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Small lymphocytic lymphoma (SLL)
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FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
9 months ago
Gazyva and Ventalox
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
CityL
in
CLL Support
9 months ago
Understanding How Biomarkers Help Guide Treatment Decisions for Those with CLL/SLL CLL Society Education On-Demand: Replay
Understanding How Biomarkers Help Guide Treatment Decisions for Those with CLL/SLL CLL Society Education On-Demand: REPLAY below https://youtu.be/E1sc_YT4u_g - [i]Each person who is diagnosed with chronic
lymphocytic
leukemia or
small
lymphocytic
lymphoma
(CLL/SLL) has a unique set of genetic biomarkers
Understanding How Biomarkers Help Guide Treatment Decisions for Those with CLL/SLL CLL Society Education On-Demand: REPLAY below https://youtu.be/E1sc_YT4u_g - [i]Each person who is diagnosed with chronic
lymphocytic
leukemia or
small
lymphocytic
lymphoma
(CLL/SLL) has a unique set of genetic biomarkers
lankisterguy
Volunteer
in
CLL Support
1 year ago
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B CELL lymphoma
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Tchapman
in
CLL Support
10 months ago
RNA Test Outperforms the Fecal Immunochemical Test for Detection of Colorectal Cancer
In the United States, colorectal cancer (CRC) is the second most common cause of cancer deaths when numbers for men and women are combined. It's expected to cause about 52,550 deaths during 2023 https://www.cancer.org/cancer/types/colon-rectal-cancer/about/key-statistics.html As CLL patients, we carry
In the United States, colorectal cancer (CRC) is the second most common cause of cancer deaths when numbers for men and women are combined. It's expected to cause about 52,550 deaths during 2023 https://www.cancer.org/cancer/types/colon-rectal-cancer/about/key-statistics.html As CLL patients, we carry
bennevisplace
in
CLL Support
10 months ago
Richter’s Transformation
A reminder to everyone going through the treatment process. Currently, Richter's cancer is not considered an incurable cancer or one with a poor prognosis. It is currently considered an aggressive lymphoma. Mortality is the same as that of diffuse large B-cell lymphoma. The greater the tumor uptake,
A reminder to everyone going through the treatment process. Currently, Richter's cancer is not considered an incurable cancer or one with a poor prognosis. It is currently considered an aggressive lymphoma. Mortality is the same as that of diffuse large B-cell lymphoma. The greater the tumor uptake,
Priss69
in
CLL Support
11 months ago
Clinical trial with monoclonal antibodies?
I've been asked to participate in a clinical trial in which I get an infusion of monoclonal antibodies. The team is wanting to know if this would help those with blood cancers have higher resistance to Covid. Any thoughts? I will discuss with my doctor but wanted more feedback.
I've been asked to participate in a clinical trial in which I get an infusion of monoclonal antibodies. The team is wanting to know if this would help those with blood cancers have higher resistance to Covid. Any thoughts? I will discuss with my doctor but wanted more feedback.
Tangolover
in
CLL Support
11 months ago
high monocytes
am at end of cycle 3 of o+v Today monocytes 31% I did need neupogen shot - wbc 1.6 and anc .6 does anyone know if this monocyte number is cause for concern, has anyone had this kind of thing before? This no has never been above 20 for me since I started treatment. I have had zero side effects.
am at end of cycle 3 of o+v Today monocytes 31% I did need neupogen shot - wbc 1.6 and anc .6 does anyone know if this monocyte number is cause for concern, has anyone had this kind of thing before? This no has never been above 20 for me since I started treatment. I have had zero side effects.
SurfSurf
in
CLL Support
11 months ago
swollen armpit prevnar 20
hello group, I’m relatively newly diagnosed with SLL (June 2022). Mild disease so far; watch and wait. Favorable genetic markers so far (t12/18 mutated). 46 yr female in good shape. Normal blood work. I recently had the prevnar 20 vax per CLL specialist. On day 2 post vax the lymph node in my right
hello group, I’m relatively newly diagnosed with SLL (June 2022). Mild disease so far; watch and wait. Favorable genetic markers so far (t12/18 mutated). 46 yr female in good shape. Normal blood work. I recently had the prevnar 20 vax per CLL specialist. On day 2 post vax the lymph node in my right
Capecodlover34
in
CLL Support
1 year ago
Acalabrutinib treatment going well
I have been on one dose daily of Acalabrutinib for 4 weeks now and am doing quite well. The fatigue has improved quite a lot, although I won't be running any marathons, and I don't feel sick every day. So a good response in my opinion. Headaches and some muscle discomfort daily but Tylenol dampens
I have been on one dose daily of Acalabrutinib for 4 weeks now and am doing quite well. The fatigue has improved quite a lot, although I won't be running any marathons, and I don't feel sick every day. So a good response in my opinion. Headaches and some muscle discomfort daily but Tylenol dampens
sandybeaches
in
CLL Support
1 year ago
FDA Approves Zanubrutinib for Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphom
with chronic
lymphocytic
leukemia or
small
lymphocytic
lymphoma
.
with chronic
lymphocytic
leukemia or
small
lymphocytic
lymphoma
.
lankisterguy
Volunteer
in
CLL Support
2 years ago
Not anemia? Lab results question.
