Search
Search
About
Log in
Join
Experiences with
Sjogren-Larsson syndrome
Posts
Communities
3,269 public posts
Filter results
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
2 months ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
2 months ago
Heartburn
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
Whippetmama
in
Restless Legs Syndrome
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Can you help regarding symptoms?
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
FreeWolf
in
PMRGCAuk
2 months ago
Update
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
Numptybrain
in
PMRGCAuk
3 months ago
Anesthesia and PD
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
Ob6842
in
Cure Parkinson's
3 months ago
Worrying blood test results ...
Hello, This is my first post - last week I noticed some quite dark patches under both arms. Was seen by GP in an hour ... gave me Clotrimazole Cream which has reduced the tone of my skin. GP said it was acanthosis nigricans... ,?? Sent me for bloods including LFT and various tests FBC. These came
Hello, This is my first post - last week I noticed some quite dark patches under both arms. Was seen by GP in an hour ... gave me Clotrimazole Cream which has reduced the tone of my skin. GP said it was acanthosis nigricans... ,?? Sent me for bloods including LFT and various tests FBC. These came
Apollo14lmp
in
British Liver Trust
3 months ago
GLP1-R agonist improves Parkinson disease symptoms
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
Gcf51
in
Cure Parkinson's
3 months ago
Urgent Synarel - help!
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
MollyHar
in
Fertility Network UK
4 months ago
Informing DVLA
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Ideogram
in
Headway
4 months ago
Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
4 months ago
Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
4 months ago
first scan anxiety! Please say something positive
i have my first scan today (13wks 1 day), i am very anxious.. i keep thinking ridiculous things like they are going to say there is no baby etc. and am horrified thinking about birth defects and chromosomal abnormalities.. any help/advice?
i have my first scan today (13wks 1 day), i am very anxious.. i keep thinking ridiculous things like they are going to say there is no baby etc. and am horrified thinking about birth defects and chromosomal abnormalities.. any help/advice?
QueenKoala
in
Pregnancy and Parenting Support
4 months ago
I did PGT-A testing, could my unborn baby have down's syndrome?
I am currently 18 weeks 5 days pregnant following a successful IVF cycle. I undertook PGT-A testing as I am 41 years old. I got a call today from my midwife advising that my blood test has come back with a higher chance result for down's syndrome. I thought that as PGT-A testing was done and showed
I am currently 18 weeks 5 days pregnant following a successful IVF cycle. I undertook PGT-A testing as I am 41 years old. I got a call today from my midwife advising that my blood test has come back with a higher chance result for down's syndrome. I thought that as PGT-A testing was done and showed
Systema23
in
Pregnancy and Parenting Support
5 months ago
Results
Hi there ..I was diagnosed with active thyroiditis 29.4F4 and on 10 mg Carbmizole. This is my latest test result ....clearly improved but should I worry about my TSH?
Hi there ..I was diagnosed with active thyroiditis 29.4F4 and on 10 mg Carbmizole. This is my latest test result ....clearly improved but should I worry about my TSH?
Apodemus
in
Thyroid UK
5 months ago
Me or the embryos?
Hi ladies, I’d be really grateful for anyone’s thoughts. We’ve just had multiple FET failures with top quality blastocysts. Over the past few years I’ve had 4 chemicals (always before 5 weeks), maybe 6 (single faint positive with the additional 2). I want to look in to embryo testing and immune testing
Hi ladies, I’d be really grateful for anyone’s thoughts. We’ve just had multiple FET failures with top quality blastocysts. Over the past few years I’ve had 4 chemicals (always before 5 weeks), maybe 6 (single faint positive with the additional 2). I want to look in to embryo testing and immune testing
Ytrewq123
in
Fertility Network UK
5 months ago
miltivits
what multivitamin/mineral/trace element would people recommend buying and taking? I have hypo and take 100 levo daily currently. Am about to order the mesichecks blood test recommended on here with finger prick although if blood draw is better will order that.
what multivitamin/mineral/trace element would people recommend buying and taking? I have hypo and take 100 levo daily currently. Am about to order the mesichecks blood test recommended on here with finger prick although if blood draw is better will order that.
BrocksfieldJo
in
Thyroid UK
5 months ago
Beta Hcg
hi all, I know there’s a few threads about this, but I’m really confused with all the information out there. At 5w2d my hcg came back at 7552 At 5w4d it was 11,309 this didn’t exactly double in 48 hours, but I read online that once above 6000 and between 5-6 weeks the rate of doubling slows down
hi all, I know there’s a few threads about this, but I’m really confused with all the information out there. At 5w2d my hcg came back at 7552 At 5w4d it was 11,309 this didn’t exactly double in 48 hours, but I read online that once above 6000 and between 5-6 weeks the rate of doubling slows down
Ivfgotthis18
in
Fertility Network UK
5 months ago
Anyone know where I can get the following Blood tests done?
Hello All, Trust you are all doing well. Just trying to find somewhere that offer the ANTI-SPERM ANTIBODY (FEMALE PARTNER) & ANTI-DNA Blood Tests? My Clinic dont offer these and struggling to find somewhere that does. Really wanting these tests done as heard they can impact re-occurring failed implantation
Hello All, Trust you are all doing well. Just trying to find somewhere that offer the ANTI-SPERM ANTIBODY (FEMALE PARTNER) & ANTI-DNA Blood Tests? My Clinic dont offer these and struggling to find somewhere that does. Really wanting these tests done as heard they can impact re-occurring failed implantation
Flowergirlhope
in
Fertility Network UK
6 months ago
When should I tell me manager I'm pregnant
I want to wait until 12 weeks before telling anybody I am pregnant, but I work with complex, vulnerable individuals, often lone-working, and am not sure whether I should tell my manager earlier than 12 weeks. We have had a lot of ups and downs with IVF and so I am feeling anxious about sharing the news
I want to wait until 12 weeks before telling anybody I am pregnant, but I work with complex, vulnerable individuals, often lone-working, and am not sure whether I should tell my manager earlier than 12 weeks. We have had a lot of ups and downs with IVF and so I am feeling anxious about sharing the news
GranolaLover2000
in
Fertility Network UK
6 months ago
1
2
3
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1431 results
Fertility Network UK
359 results
PMRGCAuk
133 results
View top 10 communities
Sort by
Most Relevant
Newest