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Sjogren-Larsson syndrome
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Feeling excited about finding a cure for my RLS without meds!!
Good day to all!! I have amazing news. For the first time in forever, if not ever, I have had complete relief of my RLS symptoms when going to bed. Last night, was night number 12. Prior to bed, I did have a few flair ups a couple times, but I just got up and did something, it was day time.. Now my
Good day to all!! I have amazing news. For the first time in forever, if not ever, I have had complete relief of my RLS symptoms when going to bed. Last night, was night number 12. Prior to bed, I did have a few flair ups a couple times, but I just got up and did something, it was day time.. Now my
Birdman70
in
Restless Legs Syndrome
6 years ago
Bacterial overgrowth in gut/intestines question
Hello all (Quick background) Diagnosed Limited Cutaneous Systemic Sclerosis and Secondary Raynauds. Saw my rheumatologist today and spoke about my worsening GI symptoms, she suspects bacterial overgrowth in gut/intestines. Just wondering if anyone could shed any light on this? What treatments are available
Hello all (Quick background) Diagnosed Limited Cutaneous Systemic Sclerosis and Secondary Raynauds. Saw my rheumatologist today and spoke about my worsening GI symptoms, she suspects bacterial overgrowth in gut/intestines. Just wondering if anyone could shed any light on this? What treatments are available
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Augmenting
My mum has rls and has taken amitriptyline, then ropinirole, then gabapentin and then pramipexole. Each medicine she took for say 6 months and then she went through augmentation and Dr changed her meds. This time after 18 month on pramipexole she had augmentation, went to the docs and he gàve her gabapentin
My mum has rls and has taken amitriptyline, then ropinirole, then gabapentin and then pramipexole. Each medicine she took for say 6 months and then she went through augmentation and Dr changed her meds. This time after 18 month on pramipexole she had augmentation, went to the docs and he gàve her gabapentin
Bejwo50
in
Restless Legs Syndrome
6 years ago
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What's working for me, at least sort of
I say "at least sort of" because it's a case of nightly trial and error. But here's what I'm pinning my hopes on right now: 2 hours before I hope to go to sleep, I take a 100 mg capsule of medicinal grade CBD, along with 1 capsule of L-Theanine (I'm unsure of the mg.) and a 400 mg. tablet of magnesium
I say "at least sort of" because it's a case of nightly trial and error. But here's what I'm pinning my hopes on right now: 2 hours before I hope to go to sleep, I take a 100 mg capsule of medicinal grade CBD, along with 1 capsule of L-Theanine (I'm unsure of the mg.) and a 400 mg. tablet of magnesium
Restlesssinger
in
Restless Legs Syndrome
6 years ago
Sick again
I have a stinker of a cold again. The mepo and the pred are wonderful at suppressing the immune system. My youngest is at nusery - he has trisomy 21 and his immune system is not great. He picks bugs up and gives them to me. Before christmas I needed three courses of antibiotics to get rid of a chest
I have a stinker of a cold again. The mepo and the pred are wonderful at suppressing the immune system. My youngest is at nusery - he has trisomy 21 and his immune system is not great. He picks bugs up and gives them to me. Before christmas I needed three courses of antibiotics to get rid of a chest
Brenviking
in
Asthma Community Forum
6 years ago
Paresis and sudafed
This is a bit niche, but does anyone have gastroparesis and had a bad reaction to Sudafed? I am still suffering 3 days later...!
This is a bit niche, but does anyone have gastroparesis and had a bad reaction to Sudafed? I am still suffering 3 days later...!
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Positive aspects
https://www.presseportal.de/pm/128908/3942846 First of all I am sure to make mistakes in the English language. Sorry. The above link refers to a German Professor of Chemistry - Dr. Claudia Friesen. Maybe some of you have heard of her. I hadn't so far. A few days ago she was on Austrian TV about her
https://www.presseportal.de/pm/128908/3942846 First of all I am sure to make mistakes in the English language. Sorry. The above link refers to a German Professor of Chemistry - Dr. Claudia Friesen. Maybe some of you have heard of her. I hadn't so far. A few days ago she was on Austrian TV about her
hausbauer
in
Restless Legs Syndrome
6 years ago
Some humour re doctors from my family.
