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Rosai-Dorfman disease
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Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Dahliasanddaisies
in
Thyroid UK
1 month ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Women’s Health in RA survey
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
SarahW-NRAS
NRAS
in
NRAS
1 month ago
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High-Dose Vitamin B1 / Thiamine and Fat Soluble Benfotiamine Form
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
jazj
in
Advanced Prostate Cancer
6 months ago
Anti-Androgen Therapy and Bone Tumors in Prostate Cancer
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
85745
in
Advanced Prostate Cancer
6 months ago
1st consult questions to ask please
hi, please can someone guide me on which questions to ask? My brother has got his first appointment at Leeds liver Unit next week. He’s got Class C liver cirrhosis, was diagnosed in July as he was decompensated with ascites and hepatic encephalopathy and almost died. He’s seen gastro ONCE since being
hi, please can someone guide me on which questions to ask? My brother has got his first appointment at Leeds liver Unit next week. He’s got Class C liver cirrhosis, was diagnosed in July as he was decompensated with ascites and hepatic encephalopathy and almost died. He’s seen gastro ONCE since being
MrsAlien
in
British Liver Trust
6 months ago
seeing neurologist, advice on b12 injections welcomed…
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
Damacian
in
Pernicious Anaemia Society
1 month ago
What Causes Autoimmune Diseases?
Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?Reviewed By: Ana-Maria Orbai, M.D., M.H.S. Autoimmune disease affects 23.5 million Americans, and nearly 80 percent of those are women. If you’re one of the millions of women affected by this group of diseases, which includes
Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?Reviewed By: Ana-Maria Orbai, M.D., M.H.S. Autoimmune disease affects 23.5 million Americans, and nearly 80 percent of those are women. If you’re one of the millions of women affected by this group of diseases, which includes
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Wednesday's 'Word'
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
ATA Virtual Patient Forum: International Thyroid Awareness Week - Wednesday, May 29, 2024, 8pm - 9:15pm EDT
In case anyone is interested, registration appears to be open - both in they are accepting registrations AND it is open to the public. It would be interesting to find out about how useful it is. The time makes it somewhat awkward for many in the UK. I think it works out to be 01:00 in the morning
In case anyone is interested, registration appears to be open - both in they are accepting registrations AND it is open to the public. It would be interesting to find out about how useful it is. The time makes it somewhat awkward for many in the UK. I think it works out to be 01:00 in the morning
helvella
Thyroid UK
in
Thyroid UK
1 month ago
Intrinsic Factor result
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
Chickens44
in
Pernicious Anaemia Society
1 month ago
Newbie and blood tests
Good morning all, I've been borderline underactive thyroid for a year or so. I was never told my levels and they aren't on my GP app. I've been retested recently and have a TSH level of 6. I also have a TSH receptor level of 0.3. I have a few symptoms.. Tiredness Brain fog Cold all the time Thinning
Good morning all, I've been borderline underactive thyroid for a year or so. I was never told my levels and they aren't on my GP app. I've been retested recently and have a TSH level of 6. I also have a TSH receptor level of 0.3. I have a few symptoms.. Tiredness Brain fog Cold all the time Thinning
HubbaBubbaLover
in
Thyroid UK
1 month ago
Getting bombarded with ads for RA treatment Honey bee venom cream?.
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
welsh12
in
NRAS
6 months ago
Thoughts on blood test ? (Quite new to T3 meds)
Any thoughts regarding my latest bloods please? I take 100 mcg T4 and 20mcg T3. My symptoms are nausea and brain fog. (I have an Underactive Thyroid). Free T3 5.1 pmol/L (in range) (3.10-6.80pmol)L THS 0.01 pmol/L (out of range) (range 0.27-4.20mIU/L) Free T4
Any thoughts regarding my latest bloods please? I take 100 mcg T4 and 20mcg T3. My symptoms are nausea and brain fog. (I have an Underactive Thyroid). Free T3 5.1 pmol/L (in range) (3.10-6.80pmol)L THS 0.01 pmol/L (out of range) (range 0.27-4.20mIU/L) Free T4
Heyhop
in
Thyroid UK
1 month ago
Autoimmune condition
Hi everyone. The results from my ANA and ENA came back with a broad diagnosis of connective tissue disease. They've ruled out lupus. This plus the thyroid stuff is going to be fun to deal with 😅. The Coeliac disease test was inconclusive because my GP forgot to advise me to have bread for at least 4
Hi everyone. The results from my ANA and ENA came back with a broad diagnosis of connective tissue disease. They've ruled out lupus. This plus the thyroid stuff is going to be fun to deal with 😅. The Coeliac disease test was inconclusive because my GP forgot to advise me to have bread for at least 4
MauveMouse
in
Thyroid UK
1 month ago
little advice from fellow Coeliac’s
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
RJane83
in
Gluten Free Guerrillas
1 month ago
Latest blood tests
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Hi everyone, I posted a while ago about getting all my underactive thyroid symptoms back, joint pains, fatigue, anxiety and others. I’d had test results saying my TSH was low, but the dr was saying that it was satisfactory. I managed to speak to another dr and she ordered full blood tests. My results
Button83
in
Thyroid UK
1 month ago
Any info on the drug Dapaglifozen?
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Will1408
in
LUPUS UK
1 month ago
underactive thyroid
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
getting numb feeling in my face arm and leg. Headache itchy skin and tired out light headed. My gp sent me for mri. Everything is fine. I have had an underactive thyroid for 25 years My blood pressure is also low I take 100 levothyroxine. Does it need increasing ???? Blood tests 3 rd June ! Any
Carlphilip1958
in
Thyroid UK
1 month ago
nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
6 months ago
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