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November Webinar
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
Shewulf
Administrator
in
LDN Research Trust
10 months ago
Repeat Lutetium/ Pluvicto treatment
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Eugmn
in
Advanced Prostate Cancer
7 months ago
second surgery any ?
Is there anyone who have surgery after recurraces when cancer speared to lymph and abdomen? My mom will have one as they dont know why she is vomiting:(
Is there anyone who have surgery after recurraces when cancer speared to lymph and abdomen? My mom will have one as they dont know why she is vomiting:(
Inguc_is
in
My Ovacome
7 months ago
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From a Carer’s Perspective
hello to all in the oesophageal cancer community. not necessarily a community that anyone would particularly choose to be in but also comforting to know others are in the same situation. my husband was diagnosed with stage 2 OG in September 2023. he has had four chemo sessions and is due to have surgery
hello to all in the oesophageal cancer community. not necessarily a community that anyone would particularly choose to be in but also comforting to know others are in the same situation. my husband was diagnosed with stage 2 OG in September 2023. he has had four chemo sessions and is due to have surgery
harveydylan
in
Oesophageal & Gastric Cancer
7 months ago
Goods news
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
Bibicata
in
The Roy Castle Lung Cancer Foundation
7 months ago
PSMA/PET SCAN methodology
I'm having PSMA next week and am confused a little about the equipment used. In all my reading about the test, a CT or MRI is used in conjunction with the PSMA Pet, When I looked at my upcoming test on the portal it says PET SKULLBASE TO MIDTHIGH NOPR SUBSEQUENT. That tells me it's a PET Scan and
I'm having PSMA next week and am confused a little about the equipment used. In all my reading about the test, a CT or MRI is used in conjunction with the PSMA Pet, When I looked at my upcoming test on the portal it says PET SKULLBASE TO MIDTHIGH NOPR SUBSEQUENT. That tells me it's a PET Scan and
hwrjr
in
Prostate Cancer Network
7 months ago
Pre Op assessment
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
EvilEdna77
in
Endometriosis UK
7 months ago
2nd recurrence
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hota
in
My Ovacome
7 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
7 months ago
A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
bennevisplace
in
CLL Support
7 months ago
Another Lu-177 solution gets fast tracked: Lu-177-DGUL, secures 'GIFT' designation
"On Monday, the Ministry of Food and Drug Safety (MFDS) designated Lu-177-DGUL as the 11th agent to benefit from its “Global Innovative Products on Fast Track” (GIFT) program, signifying a significant milestone in the quest to offer a beacon of hope for prostate cancer patients who currently have limited
"On Monday, the Ministry of Food and Drug Safety (MFDS) designated Lu-177-DGUL as the 11th agent to benefit from its “Global Innovative Products on Fast Track” (GIFT) program, signifying a significant milestone in the quest to offer a beacon of hope for prostate cancer patients who currently have limited
Maxone73
in
Advanced Prostate Cancer
7 months ago
Ibrance/Letrozole Fail
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
CTGirl1962
in
SHARE Metastatic Breast Cancer
7 months ago
liver concerns
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
Marieck
in
My Ovacome
7 months ago
low hemoglobin
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
alysona828
in
Advanced Prostate Cancer
7 months ago
Chemo question
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Buster98
in
My Ovacome
7 months ago
Hello
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Bella_mum
in
SHARE Metastatic Breast Cancer
7 months ago
Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
7 months ago
Spinal mets.
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
APK3
in
Advanced Prostate Cancer
7 months ago
Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
7 months ago
Chemotherapy
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
Petalka32
in
SHARE Metastatic Breast Cancer
7 months ago
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