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Ppfe
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Kcn3
in
Lung Conditions Community Forum
4 years ago
Old head injury, looking for anything I can do to improve my quality of life!
Good afternoon everyone! Hope you are all well, I recently read James Cracknells book about his recovery from his head injury. And read about headway in the book. I suffered a head injury in 1995, going face first through a windscreen at around 30mph after being knocked off my bike. Being young and
Good afternoon everyone! Hope you are all well, I recently read James Cracknells book about his recovery from his head injury. And read about headway in the book. I suffered a head injury in 1995, going face first through a windscreen at around 30mph after being knocked off my bike. Being young and
SupermanRAF
in
Headway
4 years ago
3 year old having accidents
Hi all, this is a difficult one as I'm not sure what could be causing it but basically my 3 year old son has been potty trained since he just turned 2! However hes never really grasped pooping! He will mostly pop in his pants, never constipated and never loose so I dont think its constipation! However
Hi all, this is a difficult one as I'm not sure what could be causing it but basically my 3 year old son has been potty trained since he just turned 2! However hes never really grasped pooping! He will mostly pop in his pants, never constipated and never loose so I dont think its constipation! However
Kayduds
in
ERIC
4 years ago
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How many US veterans on this site were exposed to Agent Orange during the VietNam era?
White House, US Courts & EPA Shaft Veterans to Protect Monsanto By: Cassandra Anderson Fate of US Veterans In 2003, the Supreme Court affirmed a lower court decision allowing veterans to sue Monsanto, Dow and other Agent Orange manufacturers directly. The government has responded, under the Obama
White House, US Courts & EPA Shaft Veterans to Protect Monsanto By: Cassandra Anderson Fate of US Veterans In 2003, the Supreme Court affirmed a lower court decision allowing veterans to sue Monsanto, Dow and other Agent Orange manufacturers directly. The government has responded, under the Obama
bepo
in
Cure Parkinson's
5 years ago
Giggle incontinence advice for a desperate mum!
Hi I'm new here, I am wondering if there is anyone with any advice on giggle incontinence? My 10 year old son was diagnosed 5 years ago, he pretty much self potty trained at 2 and was dry day and night within 2 weeks. Then at 4 years old he started to lose control of his bladder when he would laugh.
Hi I'm new here, I am wondering if there is anyone with any advice on giggle incontinence? My 10 year old son was diagnosed 5 years ago, he pretty much self potty trained at 2 and was dry day and night within 2 weeks. Then at 4 years old he started to lose control of his bladder when he would laugh.
PurpleUnicorn88
in
ERIC
5 years ago
Constipation or rather worse
Hi I’ve had really bad ibs over Xmas, probably stress related, and been trying just about everything. One thing I’ve tried which has caused me great problems (my own fault) is Psyllium capsules. I think they might have helped if I’d only followed the instructions to drink a lot but I’m not a great water
Hi I’ve had really bad ibs over Xmas, probably stress related, and been trying just about everything. One thing I’ve tried which has caused me great problems (my own fault) is Psyllium capsules. I think they might have helped if I’d only followed the instructions to drink a lot but I’m not a great water
Wifflesnook
in
IBS Network
5 years ago
8-year-old Charlie raises £1000s for other people with a visible difference
When Charlie was 8 years old he was in a car crash which resulted in serious facial scarring. Since then, he's raised thousands of pounds for other people with a visible difference. This is his story. My name is Kimberley. I’m writing on behalf of my son Charlie, who’s 8 years old. On 30 September
When Charlie was 8 years old he was in a car crash which resulted in serious facial scarring. Since then, he's raised thousands of pounds for other people with a visible difference. This is his story. My name is Kimberley. I’m writing on behalf of my son Charlie, who’s 8 years old. On 30 September
Hidden
in
Changing Faces
5 years ago
New hope for COPD patients possible with in-home device.
COPD is a chronic lung disease that makes it difficult to breathe. COPD is the third leading cause of death in the U.S., with more than 15 million people currently living with the disease, according to the American Lung Association. Many people who have COPD suffer from hypercapnia, the retention of
COPD is a chronic lung disease that makes it difficult to breathe. COPD is the third leading cause of death in the U.S., with more than 15 million people currently living with the disease, according to the American Lung Association. Many people who have COPD suffer from hypercapnia, the retention of
2greys
in
Lung Conditions Community Forum
4 years ago
Diverticulitis diet
My name is Barbara and have had several hernia operations and by 2015 I suffered a strangulated hernia. Since then I have had mostly diarrhoea making it impossible to go out without preparation and watching what I ate.Diverticulitis was diagnosed but not treated other than my medication for constipation
My name is Barbara and have had several hernia operations and by 2015 I suffered a strangulated hernia. Since then I have had mostly diarrhoea making it impossible to go out without preparation and watching what I ate.Diverticulitis was diagnosed but not treated other than my medication for constipation
Isazarfra3
in
IBS Network
4 years ago
Explosive d* - anxiety?
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
Cheesecake17
in
IBS Network
5 years ago
With holding nightmare for 6 year old
Hi, my son is 6 and only poos every 2-3 weeks after a few doses of either movicol or ducolax, longest he has held it in for is 6 weeks. Drs just say it idiopathic constipation from being a baby which has developed into withholding. I'm having to send him to school in pull ups to catch any liquid poo.