It's been a couple months since my last iron infusion. Last week, I had labs drawn, and results included: [H] WBC (18.1), RDW (16.4), Platelets (614), Creatinine (1.04); [L] MCH (24.1), MCHC (30.5), Iron (22); [LL] Iron Saturation (7). Hemoglobin was just within normal range at 11.2, and
It's been a couple months since my last iron infusion. Last week, I had labs drawn, and results included: [H] WBC (18.1), RDW (16.4), Platelets (614), Creatinine (1.04); [L] MCH (24.1), MCHC (30.5), Iron (22); [LL] Iron Saturation (7). Hemoglobin was just within normal range at 11.2, and
hollywollydoodle
in
CLL Support
1 year ago
up coming treatment with rituximab for pure red blood cell aplasia and CLL
Hi All I was diagnosed with CLL in 2019 and never had much issues with bloods only being slightly elevated and some under arm lymph nodes. The start of this year I was diagnosed with pure red blood cell aplasia, after taking Cyclosporine it bounced back a bit but after stopping the meds the red blood
Hi All I was diagnosed with CLL in 2019 and never had much issues with bloods only being slightly elevated and some under arm lymph nodes. The start of this year I was diagnosed with pure red blood cell aplasia, after taking Cyclosporine it bounced back a bit but after stopping the meds the red blood
Jimmy_9
in
CLL Support
1 year ago
Metoject
Hi folks 🤗🦋I have successfully transferred from oral to injectable Methotrexate after a few teething problems I think I actually got the hang of it last Sunday! 😹 I have three injections left and am wondering how we reorder it. I was contacted by email after the initial referral from dermy and I was
Hi folks 🤗🦋I have successfully transferred from oral to injectable Methotrexate after a few teething problems I think I actually got the hang of it last Sunday! 😹 I have three injections left and am wondering how we reorder it. I was contacted by email after the initial referral from dermy and I was
Krazykat26
in
LUPUS UK
1 year ago
Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll
with a low 2.9% incidence of atrial fibrillation and zero of the more serious abnormal ventricular heart irregularities - See report at https://cllsociety.org/2023/01/ash-2022-dr-christine-ryan-on-triple-combination-acalabrutinib-venetoclax-and-obinutuzumab-for-high-risk-patients-with-chronic-
lymphocytic
-leukemia-or-
small
-
lymphocytic
-
lymphoma
-cll-sll
with a low 2.9% incidence of atrial fibrillation and zero of the more serious abnormal ventricular heart irregularities - See report at https://cllsociety.org/2023/01/ash-2022-dr-christine-ryan-on-triple-combination-acalabrutinib-venetoclax-and-obinutuzumab-for-high-risk-patients-with-chronic-
lymphocytic
-leukemia-or-
small
-
lymphocytic
-
lymphoma
-cll-sll
spi3
in
CLL Support
2 years ago
Venetoclax for dummies
Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has heard of her. Eliza was a lady from Melbourne Australia who married an Englishman named Walter Hall in 1874. Walter Hall and his two brothers arrived almost penniless in Australia in 1852, coming from England to search for
Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has heard of her. Eliza was a lady from Melbourne Australia who married an Englishman named Walter Hall in 1874. Walter Hall and his two brothers arrived almost penniless in Australia in 1852, coming from England to search for
cajunjeff
in
CLL Support
1 year ago
Efficacy and safety of new‑generation BTKis (primarily acalabrutinib and zanubrutinib) in CLL/SLL: a systematic review and meta‑analysis
[/i] The full study title is
Efficacy and safety of new‑generation Bruton tyrosine kinase inhibitors in chronic
leukemia/
small
lymphocytic
lymphoma
: a systematic review and meta‑analysis The authors are from the Department of Neuro-Oncology, Cancer Center, Beijing Tiantan Hospital
[/i] The full study title is
Efficacy and safety of new‑generation Bruton tyrosine kinase inhibitors in chronic
leukemia/
small
lymphocytic
lymphoma
: a systematic review and meta‑analysis The authors are from the Department of Neuro-Oncology, Cancer Center, Beijing Tiantan Hospital
AussieNeil
Partner
in
CLL Support
10 months ago
Colon cancer secondary to CLL
I had posted that I was diagnosed with stage 3 colon cancer and I’ve since had the mass successfully removed. Out of 16 lymph nodes analyzed 1 had cancer. So it’s off to chemo therapy in two weeks. For three months. Is there anyone in the group who’s experiencing this ? And does anyone have experience
I had posted that I was diagnosed with stage 3 colon cancer and I’ve since had the mass successfully removed. Out of 16 lymph nodes analyzed 1 had cancer. So it’s off to chemo therapy in two weeks. For three months. Is there anyone in the group who’s experiencing this ? And does anyone have experience
angelikab
in
CLL Support
1 year ago
Need help understanding results
My bf is newly diagnosed and doesn’t have next doctor’s appt for a few days. He just got the results for the CLL FISH panel and I’m trying to get a preliminary sense of what the implications may be. Thanks for any help! “RESULT: POSITIVE FISH RESULT for TRISOMY 12 and DELETION of 13q14.3; NEGATIVE FISH
My bf is newly diagnosed and doesn’t have next doctor’s appt for a few days. He just got the results for the CLL FISH panel and I’m trying to get a preliminary sense of what the implications may be. Thanks for any help! “RESULT: POSITIVE FISH RESULT for TRISOMY 12 and DELETION of 13q14.3; NEGATIVE FISH
karmacrepe
in
CLL Support
1 year ago
CLL is a lymphoid stem cell cancer so why are my myleloid stem cell products falling so much?
I am on Acal for 10 months after 8 years on W&W, 13q unmutated. Doing well with minimal side effects. ALC coming down from >200,000 to less than 30,000 after 9 months in April. Going to Dana Farber next week. My question is: if CLL is a lymphocyte cancer and lymphocytes come from lymphoid stem cells
I am on Acal for 10 months after 8 years on W&W, 13q unmutated. Doing well with minimal side effects. ALC coming down from >200,000 to less than 30,000 after 9 months in April. Going to Dana Farber next week. My question is: if CLL is a lymphocyte cancer and lymphocytes come from lymphoid stem cells
CaptRon1976
in
CLL Support
1 year ago
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