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6 Months on and we’re making some progress 🌞🌞
Having found a Late Side Effects clinic thanks to this site around November 2023 I am so pleased with where I’m at. I’ve had the ‘poo’ tests done. There is nothing showing there. No IBS or IBD. I’ve had my kidneys scanned. Some scarring but no damage and fully functional. I’ve had my bladder function
Having found a Late Side Effects clinic thanks to this site around November 2023 I am so pleased with where I’m at. I’ve had the ‘poo’ tests done. There is nothing showing there. No IBS or IBD. I’ve had my kidneys scanned. Some scarring but no damage and fully functional. I’ve had my bladder function
Hidden
in
Pelvic Radiation Disease Association
3 months ago
my results today
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
FoxyTed
in
Thyroid UK
9 months ago
Follow up to back strain with a chest muscle strain. It never ends.
Hi again folks. You may remember I posted about straining a back muscle and feeling unwell. This happened 16 days ago and last Sunday I was hitching myself up the bed (using arms, not back muscles)and heard something pop in the middle of my chest. Another searing pain and still feeling poorly, not eating
Hi again folks. You may remember I posted about straining a back muscle and feeling unwell. This happened 16 days ago and last Sunday I was hitching myself up the bed (using arms, not back muscles)and heard something pop in the middle of my chest. Another searing pain and still feeling poorly, not eating
strawclutching
in
PMRGCAuk
10 months ago
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TSH vitamin profile Oct for chronically ill health ME
I am feeling ill all the time got bladder pain meds don't work and I got gastro and imuno suprepession and CFS diagnosis 2012 and the thyroid hereditary Odrs Thryroiditis Hashimoto in other words started just before uni crescendo final year and loads of other things like glandular illness viruses bacterial
I am feeling ill all the time got bladder pain meds don't work and I got gastro and imuno suprepession and CFS diagnosis 2012 and the thyroid hereditary Odrs Thryroiditis Hashimoto in other words started just before uni crescendo final year and loads of other things like glandular illness viruses bacterial
Vasiliki99
in
Thyroid UK
10 months ago
Another iron IV/hydro post - been in hospital last night
Hey all,I had iron infusion on Monday. During it, I had anaphylactic shock (tight chest, couldn't breathe) and was injected with 100 mg hydrocortisone (thanks to this, they were able to finish the IV). I woke up on Tuesday morning feeling incredibly warm and with a lot of energy. My vision got sharper
Hey all,I had iron infusion on Monday. During it, I had anaphylactic shock (tight chest, couldn't breathe) and was injected with 100 mg hydrocortisone (thanks to this, they were able to finish the IV). I woke up on Tuesday morning feeling incredibly warm and with a lot of energy. My vision got sharper
Incoguto
in
Thyroid UK
10 months ago
MCAS, but possible Masto?
Hello, I'm almost 39 and have a diagnosis of MCAS through Dr Claire Taylor in Perth. I've been treated for MCAS for just over a year, but have been symptomatic in one way or another all of my life. I take fexofenadine, montelukast, famotidine and quercetin at present for stabilisation. I have what
Hello, I'm almost 39 and have a diagnosis of MCAS through Dr Claire Taylor in Perth. I've been treated for MCAS for just over a year, but have been symptomatic in one way or another all of my life. I take fexofenadine, montelukast, famotidine and quercetin at present for stabilisation. I have what
Loulou8484
in
The UK Mastocytosis Support Group
10 months ago
Bowel and bladder problems after Radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Maz131
in
Pelvic Radiation Disease Association
3 months ago
Cavernous Tumor & Rising PSA
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
My husband had triple therapy with docetaxel (finished chemo in January), darolutimide, and Firmagon/Lupron. Recently he developed what seemed like a sinus infection but was really a tumor in his sinus cavity and behind his eye socket wrapped around his carotid arteries on the plate of his skull (
Izzygirl1
in
Advanced Prostate Cancer
10 months ago
Another miracle cure :)
Any opinions on sodium chloro acetate. I am anxious to try an herbicide on my cancer :) but seriously if you google a bit there is some sense to the explanations as to how it might help to reduce cancer. Anyone try this
Any opinions on sodium chloro acetate. I am anxious to try an herbicide on my cancer :) but seriously if you google a bit there is some sense to the explanations as to how it might help to reduce cancer. Anyone try this
spencoid2
in
Advanced Prostate Cancer
