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Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
3 months ago
Deuterium Depleted Water
OK guys, I've been looking at this for a while and thought I'd condense it down and share it with you guys.I'm really not interested in arguments with people. If you don't agree, get yourself a cup of coffee, chill out and move on. Water his made of hydrogen and oxygen. Deuterium is a hydrogen isotope
OK guys, I've been looking at this for a while and thought I'd condense it down and share it with you guys.I'm really not interested in arguments with people. If you don't agree, get yourself a cup of coffee, chill out and move on. Water his made of hydrogen and oxygen. Deuterium is a hydrogen isotope
MrG68
in
Advanced Prostate Cancer
6 months ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
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Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
PNT article on recent success in generating locus coeruleus (LC) norepinephrine (NE) neurons, to study their role in diseases such as PD.
"Nerve cells originating in the locus coeruleus extend throughout the brain and spinal cord via an extensive branching system, where they release norepinephrine to regulate heartbeat, blood pressure, arousal, memory, and attention." "In Parkinson’s, the locus coeruleus is one of the first brain regions
"Nerve cells originating in the locus coeruleus extend throughout the brain and spinal cord via an extensive branching system, where they release norepinephrine to regulate heartbeat, blood pressure, arousal, memory, and attention." "In Parkinson’s, the locus coeruleus is one of the first brain regions
jeffreyn
in
Cure Parkinson's
6 months ago
Update-Covid antiviral
This evening I finally got the call from a consultant from , Stoke Mandeville hospital.Booked in for liver and kidney blood test and infusion .... what a relief . Just want to feel better. Thank you all for your advice and care. 😊
This evening I finally got the call from a consultant from , Stoke Mandeville hospital.Booked in for liver and kidney blood test and infusion .... what a relief . Just want to feel better. Thank you all for your advice and care. 😊
Stavrou1
in
CLL Support
6 months ago
Getting tested after taking any supplements...
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
Declining psa #8
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Nfler
in
Advanced Prostate Cancer
6 months ago
knocked sideways
Ive been reading all your posts but not actually written anything for a while because in my stupid head I thought we were plodding along even if it was at a plateau level. Kev was diagnosed with non alcoholic liver cirrhosis back in July. He also had sepsis twice and ended up in intensive care where
Ive been reading all your posts but not actually written anything for a while because in my stupid head I thought we were plodding along even if it was at a plateau level. Kev was diagnosed with non alcoholic liver cirrhosis back in July. He also had sepsis twice and ended up in intensive care where
Snips71
in
Liver4Life
6 months ago
combining standard PCA care with alternative care
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
agnut
in
Fight Prostate Cancer
6 months ago
PSA on the rise
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
JD-guy
in
Advanced Prostate Cancer
6 months ago
National Bill to End Parkinson's
Hello, I'll keep it short and sweet. 55 yr male. Diagnosed at 42 yr. Fitness fanatic, which has kept this damn disease at bay......for the most part. Just wondering what everyone thinks of this new Bill to End Parkinson's Act. Should we be excited, worried, indifferent? Is it gonna just be all talk and
Hello, I'll keep it short and sweet. 55 yr male. Diagnosed at 42 yr. Fitness fanatic, which has kept this damn disease at bay......for the most part. Just wondering what everyone thinks of this new Bill to End Parkinson's Act. Should we be excited, worried, indifferent? Is it gonna just be all talk and
Metalovinshaker13
in
Cure Parkinson's
6 months ago
PSA post Salvage Radiation
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Silverlings
in
Advanced Prostate Cancer
6 months ago
Metastatic Prostate Cancer Market to Exhibit Positive Growth at a CAGR of 22%
Good to see such a significant investment in the Prostate Cancer Therapy Market. https://www.prnewswire.com/news-releases/metastatic-prostate-cancer-market-to-exhibit-positive-growth-at-a-cagr-of-22-and-7-5-for-mhspc-and-mcrpc-respectively-during-the-study-period-20192032-assesses-delveinsight-302013725
Good to see such a significant investment in the Prostate Cancer Therapy Market. https://www.prnewswire.com/news-releases/metastatic-prostate-cancer-market-to-exhibit-positive-growth-at-a-cagr-of-22-and-7-5-for-mhspc-and-mcrpc-respectively-during-the-study-period-20192032-assesses-delveinsight-302013725
rfgaus
in
Advanced Prostate Cancer
6 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
6 months ago
Pork, Autoimmune Disease, and Parkinson's?
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
Bolt_Upright
in
Cure Parkinson's
3 months ago
HRT and B12
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
Oneash
in
Pernicious Anaemia Society
3 months ago
Give your feedback to help us update our "Lupus: A Guide to Pregnancy" booklet
We're updating our "Guide to Pregnancy" booklet with the new medication guidelines, and we want to hear from you about what else we should include or think about to make sure a new version meets the needs of the lupus community. Complete our anonymous survey here: https://forms.gle/iPBShZxtoJdKaEsn7
We're updating our "Guide to Pregnancy" booklet with the new medication guidelines, and we want to hear from you about what else we should include or think about to make sure a new version meets the needs of the lupus community. Complete our anonymous survey here: https://forms.gle/iPBShZxtoJdKaEsn7
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Unstable Thyroid Function
For over 20 years my underactive thyroid function was stable -taking 125mg of levothyroxine daily. Last Summer it went haywire and became overactive. Medication was reduced to 100mg and by November it was stable. Now,the results of my requested blood test show it's underactive again and my medication
For over 20 years my underactive thyroid function was stable -taking 125mg of levothyroxine daily. Last Summer it went haywire and became overactive. Medication was reduced to 100mg and by November it was stable. Now,the results of my requested blood test show it's underactive again and my medication
doonicle
in
Thyroid UK
3 months ago
Raynaud's in nipples?
I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no responses. Surely I can't be the only one?
I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no responses. Surely I can't be the only one?
Brychni
in
NRAS
3 months ago
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