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Ageing pet’s effect on my health
Our son has come home for a visit and is appalled at the smell of our old dog. She is incontinent and wears nappies or lies on sheets I change several times a day. She insists on sleeping in our room at night, or barks all night long. I love her dearly, but I have noticed I cough a lot when I get up
Our son has come home for a visit and is appalled at the smell of our old dog. She is incontinent and wears nappies or lies on sheets I change several times a day. She insists on sleeping in our room at night, or barks all night long. I love her dearly, but I have noticed I cough a lot when I get up
Mandy56
in
CLL Support
3 years ago
Wegners disease and kidney function
I'm now having a 2nd session
rituximab
and seen less urine flow which means I'm now on more fluid restriction. I'm hoping it's the meds. I have read that some Wenger's disease sufferers can see some or all kidney function restored over 6 plus months of renal failure.
I'm now having a 2nd session
rituximab
and seen less urine flow which means I'm now on more fluid restriction. I'm hoping it's the meds. I have read that some Wenger's disease sufferers can see some or all kidney function restored over 6 plus months of renal failure.
Norfickgal
in
Kidney Disease
3 years ago
COVID-19 Vaccine and Behçet’s - updated 27/01/21
“If a patient needs to start a new DMARD/biologic but has not been vaccinated, it may be appropriate to consider selecting an alternative DMARD / biologic medication to
rituximab
, if available and appropriate, e.g. in patients with rheumatoid arthritis.”
“If a patient needs to start a new DMARD/biologic but has not been vaccinated, it may be appropriate to consider selecting an alternative DMARD / biologic medication to
rituximab
, if available and appropriate, e.g. in patients with rheumatoid arthritis.”
TonyWT
Partner
in
Behçet's UK
3 years ago
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VACCINE ANTIBOBY TEST STUDY
During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient antibodies from my recent vaccinations. MSK is trying to collect data as to whether us CLL'ers can can get protection too. In my case YES! Moderna vaccine
During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient antibodies from my recent vaccinations. MSK is trying to collect data as to whether us CLL'ers can can get protection too. In my case YES! Moderna vaccine
steve5441
in
CLL Support
3 years ago
Rituximab
I have been advised that Methotrexate makes
Rituximab
work better ....does anybody take Methotrexate with
Rituximab
please?
I have been advised that Methotrexate makes
Rituximab
work better ....does anybody take Methotrexate with
Rituximab
please?
-Mii
in
NRAS
3 years ago
COVID19 Vaccination Information for Vasculitis Patients
3) Will the vaccine be effective people for who are immune suppressed – especially those who are taking
rituximab
? 4) Which vaccine is best for people taking immune suppressing drugs? 5) Will the vaccine need regular booster doses?
3) Will the vaccine be effective people for who are immune suppressed – especially those who are taking
rituximab
? 4) Which vaccine is best for people taking immune suppressing drugs? 5) Will the vaccine need regular booster doses?
John_Mills
Vasculitis UK
in
Vasculitis UK
3 years ago
Rituximab and pregnancy
Has anyone had
rituximab
and tried for a baby? I’m roughly 7 years diagnosed and had only 1 relapse in between. GPA vasculitis
Has anyone had
rituximab
and tried for a baby? I’m roughly 7 years diagnosed and had only 1 relapse in between. GPA vasculitis
rrahman
in
Vasculitis UK
3 years ago
Nausea with FCR
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Daisy1993
in
CLL Support
3 years ago
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
Jm954
in
Leukaemia CARE
3 years ago
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Jm954
Administrator
in
CLL Support
3 years ago
Rituximab and covid vaccination
I am due to have
rituximab
infusions starting next week which are overdue and I haven't had any infusions since January.
I am due to have
rituximab
infusions starting next week which are overdue and I haven't had any infusions since January.
Galaxy2
in
Vasculitis UK
3 years ago
Lupus patients who are currently undergoing biologic treatment (Benlysta/Rituximab) needed for paid research study
Global Patients, a market research company specialising in the healthcare sector, are looking for two people with systemic lupus erythematosus who are currently undergoing biologic treatment (Benlysta (belimumab)/
Rituximab
) to take part in a research study.
Global Patients, a market research company specialising in the healthcare sector, are looking for two people with systemic lupus erythematosus who are currently undergoing biologic treatment (Benlysta (belimumab)/
Rituximab
) to take part in a research study.
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
3 years ago
Inevitable, but still a blow and a huge disappointment
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Rich316
in
CLL Support
3 years ago
Confused about COVID vaccines and Immune Suppressed? I am!
Yesterday I went to see my specialist to check on progress of my transfer from Azathioprine to
Rituximab
, all seemed good until I asked the question what about the COVID vaccine for me, and was told “not for you Nick” “the two vaccines you are talking about are live” you will catch COVID.
Yesterday I went to see my specialist to check on progress of my transfer from Azathioprine to
Rituximab
, all seemed good until I asked the question what about the COVID vaccine for me, and was told “not for you Nick” “the two vaccines you are talking about are live” you will catch COVID.
Investigator1
in
Vasculitis UK
3 years ago
Lupus and Bowel Bleeding
She has had
Rituximab
and cyclophosphamide infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine.
She has had
Rituximab
and cyclophosphamide infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine.
chezevo
in
LUPUS UK
3 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I would just get Venetoclax alone (no
Rituximab
) as this is recommended as the third line; whereas 2. if I take Venetoclax-
Rituximab
as a second line treatment and need to change, I can then go to Ibrutinib. This seems strange ... has anyone else been told this?
I would just get Venetoclax alone (no
Rituximab
) as this is recommended as the third line; whereas 2. if I take Venetoclax-
Rituximab
as a second line treatment and need to change, I can then go to Ibrutinib. This seems strange ... has anyone else been told this?
Me2AsWell
in
CLL Support
3 years ago
How long after the second infusion of Rituximab can I have a flu vaccination
Was wondering if flu vaccination would work after
rituximab
too.
Was wondering if flu vaccination would work after
rituximab
too.
achygran
in
NRAS
4 years ago
First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
TimDeeSeattle
in
CLL Support
3 years ago
Rituximab & work
Has anyone been on
Rituximab
and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to contact GP for a certificate.
Has anyone been on
Rituximab
and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to contact GP for a certificate.
Mish-da
in
Vasculitis UK
4 years ago
RItuximab & Work
Has anyone been on
Rituximab
and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to contact GP for a certificate.
Has anyone been on
Rituximab
and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to contact GP for a certificate.
Mish-da
in
NRAS
4 years ago
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