Search
Search
About
Log in
Join
Experiences with
Septrin
Posts
Communities
610 public posts
Filter results
APS and chemical pregnancies
Hi, i recently found out I'm positive on cardiolipin and beta2 antibodies. I haven't got my second test done yet but I also have sjögrens syndrome and I've had two early miscarriages/chemical pregnancies only 4+5 and 4+6 weeks along. my doctor tells me the treatment is aspirin and heparin from positive
Hi, i recently found out I'm positive on cardiolipin and beta2 antibodies. I haven't got my second test done yet but I also have sjögrens syndrome and I've had two early miscarriages/chemical pregnancies only 4+5 and 4+6 weeks along. my doctor tells me the treatment is aspirin and heparin from positive
Pektosa
in
Hughes Syndrome APS Forum
9 years ago
Heparin Trial
Hi, Haven't posted for a while as life has been... interesting... but have a question that I am sure some of you lovely people out there can help me with. My daughter (aged 21) is about 6 days into a heparin trial. First days she didn't notice much, but we saw on here that many of you say you inject
Hi, Haven't posted for a while as life has been... interesting... but have a question that I am sure some of you lovely people out there can help me with. My daughter (aged 21) is about 6 days into a heparin trial. First days she didn't notice much, but we saw on here that many of you say you inject
floss112
in
Hughes Syndrome APS Forum
9 years ago
Professor Graham Hughes' Blog December 2014
December 2014 The past year has been busy for all of us in the London Lupus Centre. We are now seeing 400 cases a month – patients not only from all corners of the UK, but from a dozen different countries. Twenty years ago, in the international journal LUPUS (www.sagepublications.com), I introduced
December 2014 The past year has been busy for all of us in the London Lupus Centre. We are now seeing 400 cases a month – patients not only from all corners of the UK, but from a dozen different countries. Twenty years ago, in the international journal LUPUS (www.sagepublications.com), I introduced
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Off Warfarin and restarting
Came off warfarin due to having two colonoscopies two weeks apart. I'm on warfarin for afib permanent. I'm taking 75ml of heparin innohep daily to bridge. Going to have another colonoscopy again in two weeks and then restart warfarin again. Consultant said it's pointless going on and off warfarin and
Came off warfarin due to having two colonoscopies two weeks apart. I'm on warfarin for afib permanent. I'm taking 75ml of heparin innohep daily to bridge. Going to have another colonoscopy again in two weeks and then restart warfarin again. Consultant said it's pointless going on and off warfarin and
Splodge76
in
AF Association
9 years ago
Can low INR cause depression/mood swings/anxiety?
Hi, with the help of my clinic nurse we are nearly on track with getting the correct warfarin dose to get my INR within its target range (2.5-3.5), however my husband and I have noticed when it drops below the range I am depressed, anxious and moody. It's really causing problems. Before I started warfarin
Hi, with the help of my clinic nurse we are nearly on track with getting the correct warfarin dose to get my INR within its target range (2.5-3.5), however my husband and I have noticed when it drops below the range I am depressed, anxious and moody. It's really causing problems. Before I started warfarin
Tess43
in
Hughes Syndrome APS Forum
9 years ago
Anti phospholipid antibody with Hemorrhagic disorder
I have a rare blood disorder and I inject Arixtra(Fondaparinux) at this time. Heparin and Agatraban both had the opposite effect on me. Due to the expense, my doctor has recommended possibly switching to Rivaroxaban. I am a little nervous to change what I know is working. Camie
I have a rare blood disorder and I inject Arixtra(Fondaparinux) at this time. Heparin and Agatraban both had the opposite effect on me. Due to the expense, my doctor has recommended possibly switching to Rivaroxaban. I am a little nervous to change what I know is working. Camie
Coblondie13
in
Hughes Syndrome APS Forum
9 years ago
Is it APS?
I have Hughes syndrome but I'm posting about a friend. She developed blood clots on the lungs 7 years ago and nearly died. She had all the tests and was told she had sticky blood with no known cause. Therefore, is not medicated. She has been fine since. She had two babies with heparin due to her past
I have Hughes syndrome but I'm posting about a friend. She developed blood clots on the lungs 7 years ago and nearly died. She had all the tests and was told she had sticky blood with no known cause. Therefore, is not medicated. She has been fine since. She had two babies with heparin due to her past
Hopingforababy
in
Hughes Syndrome APS Forum
9 years ago
All kinds of advice....aspirin, management?
