Search
Search
About
Log in
Join
Experiences with
Rosai-Dorfman disease
Posts
Communities
42,609 public posts
Filter results
REMINDER! Harrogate Lupus Group - Coffee and Chat meeting - 2nd March 10.30am
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
michaellasmith
Administrator
in
LUPUS UK
3 months ago
Answer's at last for my deficiency.
Some will already know from my previous posts I went for an ultrasound scan today on my intestines. When I arrived home I had recieved rather a lot of post. I waded through the various bills and then opened one from the hospital, it was from the endocrine dept. Some of you will know I have both hypothroidism
Some will already know from my previous posts I went for an ultrasound scan today on my intestines. When I arrived home I had recieved rather a lot of post. I waded through the various bills and then opened one from the hospital, it was from the endocrine dept. Some of you will know I have both hypothroidism
Jillymo
in
Pernicious Anaemia Society
6 months ago
A Happy Anniversary
Dear AFA forum family. Isn't life wonderful? I joined the AFA forum some four years ago and had it not been for chance encounters, who knows where I would be today. It started with an AFA post titled "Tim' Story". At the time of his post (several years ago) Tim was 55 and his story mirrored my own
Dear AFA forum family. Isn't life wonderful? I joined the AFA forum some four years ago and had it not been for chance encounters, who knows where I would be today. It started with an AFA post titled "Tim' Story". At the time of his post (several years ago) Tim was 55 and his story mirrored my own
saulger
in
AF Association
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PSA rise from initial Pluvicto treatment
I am curious if most of you that have been through Pluvicto experienced a PSA rise initially? I just finished my first injection, and did see a bit of a jump in PSA level. I had a similar experience in the SPLASH trial last year. After the first Lu177 injection, my PSA shot up quite a lot. This got
I am curious if most of you that have been through Pluvicto experienced a PSA rise initially? I just finished my first injection, and did see a bit of a jump in PSA level. I had a similar experience in the SPLASH trial last year. After the first Lu177 injection, my PSA shot up quite a lot. This got
joeguy
in
Advanced Prostate Cancer
6 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
3 months ago
Persistent Afib
Thank you to everyone for your replies. This is the best site for info and also advice that I have found. Persistent AFib but HR controlled and stays under 100 most of the time. Now on Eliquis and switched to Digoxin .25mgm a month ago with Lopressor 25mgm/25mgm and trying to wean off Lopressor
Thank you to everyone for your replies. This is the best site for info and also advice that I have found. Persistent AFib but HR controlled and stays under 100 most of the time. Now on Eliquis and switched to Digoxin .25mgm a month ago with Lopressor 25mgm/25mgm and trying to wean off Lopressor
farewelltoarms
in
Atrial Fibrillation Support
12 hours ago
AVnode ablation
All,Has anyone out there had an av node ablation? I have been in persistent afib since feb of this year, and meds are not working. My quality of life has been miserable. I have a pacemaker with wires in my ventricles and my heart rate is very well controlled. It's the afib which is so bothersome.
All,Has anyone out there had an av node ablation? I have been in persistent afib since feb of this year, and meds are not working. My quality of life has been miserable. I have a pacemaker with wires in my ventricles and my heart rate is very well controlled. It's the afib which is so bothersome.
N400033
in
Atrial Fibrillation Support
19 hours ago
New treatment for neurodegenerative diseases may be found in used coffee grounds
New treatment for neurodegenerative diseases may be found in used coffee grounds
: Caffeic-acid based Carbon Quantum Dots have the potential to be transformative in the treatment of neurodegenerative disorders 2023 https://www.caledonianrecord.com/features/health/used-coffee-grounds-may-help-prevent-alzheimer-s-and-parkinson-s-study
New treatment for neurodegenerative diseases may be found in used coffee grounds
: Caffeic-acid based Carbon Quantum Dots have the potential to be transformative in the treatment of neurodegenerative disorders 2023 https://www.caledonianrecord.com/features/health/used-coffee-grounds-may-help-prevent-alzheimer-s-and-parkinson-s-study
Bolt_Upright
in
Cure Parkinson's
6 months ago
Cholesterol level and Q Risk
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
diana1998
in
PMRGCAuk
1 day ago
heart rate 134 when out walking
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Crumbling
in
Atrial Fibrillation Support
1 day ago
Trigeminy and Flecainide
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
Debjimmay
in
Atrial Fibrillation Support
2 days ago
Atrial Fibrillation
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
hollyandivy
in
Atrial Fibrillation Support
2 days ago
Exercise induced AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
Daisy2908
in
Atrial Fibrillation Support
2 days ago
Statins
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
Swimsyroke
in
Atrial Fibrillation Support
2 days ago
digoxin
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Decrepit
in
Atrial Fibrillation Support
2 days ago
"Failed" exercise stress test
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
Singingforever
in
Atrial Fibrillation Support
2 days ago
Travel with Afib
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
farewelltoarms
in
Atrial Fibrillation Support
3 days ago
Bisoprolol
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Ilovedogs12
in
Atrial Fibrillation Support
3 days ago
Oximeters
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
Corazon17
in
Atrial Fibrillation Support
3 days ago
Permanent AFib
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
farewelltoarms
in
Atrial Fibrillation Support
3 days ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5619 results
British Liver Trust
4442 results
Advanced Prostate Cancer
4329 results
View top 10 communities
Sort by
Most Relevant
Newest