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HoneyYorkie
Following on from my previous post when I was eventually (after 6months) diagnosed with Adenocarcinoma of my lower left lobe, I had surgery 3 weeks ago to remove the lobe - called a Lobectomy. I’d just like to say even though the lobe was ‘sticky’ and therefore the surgery took 4.5hours, which was longer
Following on from my previous post when I was eventually (after 6months) diagnosed with Adenocarcinoma of my lower left lobe, I had surgery 3 weeks ago to remove the lobe - called a Lobectomy. I’d just like to say even though the lobe was ‘sticky’ and therefore the surgery took 4.5hours, which was longer
HoneyYorkie
in
The Roy Castle Lung Cancer Foundation
2 months ago
Started Phase 1 trial - RO7656594 yesterday
Started clinical trial through Honor Health Research in Scottsdale yesterday. Day one was intense with multiple labs and EKG's after his first dose. Appointments today and tomorrow without the med but with follow up labs/EKG's. Friday's appointment will be the start of daily medication. Bone scans and
Started clinical trial through Honor Health Research in Scottsdale yesterday. Day one was intense with multiple labs and EKG's after his first dose. Appointments today and tomorrow without the med but with follow up labs/EKG's. Friday's appointment will be the start of daily medication. Bone scans and
Yadifan
in
Advanced Prostate Cancer
2 months ago
Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
2 months ago
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My Latest Bladder Cancer Update.
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
Ern007
in
Lung Conditions Community Forum
2 months ago
WellCare Plan D specialty pharmacy
My husband had Aetna Silverscript Part D and was using BioPlus specialty pharmacy for abiraterone. He switched to WellCare Part D and is having trouble getting his abiraterone prescription to the right department. When he’s called WellCare, he’s just been shuffled around and no one seems to be able
My husband had Aetna Silverscript Part D and was using BioPlus specialty pharmacy for abiraterone. He switched to WellCare Part D and is having trouble getting his abiraterone prescription to the right department. When he’s called WellCare, he’s just been shuffled around and no one seems to be able
Jewelrylady
in
Advanced Prostate Cancer
7 months ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
7 months ago
Interesting new targeted therapy trial
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
Best521
in
SHARE Metastatic Breast Cancer
2 months ago
Update On Eclipse Trial-another failure. Has LU-177 worked for anyone?
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
SViking
in
Advanced Prostate Cancer
7 months ago
Long term ADT bone loss mitigation tips?
My post RP BCR was diagnosed 8 months ago when they said, "you will be on ADT the rest of your life". I am on Lupron and abiraterone 4 months now. I am taking 1000mg of calcium per day and 2000IU of D3 per day. If I am lucky enough to last years, what else can I do to prevent the loss of bone? Thanks
My post RP BCR was diagnosed 8 months ago when they said, "you will be on ADT the rest of your life". I am on Lupron and abiraterone 4 months now. I am taking 1000mg of calcium per day and 2000IU of D3 per day. If I am lucky enough to last years, what else can I do to prevent the loss of bone? Thanks
jackwfrench
in
Prostate Cancer Network
7 months ago
Kaiser Fresno has stopped prescribing Xtandi, even for people midstream with it. they are switching over to xytega and prednisone.
just what it says. I went to renew my monthly , extremely effective , Xtandi a couple of days ago and today I’ve been told that my Xtandi prescription has been canceled, and I see on my prescriptions list, Zytiga and prednisone. Never a single word from anybody about this for anything. Basically I’m
just what it says. I went to renew my monthly , extremely effective , Xtandi a couple of days ago and today I’ve been told that my Xtandi prescription has been canceled, and I see on my prescriptions list, Zytiga and prednisone. Never a single word from anybody about this for anything. Basically I’m
Kaliber
in
Advanced Prostate Cancer
7 months ago
BAT and Pluvicto?
Did well on Zoladex and Apalutimide for 2 1/2 yrs. with Mets to bones. Cancer has now spread to liver and pelvic lymph nodes. Docetaxel has failed and I am now waiting to hear if insurance will cover Pluvicto. Any thoughts on starting BAT now in case Pluvicto doesn’t happen? Can you do both at the
Did well on Zoladex and Apalutimide for 2 1/2 yrs. with Mets to bones. Cancer has now spread to liver and pelvic lymph nodes. Docetaxel has failed and I am now waiting to hear if insurance will cover Pluvicto. Any thoughts on starting BAT now in case Pluvicto doesn’t happen? Can you do both at the
Vinny59
in
Advanced Prostate Cancer
7 months ago
Capivasertib, fulvestrant
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Hidden
in
SHARE Metastatic Breast Cancer
2 months ago
ADT SE’s
I had a 6 month Lupron shot in April last year. I experienced all the typical SE the worst being the hot flashes at night. I am following the Ssport protocol for a biological reoccurrence. Basically a 6 month adt with 39 radiation treatments last year. Current labs show undetectable PSA with a slow
I had a 6 month Lupron shot in April last year. I experienced all the typical SE the worst being the hot flashes at night. I am following the Ssport protocol for a biological reoccurrence. Basically a 6 month adt with 39 radiation treatments last year. Current labs show undetectable PSA with a slow
plato123
in
Advanced Prostate Cancer
7 months ago
Trodelvy after one year update
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
2 months ago
Hi, Im new here! Stage IV Ovarian Ca champion
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Nlehrer
in
SHARE Ovarian Cancer Support
2 months ago
Xpo1 significance
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
NewCll
in
CLL Support
2 months ago
Primary Peritoneal Cancer
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
Hockeymom52
in
My Ovacome
2 months ago
Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
2 months ago
Rising PSA … Clear PSMA SCAN
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
JolleySprings
in
Advanced Prostate Cancer
7 months ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
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