Hi, my son is 6 and only poos every 2-3 weeks after a few doses of either movicol or ducolax, longest he has held it in for is 6 weeks. Drs just say it idiopathic constipation from being a baby which has developed into withholding. I'm having to send him to school in pull ups to catch any liquid poo.
bluecow
in
ERIC
5 years ago
Loss of memory
My girlfriend was in coma since June I am not sure how long it’s been since she has been awake. She doesn’t know who I am after reading my messages on Instagram all her memory is gone back to her university days in 2012, it’s 2 years before we met. She had surgery for some kind of fluid which was not
My girlfriend was in coma since June I am not sure how long it’s been since she has been awake. She doesn’t know who I am after reading my messages on Instagram all her memory is gone back to her university days in 2012, it’s 2 years before we met. She had surgery for some kind of fluid which was not
Unknown7
in
ICUsteps
4 years ago
Meal suggestions
Thanks for the suggestions on the constipation relief. We're are improving some with the help of Sennoside S and my concerted effort to get raw veggies and fruits into his diet. Now I need to ask for more advice. As the swallowing continues to deteriorate, meal have become more of a challenge.
Thanks for the suggestions on the constipation relief. We're are improving some with the help of Sennoside S and my concerted effort to get raw veggies and fruits into his diet. Now I need to ask for more advice. As the swallowing continues to deteriorate, meal have become more of a challenge.
Baytalon
in
PSP Association
5 years ago
Removing body clock gene protects mice against pneumonia.
Removing the clock gene BMAL1 makes bacteria-engulfing defence cells in the body more effective, a University of Manchester and University of Oxford study published in the journal PNAS has found. This is the first time a clock gene has been found to affect resistance to bacterial pneumonia, a fatal
Removing the clock gene BMAL1 makes bacteria-engulfing defence cells in the body more effective, a University of Manchester and University of Oxford study published in the journal PNAS has found. This is the first time a clock gene has been found to affect resistance to bacterial pneumonia, a fatal
2greys
in
Lung Conditions Community Forum
5 years ago
FTD
Anyone tried Trazadone for agitation, depression and apathy, apparently one of the few drugs that is ok to take with FTD ?
Anyone tried Trazadone for agitation, depression and apathy, apparently one of the few drugs that is ok to take with FTD ?
Hidden
in
PSP Association
4 years ago
kimchi. Very interesting interview
https://www.theenergyblueprint.com/the-kimchi-diet/ I know fermented foods have been mentioned before but this is an interesting talk on the health benefits, especially if you are thinking about trying probiotics. I also found some articles on how it may be effective against viruses and work was done
https://www.theenergyblueprint.com/the-kimchi-diet/ I know fermented foods have been mentioned before but this is an interesting talk on the health benefits, especially if you are thinking about trying probiotics. I also found some articles on how it may be effective against viruses and work was done
LAJ12345
in
Cure Parkinson's
4 years ago
PV diagnosis
Hello All, I was diagnosed with PV 3 weeks ago my hematocrit was 59. After 3 phlebotomies my number is 54. I was expecting more of a drop? Anyone know if this is good and normal and does it just take some time to reduce to normal? Any help would be appreciated. Nervous on what to expect. Thanks
Hello All, I was diagnosed with PV 3 weeks ago my hematocrit was 59. After 3 phlebotomies my number is 54. I was expecting more of a drop? Anyone know if this is good and normal and does it just take some time to reduce to normal? Any help would be appreciated. Nervous on what to expect. Thanks
josup26
in
MPN Voice
5 years ago
Son refuses to wee most of the time. He is fully toilet trained and now wets the bed frequently
I'd really appreciate any advice or ideas. My son is only 4 but he refuses to go for a wee most of the time when he obviously needs one. Occasionally when he's about to wet himself he will make a dash for it and these days, usually makes it. He won't go before we go on a trip for example or if you suggest
I'd really appreciate any advice or ideas. My son is only 4 but he refuses to go for a wee most of the time when he obviously needs one. Occasionally when he's about to wet himself he will make a dash for it and these days, usually makes it. He won't go before we go on a trip for example or if you suggest
Countrymama
in
ERIC
4 years ago
Thrombocytosis
Hi everyone here I am glad to be a member of this MPN Voice I really like to hear others too suffering from this blood disease thrombocytosis I have high platelets count.And I would like to hear other patients who has this kind of disorder since this is a rare blood disease.
Hi everyone here I am glad to be a member of this MPN Voice I really like to hear others too suffering from this blood disease thrombocytosis I have high platelets count.And I would like to hear other patients who has this kind of disorder since this is a rare blood disease.
grgracey
in
MPN Voice
5 years ago
Repressed Memories
Hi, I was hospitalized with VM at the age of 7 back in 1973. Shortly after hospitalization, I slipped into a coma in which I remained for around a month. When I first gained consciousness, I couldn’t walk or talk, but I eventually re-learned to do both. My total hospital stay lasted 2 months, about
Hi, I was hospitalized with VM at the age of 7 back in 1973. Shortly after hospitalization, I slipped into a coma in which I remained for around a month. When I first gained consciousness, I couldn’t walk or talk, but I eventually re-learned to do both. My total hospital stay lasted 2 months, about
Prisoner
in
Meningitis Now
4 years ago
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