospital admit in recent weeks and was approaching the chemist area when he collapsed. The staff made a valiant attempt to revive him. The ambulance medics kept doing CPR he
it is with great devastation and heartbreak that my 65 yo brother passed on Monday 13/3/23. He was released from his 10th hospital admit in recent weeks and was approaching the chemist area when he collapsed. The staff made a valiant attempt to revive him. The ambulance medics kept doing CPR he
honeybug
in
Fibromyalgia Action UK
1 year ago
8 week check up
Had an 8 week check up at Herbert Herman Cancer Center today. Doc says I'm doing excellent. He ordered a PET scan a month after my final Gazyva infusion 3/20. Is this normal procedure for those on O&V 12 month course? I though I wouldn't have any more scary test until the end of treatment. On bright
Had an 8 week check up at Herbert Herman Cancer Center today. Doc says I'm doing excellent. He ordered a PET scan a month after my final Gazyva infusion 3/20. Is this normal procedure for those on O&V 12 month course? I though I wouldn't have any more scary test until the end of treatment. On bright
Gradyboy
in
CLL Support
1 year ago
Insurance company refusing to pay out saying my Lymphoma is related to my CLL
I was diagnosed with CLL 14 years ago and had been on W&W for 12 years before I needed medical intervention. I was successfully treated with Alcalbrutinib and my CLL has been under control ever since.As I am self employed, I took out an income protection policy about 5 years ago, knowing that my CLL
I was diagnosed with CLL 14 years ago and had been on W&W for 12 years before I needed medical intervention. I was successfully treated with Alcalbrutinib and my CLL has been under control ever since.As I am self employed, I took out an income protection policy about 5 years ago, knowing that my CLL
duncangarnham
in
CLL Support
1 year ago
Blood Negative MRD
History: My husband learned he had CLL in March 2022 (he is muted TP53 and 17p depleted) - he was accepted in a Dana-Farber study for his particular CLL with treatments of A&O&V. (Acalabrutinib, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy
History: My husband learned he had CLL in March 2022 (he is muted TP53 and 17p depleted) - he was accepted in a Dana-Farber study for his particular CLL with treatments of A&O&V. (Acalabrutinib, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy
spi3
in
CLL Support
1 year ago
EHA 2022: Outcomes Following Treatment With a Covalent BTK and BCL2 Inhibitor
https://cllsociety.org/2022/08/eha-2022-outcomes-following-treatment-with-a-covalent-btk-and-bcl2-inhibitor-among-patients-with-chronic-
lymphocytic
-leukemia-cll-
small
-
lymphocytic
-
lymphoma
-sll-a-real-world-study-of-a-large-u-s-datab/ "Conclusion: Double exposed patients with CLL/SLL don’t do well, as
https://cllsociety.org/2022/08/eha-2022-outcomes-following-treatment-with-a-covalent-btk-and-bcl2-inhibitor-among-patients-with-chronic-
lymphocytic
-leukemia-cll-
small
-
lymphocytic
-
lymphoma
-sll-a-real-world-study-of-a-large-u-s-datab/ "Conclusion: Double exposed patients with CLL/SLL don’t do well, as
Lavinia-Blue
in
CLL Support
2 years ago
follow up !!!
just back home from mD Anderson Both bone marrow and PET scan showed no detected cancer Hopefully this will last a long time Thanks everyone 😎
just back home from mD Anderson Both bone marrow and PET scan showed no detected cancer Hopefully this will last a long time Thanks everyone 😎
Cactusroadster
in
CLL Support
2 years ago
LLS.ORG (USA) WHAT ARE YOUR TOP PRIORITIES FOR 2023?
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
lankisterguy
Volunteer
in
CLL Support
2 years ago
Cancer link to nuclear base
It seems that the US Space Force as found that "The disproportionate number of missileers presenting with cancer; specifically lymphoma" is concerning. "There are indications of a possible association between cancer and missile combat crew service at Malmstrom." 9 military officers, Missileers, who
It seems that the US Space Force as found that "The disproportionate number of missileers presenting with cancer; specifically lymphoma" is concerning. "There are indications of a possible association between cancer and missile combat crew service at Malmstrom." 9 military officers, Missileers, who
SERVrider
in
CLL Support
2 years ago
Acetaminophen and Immunotherapy
Has anyone else heard of this? Does is have any bearing on CLL patients on BTK inhibitors? https://www.facebook.com/25998443394/posts/pfbid0k2eaDZbPHsL5FWcJPiaDWK12U2Ur8J5ADucKQVnSAxttczAcaijW9RxArTaM8cTHl/?mibextid=r5uJeJ
Has anyone else heard of this? Does is have any bearing on CLL patients on BTK inhibitors? https://www.facebook.com/25998443394/posts/pfbid0k2eaDZbPHsL5FWcJPiaDWK12U2Ur8J5ADucKQVnSAxttczAcaijW9RxArTaM8cTHl/?mibextid=r5uJeJ
210savannah
in
CLL Support
2 years ago
Lymphoma & CLL Highlights Virtual Workshop Jan 19, 2023 03:00 PM in London
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
lankisterguy
Volunteer
in
CLL Support
2 years ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
lankisterguy
Volunteer
in
CLL Support
2 years ago
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