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May- Vasculitis Awareness Month
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
zoe69
Vasculitis UK
in
Vasculitis UK
1 month ago
Advice, please!
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Rog65
in
Atrial Fibrillation Support
1 month ago
calming a fibs
So, I am having a fibs right now 9:30 at night in the USA. Heart rate went up to 137, then down to 80s 90's jumping all around. Could feel it racing and I was short of breath. My question is this: WHAT CAN I DO TO CALM ALL THIS DOWN? HOW DO I STOP THE ANXIETY WHILE IT IS HAPPENING? I just drank
So, I am having a fibs right now 9:30 at night in the USA. Heart rate went up to 137, then down to 80s 90's jumping all around. Could feel it racing and I was short of breath. My question is this: WHAT CAN I DO TO CALM ALL THIS DOWN? HOW DO I STOP THE ANXIETY WHILE IT IS HAPPENING? I just drank
peachtreepiggy
in
Atrial Fibrillation Support
1 month ago
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Heartburn from Digoxin
On Digoxin 2 plus weeks. Blood level fine. Am having constant heartburn/nausea. My Dr said not a usual side effect. Tough it out? or go back on Lopressor which had its own side effects. Many say it will get better. Permanent persistent afib.
On Digoxin 2 plus weeks. Blood level fine. Am having constant heartburn/nausea. My Dr said not a usual side effect. Tough it out? or go back on Lopressor which had its own side effects. Many say it will get better. Permanent persistent afib.
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Has anyone tried Inclisiran in place of Statins
My doctor is keen to reduce my cholesterol as it is 7.3 and I can't/wont take statins. I also have problems with palpitations so can't even raise my levo. I am a bit worried I am developing a heart condition too. I am just waiting for a blood test and xray before I go back to the doc who has suggested
My doctor is keen to reduce my cholesterol as it is 7.3 and I can't/wont take statins. I also have problems with palpitations so can't even raise my levo. I am a bit worried I am developing a heart condition too. I am just waiting for a blood test and xray before I go back to the doc who has suggested
Dizzy938
in
Thyroid UK
1 month ago
Anniversary of varices bleed
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
foofighter1
in
British Liver Trust
6 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
3 months ago
Malar rash caused by heat?
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Nome11
in
LUPUS UK
3 months ago
Paroxysmal atrial fribulation
Just another question all whilst I was on verapamil and digoxin my heart rate just raced away for no reason not afib but just a rapid rate of bpm whilst moving or trying to work doesn't happen with bisoprolol so much
Just another question all whilst I was on verapamil and digoxin my heart rate just raced away for no reason not afib but just a rapid rate of bpm whilst moving or trying to work doesn't happen with bisoprolol so much
Aprilla12345
in
Atrial Fibrillation Support
1 month ago
ectopics or extra beats.
I have twice in the past converted to persistent AF which has been sorted both times by cardioversion. However yesterday for the entire day my heart felt like it was having a disco. Ectopics, extra beats, early or skipped beats…..whatever! Should I be worried? I do have a bit of a chesty cough at the
I have twice in the past converted to persistent AF which has been sorted both times by cardioversion. However yesterday for the entire day my heart felt like it was having a disco. Ectopics, extra beats, early or skipped beats…..whatever! Should I be worried? I do have a bit of a chesty cough at the
Fondant
in
Atrial Fibrillation Support
1 month ago
Post ablation concerns part 2
Hi everyone - last weekend I posted that 10 days after my PFA I went back into AF. Sadly I am still there & now pretty terrified it has completely failed. The hospital did an ECG on Monday then called on Wednesday to say for me to restart the Amiodorone which was stopped after the ablation & they would
Hi everyone - last weekend I posted that 10 days after my PFA I went back into AF. Sadly I am still there & now pretty terrified it has completely failed. The hospital did an ECG on Monday then called on Wednesday to say for me to restart the Amiodorone which was stopped after the ablation & they would
Heartening
in
Atrial Fibrillation Support
1 month ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Wewo01
in
MPN Voice
6 months ago
Root cause of autoimmune B12 def
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
mchimes
in
Pernicious Anaemia Society
6 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
6 months ago
End of Resus Trial
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
Hi all, The 6mth Resus Trial I was on finished in November and I was awaiting my results.. Bit gutted really. . After having 2 biopsies and 2 MRI scans the results have stayed the same. NAFLD. Fibrosis stage 3/4 verging on Cirrhosis... The trial drugs I was on ( whether placebo or the actual drug) were
LolaBow
in
British Liver Trust
6 months ago
Persistent Afib
Thank you to everyone for your replies. This is the best site for info and also advice that I have found. Persistent AFib but HR controlled and stays under 100 most of the time. Now on Eliquis and switched to Digoxin .25mgm a month ago with Lopressor 25mgm/25mgm and trying to wean off Lopressor
Thank you to everyone for your replies. This is the best site for info and also advice that I have found. Persistent AFib but HR controlled and stays under 100 most of the time. Now on Eliquis and switched to Digoxin .25mgm a month ago with Lopressor 25mgm/25mgm and trying to wean off Lopressor
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
AVnode ablation
All,Has anyone out there had an av node ablation? I have been in persistent afib since feb of this year, and meds are not working. My quality of life has been miserable. I have a pacemaker with wires in my ventricles and my heart rate is very well controlled. It's the afib which is so bothersome.
All,Has anyone out there had an av node ablation? I have been in persistent afib since feb of this year, and meds are not working. My quality of life has been miserable. I have a pacemaker with wires in my ventricles and my heart rate is very well controlled. It's the afib which is so bothersome.
N400033
in
Atrial Fibrillation Support
1 month ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
3 months ago
`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
6 months ago
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