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Japan and stem cells treatment
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Bluebell2022
in
Cure Parkinson's
2 months ago
Starting B12 injections, how often?
Hello everybody, I will be receiving my first B12 injection next week. My blood test results were as follows folate 3.4ug/L, ferritin 19.9ug/L and B12 218ug/L before any medication. I started on iron and folate tablets a week ago. What I'm wondering is how often should I be getting the B12 injection
Hello everybody, I will be receiving my first B12 injection next week. My blood test results were as follows folate 3.4ug/L, ferritin 19.9ug/L and B12 218ug/L before any medication. I started on iron and folate tablets a week ago. What I'm wondering is how often should I be getting the B12 injection
Sotired3
in
Pernicious Anaemia Society
11 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
9 months ago
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Migraines
Hello lovely community, I was in hospital yesterday with a flare-up; we now think it was an atypical migraine. But it looked a lot like past episodes I have had. For the past few years I have had recurrent unexplained heart episodes, where my heart rate goes up and stays elevated for hours at a time
Hello lovely community, I was in hospital yesterday with a flare-up; we now think it was an atypical migraine. But it looked a lot like past episodes I have had. For the past few years I have had recurrent unexplained heart episodes, where my heart rate goes up and stays elevated for hours at a time
MusicalFurbaby
in
LUPUS UK
8 months ago
I have RLS and recently updated iron labs revealed the following: Ferritin=59.2ng/mL & Transferrin Saturation = 53%.
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
DTache
in
Restless Legs Syndrome
5 months ago
dose increase?
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
BethBeezle
in
Thyroid UK
5 months ago
Hubby Update - B12D Lanzoprazole
Hi Guys Thank you all in advance. Update on hubby. To remind you of his background, two stents in 2018. He has heart disease due to genetics not lifestyle. He doesn’t drink excessively or smoke, has a bit more tum than in his youth but still does a physical job as a builder. He’s been on a low
Hi Guys Thank you all in advance. Update on hubby. To remind you of his background, two stents in 2018. He has heart disease due to genetics not lifestyle. He doesn’t drink excessively or smoke, has a bit more tum than in his youth but still does a physical job as a builder. He’s been on a low
Wwwdot
in
Pernicious Anaemia Society
11 months ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
2 months ago
Iron deficiency
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
50568789
in
Restless Legs Syndrome
5 months ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
3 months ago
Can low iron cause intolerance to thyroxine?
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
GreenTealSeal
in
Thyroid UK
5 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
8 months ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
3 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
3 months ago
blood test help
Hi all, I’m looking for any help and advise please. I had a bowel bleed in October 2022, with pelvi & tummy pain bloating, referred for ultrasound which sowed cyst on left ovary, couldn’t see right ovary (never seem to see this one for some reason) And cystic appearance of endometrium so referred to
Hi all, I’m looking for any help and advise please. I had a bowel bleed in October 2022, with pelvi & tummy pain bloating, referred for ultrasound which sowed cyst on left ovary, couldn’t see right ovary (never seem to see this one for some reason) And cystic appearance of endometrium so referred to
Nat107
in
Pernicious Anaemia Society
11 months ago
Testing for Intrinsic Factor - borderline results
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Discombobulated247
in
Pernicious Anaemia Society
8 months ago
Haemolysis
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Lottyplum
in
Thyroid UK
11 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
3 months ago
Iron panel values - average and RLS indicated.
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
fritz34
in
Restless Legs Syndrome
5 months ago
Blood test result - iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Lindsayf
in
Thyroid UK
5 months ago
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