I am feeling ill all the time got bladder pain meds don't work and I got gastro and imuno suprepession and CFS diagnosis 2012 and the thyroid hereditary Odrs Thryroiditis Hashimoto in other words started just before uni crescendo final year and loads of other things like glandular illness viruses bacterial SIBO and dysbiome function
Cruel
Here's the latest
TSH too high
T4 too low
WBC, platelets RBC and some MCH out but been out on the last hundred blood tests I swear over 10 years blood needs
Ferritin low Folate low need Pernicious anemia test
Low sodium low blood sugar and bad dental rot sinuses gyms teeth ulcers pain got to say not easy
....
Vitamin D ok
That's just without exact results TSH is 4.0 I think
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Vasiliki99
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Tsh too high and ft4 too low suggest that you need an increase in your levothyroxine dose or that you need to start levothyroxine.Do you take it? What dose? Have you any actual results for vitamin level?
It would be beneficial for us, in order to give lived experience advice, that we could see you blood test results (anonymised) with the ranges and date taken. Also how much medication you take and what it is.
Also your weight is also a useful marker.
I can share at least this in the meantime …
I have suffered frequent ulcers in my mouth had many fillings when I was severely under medicated I had loose teeth. I had YEARS of repeated urine infections that were treated with antibiotics which left me open to thrush which then left me even more exposed to further urine infections - a vicious circle.
I have balanced my thyroid medication and vitamins to optimal.
I take D-mannose capsules (health food shop) for any suspected early signs of urine problems, but I have only taken as a precaution. Since I stopped taking antibiotics and even more so after getting my thyroid hormones optimal I have not had a single urine infection.
I rarely have mouth problems only when I eat food that was too hot anyway and my teeth feel solid in my gums , though I carry past damage that cannot be undone.
Come back with the information we need and hopefully we can better help. That said from the symptoms and TSH as Lalatoot has said it seems you are under medicated. You will need information to advocate for yourself with the doctor. Information we can tailor to your needs.
This is a additional edit I just remembered I used to suffer terribly with my sinuses as well. It used to feel like my face was being ripped off my skull. This also has been seemingly cured by becoming well through optimisation of vitamins and thyroid hormone replacement.
thanks very much I appreciate it - this winter I slow like im slowing down so tired n cold i feel so ill in winter and my hormones seem hopeless thats said i do appreciate the thoughts and will see what can find....
I am 8.3 lost weight but ok, 5ft5, started T4 2012 and on n off put it to about 100 but been last couple years ave of 70 mcg per day but i never feel good on it .....at the moment i break as doc wont give me much but i may up it again i have to say that d mannose was ok but not sure miracles - cortisol was low , got to say this disease is cruel /////// i take bone vits as my bones ache , throat sore temp imbalances
will put the levels on too .....need to accept it though ! if there was a way it wud involve a lot more human based research and thats no doubt it seems we have nothong .....
Easy lover, it is inappropriate to suggest a member takes T3 without sight of full thyroid blood tests. Please remember that the vast majority of members do improve their thyroid health when they have a) an optimal dose of Levothyroxine b) optimal key thyroid vitamins.
Please be careful with T4 therapy only. Every person needs T3 as well. Some doctors will tell you that you don't. That is the current controversy in the thyroid medical world. Don't be fooled. Paul Robinson, Dr. Bianco, Stop The Thyroid Madness, and Canada Thyroid Patients all say the same. Paul seems to know the best. Good luck. You deserve to feel good!
its so weird when i had 20 mg or was mcg of T3 i did feel ill like my bladder was painful but i feel so slow since the gp and endo took away me T3 . Ialso remember my TSH dropped from 4.0 to about 0.1 and they went mad n took it away also my T3 was itself in the top of thr upper range and that didnt go down well - so i just cant find it but then it dont work that well but it did work a bit. and i could not understand why they were so scared of the TSH dropping but not bothered that at 4.6 i think it was thst they r letting it push , i think your comments r so helpful and i really appreciate it really.
There is no easy route to health other than knowing your own condition better than they do. They obsess over TSH but leave people under medicated and I’ll in the pursuit if their TSH ideal.
If you know this (below) you will be well armed.
MOST endocrinologists specialise in diabetes NOT hypothyroidism and from the lived experience that I have read on here they know about as much as MOST GPs (not a lot). Check out your endo - they normally have a profile on the hospital website or somewhere on the web. Good old Google!
Read others lived experience on here - the most rich source of information there is.
It really is worth reading the NICE guidelines for hypothyroidism and Statins. I have a post - you can access it through my profile (click on my face and it will take you to my bio and posts.
There is also a post by tattybogle on TSH - Brilliant!
Take your time and start reading because in an appointment it’s you and them.
I’ve written several posts about advocating they are in my profile.
Hey I was glad you answered back. I just ordered Paul Robinson's book recovering on T3. I believe that we have to do it the way he says or we overdo it or we under do it. I'm still trying to figure it out. I have to get a thermometer. Blood pressure monitor. And heart rate. I really suggest that you go on to Paul Robinson's website just type in Paul Robinson thyroid and it'll come up and if you go to the very bottom of his blogs it'll say show a full View for a full list. I read a little bit from his list and I learn a lot. God bless you!
Thanks 👍 that's good that we know we are in this boat going along ........I hope T3 helps there are some others that people mention as well as Paul Robinson I see he has published some good books best wishes
I wish I could get proper treatment here Vas. In the US most people need money to get T3/T4 treatment but you never know what the Lord's going to do. I am willing to try listening to my symptoms. I wish I could look into my cells. It's HARD to get it all right. I don't think even the doctors can do that. God bless you. Don't give up. I have Armour Thyroid but trying to multi dose has just really caused me to gain weight in my middle. I don't know what to do. I could go back to taking all my medicines in one dose in the morning. I just thought maybe I could get something I didn't have? PEACE BE WITH YOU
It's very difficult with health,I agree with you it's too difficult even impossible and even struggle daily repetition without resolve is awful. It's awful we don't know about it and we have no treatment that really works. Why instead if testing in animal dint they look at human data and human health I patterns and it's a struggle with a faulty body. I hope your instincts helped you and T3 could help you and this is good , it cud be adrenal fatigue you might need cortisol or good food a little often.
I'm so sorry we have this disease I really am it's awful
Hi Vas, I appreciate your kind words. I feel like crying. I'm sick of trying to figure everything out. Thank you for suggestions and empathy. I'm blessed to have Armour NDT and Thyroid-S as back up. I'd of maybe have been better off not to experiment with multi-dosing. But I figured it was worth a try and I'm not will8ng to totally give up, through maybe I should. It's like nothing works anymore and maybe I'm just getting old. I don’t .know. it's winter so that doesn't help because I'm not walking like I was.
My health won't permit to walk much I'm just virus after virus just reigniting. It's difficult never Thryroiditis and thyroid have many functions and it's not easy to re incarnate what our body doesn't make. I don't think you should take too much but then only you know by putting dose up and down. I think takes 6 weeks to change from when we alter something. It's not to give up just keep going regulating magnesium iron b12 and d r popular kell selenium b vitamins but it's difficult if it don't metabolise properly. You have the armour n thyroid s that's something but eat well. I wish you all the best .......
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