Hey there..... Was diagnoses in 2000..... Main symptom at the time was infertility. Had IVF and successfully gave birth with daily heparin. The following year developed random symptoms....and was put on hydrochloriquine. Within the year, I got cancer. Parter chemo, I felt quite soured on doctors...esp
Hey there..... Was diagnoses in 2000..... Main symptom at the time was infertility. Had IVF and successfully gave birth with daily heparin. The following year developed random symptoms....and was put on hydrochloriquine. Within the year, I got cancer. Parter chemo, I felt quite soured on doctors...esp
Hidden
in
Hughes Syndrome APS Forum
9 years ago
Due to mention of 'Thyroid' - Professor Graham Hughes November 2014 Blog
Professor Graham Hughes November 2014 Blog: November 2014 November is true to itself – rain and dark skies. Fireworks lasting for weeks – Lucy, our Schnauzer, frightened to go out alone. A number of our London Lupus Centre team travelled to Boston to present papers and posters at the annual American
Professor Graham Hughes November 2014 Blog: November 2014 November is true to itself – rain and dark skies. Fireworks lasting for weeks – Lucy, our Schnauzer, frightened to go out alone. A number of our London Lupus Centre team travelled to Boston to present papers and posters at the annual American
MaryF
in
Thyroid UK
9 years ago
Some of us with a long history of migraine have Hughes Syndrome/APS
Some of use with a long history of Migraine turn out to have Hughes Syndrome/APS, Antiphospholipid syndrome, Sticky blood etc etc. Many of us have had a very difficult route to diagnosis! Professor Graham Hughes based at the London Lupus Centre, London Bridge Hospital, writes a monthly blog, this one
Some of use with a long history of Migraine turn out to have Hughes Syndrome/APS, Antiphospholipid syndrome, Sticky blood etc etc. Many of us have had a very difficult route to diagnosis! Professor Graham Hughes based at the London Lupus Centre, London Bridge Hospital, writes a monthly blog, this one
MaryF
in
National Migraine Centre
9 years ago
Professor Graham Hughes November 2014 Blog
November 2014 November is true to itself – rain and dark skies. Fireworks lasting for weeks – Lucy, our Schnauzer, frightened to go out alone. A number of our London Lupus Centre team travelled to Boston to present papers and posters at the annual American College of Rheumatology meeting. For me,
November 2014 November is true to itself – rain and dark skies. Fireworks lasting for weeks – Lucy, our Schnauzer, frightened to go out alone. A number of our London Lupus Centre team travelled to Boston to present papers and posters at the annual American College of Rheumatology meeting. For me,
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
Update...
Hello all, Just a quick post to let you all know that so far I have had no complications with my pregnancy. I do get worried and I am very anxious but I have to stay positive. We had an early scan last week, which estimated I was around 8+1weeks. The scan revealed all is well and our baba is growing
Hello all, Just a quick post to let you all know that so far I have had no complications with my pregnancy. I do get worried and I am very anxious but I have to stay positive. We had an early scan last week, which estimated I was around 8+1weeks. The scan revealed all is well and our baba is growing
kirstyleigh
in
Hughes Syndrome APS Forum
9 years ago
Getting used to APS
Hi all, only just found this Forum, excellent stuff when you are feeling a little lost.... I suppose I am a recent conscript to the 'World of Hughes Syndrome' it being just over 2 years from copping a DVT and PE and I am still coming to terms with the consequential side of APS. Had a rough run or so
Hi all, only just found this Forum, excellent stuff when you are feeling a little lost.... I suppose I am a recent conscript to the 'World of Hughes Syndrome' it being just over 2 years from copping a DVT and PE and I am still coming to terms with the consequential side of APS. Had a rough run or so
CheddarAddict
in
Hughes Syndrome APS Forum
10 years ago
October's Blog (Part 2) - Rebecca's experiences of pregnancy with lupus
The last post on the topic of pregnancy and lupus has been written by Rebecca about her pregnancy. Thank you Rebecca for taking the time to write this for us.