Not sure if anyone with appreciate my mothers humour as much as I do but I thought I would share it just incase anyone else might find it funny. She was a children nurse and when I started psychiatric nursing you used to phone me up with advice on how to manage doctors. Here is an example 'Darling I
Not sure if anyone with appreciate my mothers humour as much as I do but I thought I would share it just incase anyone else might find it funny. She was a children nurse and when I started psychiatric nursing you used to phone me up with advice on how to manage doctors. Here is an example 'Darling I
Hidden
in
Thyroid UK
6 years ago
Pramipexole side effects
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
StillStriving
in
Restless Legs Syndrome
6 years ago
Weaning off pramipexerol
Almost 2 weeks without pramipexerol. I'm taking lyrica 300 mg with 5 mg of oxycodone as a back- up. My question is can you have augmentation from lyrica? If so, how can I tell if it's the Lyrica that I'm augmenting from or if I'm still getting rid of the pramipexole in my system? I have frequent bad
Almost 2 weeks without pramipexerol. I'm taking lyrica 300 mg with 5 mg of oxycodone as a back- up. My question is can you have augmentation from lyrica? If so, how can I tell if it's the Lyrica that I'm augmenting from or if I'm still getting rid of the pramipexole in my system? I have frequent bad
Tennwalker1
in
Restless Legs Syndrome
6 years ago
Could it be that I've changed my antidepressent to morning?
I've just realised that I still feel a bit out of it this morning and it couldn't possibly be from taking that one dose of Amitriptyline 36 hours ago. Then I remembered I've also changed taking my Citalopram 10mg from nighttime to morning, as my nurse said the Citalopram can cause insomnia. But it can
I've just realised that I still feel a bit out of it this morning and it couldn't possibly be from taking that one dose of Amitriptyline 36 hours ago. Then I remembered I've also changed taking my Citalopram 10mg from nighttime to morning, as my nurse said the Citalopram can cause insomnia. But it can
Jules13
in
NRAS
6 years ago
Administrators what do you think?
I,ve had a result from an MRI naming Pelvic congestion syndrome. I,ve never seen it mentioned on this site although after a bit of research i realise theres quite a high percentage of mostly women that have found a conclusion to their mysterious pelvic pain. After 7 years of being sent from gynno to
I,ve had a result from an MRI naming Pelvic congestion syndrome. I,ve never seen it mentioned on this site although after a bit of research i realise theres quite a high percentage of mostly women that have found a conclusion to their mysterious pelvic pain. After 7 years of being sent from gynno to
costagran
in
Pelvic Pain Support Network
6 years ago
HCG doesn't double but increases
Hi ladies, My beta hcg was 118 on 12 days post 5det. Next doubling test it was 131 only. Next doubling test it was 216. I don't understand whether to lose hope or not. Did any one of you experience a similar situation. If so,please share your experience here. This is emotionally and physically extremely
Hi ladies, My beta hcg was 118 on 12 days post 5det. Next doubling test it was 131 only. Next doubling test it was 216. I don't understand whether to lose hope or not. Did any one of you experience a similar situation. If so,please share your experience here. This is emotionally and physically extremely
Draglife
in
Fertility Network UK
6 years ago
Clomid
Prior to miscarriages my periods were regular and tests showed I was ovulating. After my 2nd miscarriage my periods have been irregular for 7 months. I have been prescribed clomid. However, I have first IVF appointment in March. Should I give clomid a try or just wait for IVF?
Prior to miscarriages my periods were regular and tests showed I was ovulating. After my 2nd miscarriage my periods have been irregular for 7 months. I have been prescribed clomid. However, I have first IVF appointment in March. Should I give clomid a try or just wait for IVF?
