Experiences with

Rituximab

This is her 2nd Rituximab cycle since last year Had chest infection after last year's cycle.

Good day everyone I’m about to get my 1st Rituximab and would really appreciate any thoughts and advice. Many thanks

Since my last post, informing that I had come out of a 4 year remission, after FCR, I have been monitored for my ALC and lymph node enlargement. After 6 months my ALC had reached 24 and some spleen and node enlargement . My Haematology team suggested I would not need treatment this year. However,

I’m taking Rituximab for RA and also have myasthenia gravis.The Rituximab has worked well for me for both RA and MG. My question is that I take every 6months with an infusion has anyone asked they RA doctor if you could go longer be fore the next infusion .

Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning towards have venetoclax to start with , what’s the thoughts on this? as want to give my body the best opportunity possible. Is this the right path

Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?

Hi everyone, I’m about to have my first treatment for cll. I also have ulcer colitis. Has anyone else had the same situation? Be good to hear feedback on any complications with having ulcer colitis and getting venetoclax medication. My doctor did say that one patient of hers had FCR treatment and it

had received immunosuppressive therapy for a solid organ transplant in the previous 6 months those who were receiving or had received in the previous 3 months targeted therapy for autoimmune disease, such as JAK inhibitors or biologic immune modulators including B-cell targeted therapies (including rituximab

after starting rituximab should I start to feel less fatigued?

Hi my OH was due his second RTX as part of his 2 year schedule. He has developed a throat infection and after contacting the hospital his RTX for tomorrow is delayed. He is well in himself, no temperature and appetite ok. Just more tired than usual. Will this delay cause any problems? He had his last

I have had two rituximab infusions & due another one in May. My consultant has said I am currently in clinical remission. I had Rheumotology appt yesterday & my blood pressure was take 175/95 which also concerned me as it it’s normally around 135/85.

Has anyone had any experience with Bupa cancer cover in the UK? Bupa Cancer promise is that it is not limited by time or costs. However, after one year on Ibrutinib, they have decided to increase my premium by 50%. And it gets worse, each year I am likely to face 50% increases because I lose my no-claims

I’m 5-6 stone overweight 😳 and I’ve just started on rituximab (had second dose of first cycle 5 weeks ago) and I’m also on 5-10 mg prednisolone daily. Rituximab has not yet kicked in.

I am 66 year old male Royal Marsden patient UK. Treatment has been advised (which has come as a big shock to me as it has never mentioned before) mostly because I have a really huge spleen. Apparently extending over to the right side of my abdomen and well below my navel on the left side. This was on

B-cell depleting therapies (such as rituximab) Medications such as rituximab work by depleting B cells, which are an important part of how your immune system responds to vaccines.

The lack of response appeared to be associated with patients undergoing a specific treatment using a specific drug, Rituximab. The problem did not seem to emerge with other common drugs and treatments.

Hello ☺️ I’m going to be starting rituximab very soon after I’ve had my second vaccine this week. Anyone that’s been on this how have you been? What’s it like? Any side effects? Thank you 😊

Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation. Been seeking out trials and wanted to try loxo-305 (Pirtobrutinib) but it was all filled up and they

Does anyone know if we can ask for testing anywhere? I had FCR in 2018 and of course have had both jabs. I’d love to know if I have any antibodies. Thanks

I read that Rituximab (anti CD20 monoclonal) can take 6-12 months for your immune system to recover after your final infusion and her last infusion of Rituximab was Oct 1, 2020 so she was just shy of 6 months when she got her first Pfizer shot.