10 months ago
A new approach for treatment of subthreshold bipolar disorders: Targeted high dose levothyroxine+repetitive TMS for mitochondrial treatment
A very interesting paper. Difficult to grab any individual bits for discussion or introduction. The whole paper isn't very long. Even if bipolar disorders are not themselves of much direct interest, it might be worth a quick read because it discusses the control group as well and their ability to tolerate
A very interesting paper. Difficult to grab any individual bits for discussion or introduction. The whole paper isn't very long. Even if bipolar disorders are not themselves of much direct interest, it might be worth a quick read because it discusses the control group as well and their ability to tolerate
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Undiagnosed for years
hello , I’ve read many of your stories and whilst it is never good to hear of people suffering I’m heartened to read of symptoms that others experience very similar to me I have genital ulcers, gastro problems, very very occasional mouth ulcer, eye problems, hear and balance problems and continual
hello , I’ve read many of your stories and whilst it is never good to hear of people suffering I’m heartened to read of symptoms that others experience very similar to me I have genital ulcers, gastro problems, very very occasional mouth ulcer, eye problems, hear and balance problems and continual
Swimbler
in
Behçet's UK
4 months ago
Diverticulosis etc
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
Calceolaria
in
Thyroid UK
4 months ago
How many kidney disease patients are limiting their diets to plant based (vegetarian)? I did, and my GFR is almost normal.
Kidneys are still damaged but swtching to vegetarian reduces load through diet. Rduce sodium, calories, Potassium, Phosphourus to limits enforced through diet will help damged kidneys to be able to function well enough to maintain normal GFR etc.
Kidneys are still damaged but swtching to vegetarian reduces load through diet. Rduce sodium, calories, Potassium, Phosphourus to limits enforced through diet will help damged kidneys to be able to function well enough to maintain normal GFR etc.
geewhiz
in
Kidney Disease
10 months ago
Valproate: new safety and educational materials to support regulatory measures in men and women under 55 years of age
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Desperately need help pls
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
Lisamarsh
in
Headway
7 months ago
Struggling
My partner had a fall 8 weeks ago whilst on holiday in Bulgaria. He had a fractured occipital bone and 3 small bleeds on the brain. He spent 12 days in hospital and a further week in the hotel before he was fit to fly. Within three days of being home he was walking quite well, only occasionally using
My partner had a fall 8 weeks ago whilst on holiday in Bulgaria. He had a fractured occipital bone and 3 small bleeds on the brain. He spent 12 days in hospital and a further week in the hotel before he was fit to fly. Within three days of being home he was walking quite well, only occasionally using
Support4Norm
in
Headway
10 months ago
Cold and IBS
I just developed a really bad cough I know I got it from my grandson and his brother got it and then his mum, now I have it, it's a dry cough and my throat is like sandpaper but everytime I cough I have to rush to the bathroom it only happens in the evening after dinner, just pooping little bits, I suffer
I just developed a really bad cough I know I got it from my grandson and his brother got it and then his mum, now I have it, it's a dry cough and my throat is like sandpaper but everytime I cough I have to rush to the bathroom it only happens in the evening after dinner, just pooping little bits, I suffer
Linedanceing
in
IBS Network
4 months ago
Itchy Rash Help Please!
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Urbanski
in
Thyroid UK
9 months ago
Prague/Berlin and a bigggg medal
I've been taking part in the Superhalf series of half marathons since last year. When the date for Prague was announced, I signed up. Then a few days later, the Berlin date came up...and it was taking place 24 hours later. Oh, eeek. So after ummibg and ahhing, I decided to do them. Yeah, back to back
I've been taking part in the Superhalf series of half marathons since last year. When the date for Prague was announced, I signed up. Then a few days later, the Berlin date came up...and it was taking place 24 hours later. Oh, eeek. So after ummibg and ahhing, I decided to do them. Yeah, back to back
Teresa1632
Half Marathon
in
Fun Beyond 10K & Race Support
4 months ago
EU introduces valproate measures
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
7 months ago
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