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Claiming PIP again!
Hi I had bilateral chronic subdural haematoma and burr hole drainage in Feb 2022. I had a fall and broke my leg the previous summer which led to the brain bleeds. I applied for PIP last year after coming out of hospital and even though I went to tribunal I scored 0 points. I've just made the phone call
Hi I had bilateral chronic subdural haematoma and burr hole drainage in Feb 2022. I had a fall and broke my leg the previous summer which led to the brain bleeds. I applied for PIP last year after coming out of hospital and even though I went to tribunal I scored 0 points. I've just made the phone call
Alfie2022
in
Headway
1 year ago
Rheumatoid Meningitis
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
FieryBones - RA Community
1 year ago
Rheumatoid Meningitis Recovery
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
Meningitis Now
1 year ago
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Newie
Hi all, I was diagnosed with Epilepsy approximately 30 years ago, i had a spell of nasty seizures. However I was controlled for decades on Phenytoin without my levels checked or being given any care regarding Epilepsy since that time. This lead me to hiding other ill effects, including from the medication
Hi all, I was diagnosed with Epilepsy approximately 30 years ago, i had a spell of nasty seizures. However I was controlled for decades on Phenytoin without my levels checked or being given any care regarding Epilepsy since that time. This lead me to hiding other ill effects, including from the medication
Memyselfandi1
in
Epilepsy Action
1 year ago
I'm new
I'm new to this forum. I had viral encephalitis in December 22 and was admitted to hospital following a seizure. I have since been diagnosed with brain scarring and some atrophy. I take Keppra to prevent seizures. I had hoped to recover quicker but I'm finding it a very slow process. I can now read and
I'm new to this forum. I had viral encephalitis in December 22 and was admitted to hospital following a seizure. I have since been diagnosed with brain scarring and some atrophy. I take Keppra to prevent seizures. I had hoped to recover quicker but I'm finding it a very slow process. I can now read and
nicksig
in
Encephalitis Society
1 year ago
Focal seizures
I had these on and off yesterday, about 10 throughout the day including 1 last night which woke me up. I also have been getting palpitations and shortness of breath with these. Went to gp yesterday who has requested blood tests.Im at the stage now where im panicking that something could be seriously
I had these on and off yesterday, about 10 throughout the day including 1 last night which woke me up. I also have been getting palpitations and shortness of breath with these. Went to gp yesterday who has requested blood tests.Im at the stage now where im panicking that something could be seriously
Dawn43
in
Epilepsy Action
1 year ago
Strange episodes/auras
Ive been having these a lot just lately, like 3 or 4 some days, none on other days. GP has said they are known as a Focal Seizure. It starts with a warm feeling on the right side of my face and head, then a sick feeling and a pulsating in my right ear. Also BP seems to increase, my highest reading was
Ive been having these a lot just lately, like 3 or 4 some days, none on other days. GP has said they are known as a Focal Seizure. It starts with a warm feeling on the right side of my face and head, then a sick feeling and a pulsating in my right ear. Also BP seems to increase, my highest reading was
Dawn43
in
Epilepsy Action
1 year ago
Updated and now accurate results for my daughter - asking your help again please!
Hello everyone, Here are my daughter's results with new results of thyroid hormones taken at 9.15am fasting. The results I posted last week were taken in the afternoon so we re-did the test. Only these thyroid markers are different, I have kept the other vit and minerals etc. from the first test (too
Hello everyone, Here are my daughter's results with new results of thyroid hormones taken at 9.15am fasting. The results I posted last week were taken in the afternoon so we re-did the test. Only these thyroid markers are different, I have kept the other vit and minerals etc. from the first test (too
Sneedle
in
Thyroid UK
1 year ago
Weaning down keppra to 500mg x 2 a day, from 750mg
Hi,After a conversation about weaning back down to original dose twice a day in November, the epilepsy nurse said she was going to contact me after 1 month to see how i was doing. This should have been December. Its now nearly March and im still on 500mg morning and 750mg evening. After first having
Hi,After a conversation about weaning back down to original dose twice a day in November, the epilepsy nurse said she was going to contact me after 1 month to see how i was doing. This should have been December. Its now nearly March and im still on 500mg morning and 750mg evening. After first having
Dawn43
in
Epilepsy Action
1 year ago
anyone else had side effects on Keppra?
hi everyone my father 4 months ago was diagnosed with HSV encephalitis recovery hasn’t been easy on all of us but we are getting through it. I am getting married in 3 months and that has pushed him to walk and get better. But we recently hit a road bump in recovery he refused to take his keppra because
hi everyone my father 4 months ago was diagnosed with HSV encephalitis recovery hasn’t been easy on all of us but we are getting through it. I am getting married in 3 months and that has pushed him to walk and get better. But we recently hit a road bump in recovery he refused to take his keppra because
Catmom8727
in
Encephalitis Society
1 year ago
I’m still trying to get my life back but brain tumor surgery is a big deal to everyone and I don’t want to talk about it anymore.