I was diagnosed with SLE in January 1999, during the 2nd year of my Speech and Langue Therapy degree in Birmingham. I was fortunate to
The last post on the topic of pregnancy and lupus has been written by Rebecca about her pregnancy. Thank you Rebecca for taking the time to write this for us.
I was diagnosed with SLE in January 1999, during the 2nd year of my Speech and Langue Therapy degree in Birmingham. I was fortunate to
Paul_Howard
LUPUS UK
in
LUPUS UK
10 years ago
Spontaneous Referral!
Just had to share this as slightly excited - my Rhuematologist has spontaneously asked if I would like her to arrange for me to be seen by Dr David D'Cruz!! It may have something to do with the fact that I had just emailed her to say that I want to inject Heparin if my INR goes below 2.5 rather than
Just had to share this as slightly excited - my Rhuematologist has spontaneously asked if I would like her to arrange for me to be seen by Dr David D'Cruz!! It may have something to do with the fact that I had just emailed her to say that I want to inject Heparin if my INR goes below 2.5 rather than
Elaine77c
in
Hughes Syndrome APS Forum
10 years ago
Hello.. it's been a while.
I haven't been on this site in a couple of months, probably since around my miscarriage back in July. As most of you who have followed my posts, know the struggle my partner and myself have had this year. Losing our baby boy at 21 weeks in March and going on to have a miscarriage in July. These last
I haven't been on this site in a couple of months, probably since around my miscarriage back in July. As most of you who have followed my posts, know the struggle my partner and myself have had this year. Losing our baby boy at 21 weeks in March and going on to have a miscarriage in July. These last
kirstyleigh
in
Hughes Syndrome APS Forum
10 years ago
Sticky blood and depression/lethargy
I arrived at this community by a rather long route. Back in July 2014 I was diagnosed with a DVT. A big one - four inches long behind the knee. Many years ago I'd had a DVT and a PE, but came off Warfarin after a few years. Clearly, now, I need to stay on the Warfarin. My first DVT was different. I
I arrived at this community by a rather long route. Back in July 2014 I was diagnosed with a DVT. A big one - four inches long behind the knee. Many years ago I'd had a DVT and a PE, but came off Warfarin after a few years. Clearly, now, I need to stay on the Warfarin. My first DVT was different. I
MeerB
in
Hughes Syndrome APS Forum
10 years ago
APS after 3 miscarriages and a still birth AND a premature baby?!!
Hi all, I don't know how this works but I thought I will give it a go. I was recently diagnosed with APS after I had 3 miscarriages and still birth but they only decided to test me after I had still birth and 3 miscarriages which I had to fight my GP who thought it was all in my head and I was absolutely
Hi all, I don't know how this works but I thought I will give it a go. I was recently diagnosed with APS after I had 3 miscarriages and still birth but they only decided to test me after I had still birth and 3 miscarriages which I had to fight my GP who thought it was all in my head and I was absolutely
Nafisah
in
Hughes Syndrome APS Forum
10 years ago
Professor Graham Hughes August 2014 Blog
Professor Graham Hughes August 2014 Blog The medical journal LUPUS, which publishes many of the research papers and conference reports on Hughes syndrome, runs a regular series called ‘Lupus around the World’. More than anything else, this series has highlighted the variation in lupus prevalence from
Professor Graham Hughes August 2014 Blog The medical journal LUPUS, which publishes many of the research papers and conference reports on Hughes syndrome, runs a regular series called ‘Lupus around the World’. More than anything else, this series has highlighted the variation in lupus prevalence from
MaryF
Administrator
in
Hughes Syndrome APS Forum
10 years ago
Surgery update..
Good morning everyone, I am back home from surgery last week. They removed the mass's that were attached to my ovary. They took the mass's in one complete piece in case there was cancer inside of the ovary, they did exploratory internally after the removal and there was nothing negative to report. Praise
Good morning everyone, I am back home from surgery last week. They removed the mass's that were attached to my ovary. They took the mass's in one complete piece in case there was cancer inside of the ovary, they did exploratory internally after the removal and there was nothing negative to report. Praise
beccafullcircle
in
Hughes Syndrome APS Forum
10 years ago
1
...
20
21
22
...
31
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Hughes Syndrome APS Forum
293 results
Fertility Network UK
42 results
AF Association
40 results
View top 10 communities
Sort by
Most Relevant
Newest