LittleMermaid1
in
Fertility Network UK
6 years ago
Parkinson's unusual 'off' times. Wearing off begins, but medication kicks back in before taking next pill.
My Mom was diagnosed a few years ago with PD, but it has progressed a lot in the past year. She got into a stable routine with C-L(25-100), although she experiences 'off times' or as she calls it 'slow downs' two hours after each pill. The strange thing is that it goes away after 45 minutes-1 hour, without
My Mom was diagnosed a few years ago with PD, but it has progressed a lot in the past year. She got into a stable routine with C-L(25-100), although she experiences 'off times' or as she calls it 'slow downs' two hours after each pill. The strange thing is that it goes away after 45 minutes-1 hour, without
filmor14
in
Cure Parkinson's
6 years ago
What to do about my restless legs??
Someone help!!!! Cant cope with restless leg syndrome anymore, I need sleep. I am currently 34 weeks pregnant and have suffered with rls for a long time and was taking tramadol for rls as well as depression/anxiety and it was working great. When I notified my doctor that I was pregnant he stopped prescribing
Someone help!!!! Cant cope with restless leg syndrome anymore, I need sleep. I am currently 34 weeks pregnant and have suffered with rls for a long time and was taking tramadol for rls as well as depression/anxiety and it was working great. When I notified my doctor that I was pregnant he stopped prescribing
Lissikins
in
Restless Legs Syndrome
6 years ago
Anyone else in full time work and finding it hard to focus!?
I'm constantly searching for answers in my mind. Trying to figure out some logical, reasonable explanation about why at the age of 26 it's been taking us so long to conceive! I know there are others out there that have been waiting longer but I just cannot get my head around how difficult it is for
I'm constantly searching for answers in my mind. Trying to figure out some logical, reasonable explanation about why at the age of 26 it's been taking us so long to conceive! I know there are others out there that have been waiting longer but I just cannot get my head around how difficult it is for
Faith27
in
Fertility Network UK
6 years ago
Tramadol, Lyrica, etc
Appointment with GP last Thursday. Husband in terrible shape that day which was good for the doctor to actually SEE in person. Falling asleep at 4 PM in the room, couldn't focus well. Coming off the Ropinerole (augmentation) and 24/7 RLS for days. She prescribed Lyrica. He took it for three nights
Appointment with GP last Thursday. Husband in terrible shape that day which was good for the doctor to actually SEE in person. Falling asleep at 4 PM in the room, couldn't focus well. Coming off the Ropinerole (augmentation) and 24/7 RLS for days. She prescribed Lyrica. He took it for three nights
Climberguy
in
Restless Legs Syndrome
6 years ago
Should there be a separate community for Palindromic Rheumatism?
Just a thought, it does have very poor resources on the net, and maybe a separate community would help others with the condition. I know it can develop into RA but only in 30 to 50% of people who have it - so it is not inevitable. Oh I was diagnosed with Polymyalgia Rheumatism in June but it has become
Just a thought, it does have very poor resources on the net, and maybe a separate community would help others with the condition. I know it can develop into RA but only in 30 to 50% of people who have it - so it is not inevitable. Oh I was diagnosed with Polymyalgia Rheumatism in June but it has become
Theziggy
in
NRAS
6 years ago
My 34 fiance' has FND, or does he?
Hi there, I am writing this post in hope that I can get some advice/support. My 34 yr old fiance' was diagnosed with FND approximately 2 years ago (and 6 months into our relationship). It has been a rocky road full of doctor and hospital visits since then, and forever changing intermittent symptoms.
Hi there, I am writing this post in hope that I can get some advice/support. My 34 yr old fiance' was diagnosed with FND approximately 2 years ago (and 6 months into our relationship). It has been a rocky road full of doctor and hospital visits since then, and forever changing intermittent symptoms.
ash12041990
in
Functional Neurological Disorder - FND Hope
6 years ago
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