Still losing hair 4 months after surgery, does anyone else have this problem? I am also taking Keppra and the only time I ever had a seizure was at the end of my 11 hour surgery
Still losing hair 4 months after surgery, does anyone else have this problem? I am also taking Keppra and the only time I ever had a seizure was at the end of my 11 hour surgery
1Dollydog
in
Meningioma Support
1 year ago
Reducing Keppra
Hi all, For a year I was on 500mg twice a day until April this year following a seizure, the dosage was increased to 750mg which hasnt suited at all. Im now 3 days into reducing keppra back down to 500mg twice a day (500mg am and 750mg pm for 1 month). Does reducing dosage cause dizziness as ive been
Hi all, For a year I was on 500mg twice a day until April this year following a seizure, the dosage was increased to 750mg which hasnt suited at all. Im now 3 days into reducing keppra back down to 500mg twice a day (500mg am and 750mg pm for 1 month). Does reducing dosage cause dizziness as ive been
Dawn43
in
Epilepsy Action
1 year ago
Dualtherapy Keppra and Lamict
Hi, Wondering if I can get some advice so my son was put on Keppra back in March unfortunately it did not work for him so they have introduced Lamictal. He is currently on 1500mg of Keppra twice a day and will be on 100mg of Lamictal twice a day maintenance dose. The Neurologist did not mention when
Hi, Wondering if I can get some advice so my son was put on Keppra back in March unfortunately it did not work for him so they have introduced Lamictal. He is currently on 1500mg of Keppra twice a day and will be on 100mg of Lamictal twice a day maintenance dose. The Neurologist did not mention when
Anonite
in
Epilepsy Action
1 year ago
Neuro appt today - been prescribed Lamotrigine
After researching this medication and the serious side effects - Stevens Johnson syndrome, Im not keen on taking it. Not sure what to do? Neuro said to increase it slowly and decrease Keppra gradually 250mg at a time. But im on 750mg keppra and havent been given 250mg's so how does she expect me
After researching this medication and the serious side effects - Stevens Johnson syndrome, Im not keen on taking it. Not sure what to do? Neuro said to increase it slowly and decrease Keppra gradually 250mg at a time. But im on 750mg keppra and havent been given 250mg's so how does she expect me
Dawn43
in
Epilepsy Action
2 years ago
Keppra 750mg
Before my last seizure in April, I had been taking 500mg twice a day since diagnosis in April 2021 after a second seizure. First being in Jan 2021. Since april, neurologist increased the dosage to 750mg twice a day which i dont seem to be tolerating. Ive had 4 episodes of serious angry outbursts towards
Before my last seizure in April, I had been taking 500mg twice a day since diagnosis in April 2021 after a second seizure. First being in Jan 2021. Since april, neurologist increased the dosage to 750mg twice a day which i dont seem to be tolerating. Ive had 4 episodes of serious angry outbursts towards
Dawn43
in
Epilepsy Action
2 years ago
Stopped smoking, stopped having seizures
Hi. I just wanted to share my experience here in the hope that it might help others. Four years ago I crashed my car whilst having, what I later found out to be, an absence seizure (I crashed into a lorry, luckily no one was hurt). I went to the doctor, surrendered my driving license and booked an
Hi. I just wanted to share my experience here in the hope that it might help others. Four years ago I crashed my car whilst having, what I later found out to be, an absence seizure (I crashed into a lorry, luckily no one was hurt). I went to the doctor, surrendered my driving license and booked an
FlemClandango
in
Epilepsy Action
2 years ago
Nasties partying again, how dare they!
Finally got result of sputum sample of 26 August. As suspected, pseudomonas still enjoying life in my lungs, fortunately I had started Septrin Forte when finished Azithromycin. I’m going away with daughter Saturday for five nights in Anglesey, cottage. I’ve been there years ago, riding pillion with
Finally got result of sputum sample of 26 August. As suspected, pseudomonas still enjoying life in my lungs, fortunately I had started Septrin Forte when finished Azithromycin. I’m going away with daughter Saturday for five nights in Anglesey, cottage. I’ve been there years ago, riding pillion with
Morrison10
in
Lung Conditions Community Forum
2 years ago
Mood swings and anti- seizure medications
Hi. I was wondering if anyone who is taking anti-seizure medications has experienced mood swings. My 27 year son old suffers from brain tumour related focal seizures.h e has been taking Kepra (Levetiracetam)a year now and has had a second medication (Lacosamide / Vimpat) added following a recent
Hi. I was wondering if anyone who is taking anti-seizure medications has experienced mood swings. My 27 year son old suffers from brain tumour related focal seizures.h e has been taking Kepra (Levetiracetam)a year now and has had a second medication (Lacosamide / Vimpat) added following a recent
Hidden
in
Epilepsy Action
2 years ago
Parent of newly diagnosed teenager
My 16 yr old son has received a diagnosis, having had two focal epilepsy seizures out of the blue (TC ones on awakening, which we've witnessed and called emergency services). He's now on Keppra and I guess we won't know how effective it is until months have passed without more episodes. He doesn't
My 16 yr old son has received a diagnosis, having had two focal epilepsy seizures out of the blue (TC ones on awakening, which we've witnessed and called emergency services). He's now on Keppra and I guess we won't know how effective it is until months have passed without more episodes. He doesn't
Fern70
in
Epilepsy Action
2 years ago
new diagnosis after seizures starting 4 weeks ago, 37 weeks pregnant. Any advice?
hi, so I started taking seizures out of the blue nearly four weeks ago now. Due to being pregnant I have been seen pretty quick by neurology who diagnosed epilepsy seizures and started me on keppra. I think they believe they are focal seizures with 2nd generalisation. They and maternity both do not think
hi, so I started taking seizures out of the blue nearly four weeks ago now. Due to being pregnant I have been seen pretty quick by neurology who diagnosed epilepsy seizures and started me on keppra. I think they believe they are focal seizures with 2nd generalisation. They and maternity both do not think
soniaackerman
in
Epilepsy Action
2 years ago
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