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Dr. Furman on the Diminishing Role of FCR
Hi, As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io group forum. Dr. Richard Furman is their medical advisor and his response really puts the comparison of a therapy that has existed for decades with a therapy that
Hi, As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io group forum. Dr. Richard Furman is their medical advisor and his response really puts the comparison of a therapy that has existed for decades with a therapy that
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Round 2 FCR complete
I have completed round 2 of FCR and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port so it is a simple hook up and away they go. No reactions day one and two, but by end of day 3 I was starting to feel some nausea. I take Ondansetron
I have completed round 2 of FCR and am past the lowest point (10 days post) so am starting to recover. The infusion days themselves were easy. I have a port so it is a simple hook up and away they go. No reactions day one and two, but by end of day 3 I was starting to feel some nausea. I take Ondansetron
Marie-54
in
CLL Support
6 years ago
Jules is back and my plans for 2018 are
Hi Everyone Some of you know I do the odd Cycle ride for Charity, CLLSA and Bloodwise. To the unfortunate new members to this site allow me to introduce myself. I'm Jules AKA as The Flyer I have been on Watch and Wait for nearly 8 years now and decided I would try and help raise some funds - so far
Hi Everyone Some of you know I do the odd Cycle ride for Charity, CLLSA and Bloodwise. To the unfortunate new members to this site allow me to introduce myself. I'm Jules AKA as The Flyer I have been on Watch and Wait for nearly 8 years now and decided I would try and help raise some funds - so far
TheFlyer
in
CLL Support
6 years ago
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Abdominal pain
I've been on watch and wait for most of that time, apart from a course of
Rituximab
about 3 years ago as my platelets had gone thru the floor and my WBC had more than doubled in the space of 6 months. Recently I've been getting sharp pains in my left abdomen, just under the bottom rib.
I've been on watch and wait for most of that time, apart from a course of
Rituximab
about 3 years ago as my platelets had gone thru the floor and my WBC had more than doubled in the space of 6 months. Recently I've been getting sharp pains in my left abdomen, just under the bottom rib.
Daveyo
in
CLL Support
7 years ago
Definitive diagnosis
The Haematologist did tell us that treatment may be some time away and the most likely first line treatment would be
Rituximab
. Back to watch and wait now until our next clinic appointment in three months time.
The Haematologist did tell us that treatment may be some time away and the most likely first line treatment would be
Rituximab
. Back to watch and wait now until our next clinic appointment in three months time.
Maryandallan
in
Non Hodgkin's Lymphoma Friends
7 years ago
Imbruvica withdrawal Waldenstrom’s
Went through 5 cycles of chemo and
rituximab
. Had serious Allergic reaction’s to the ritux so got started on Imbruvica. I’ve had many side effects so the Dr. and I decided to try coming off to give my body a break. It’s been a week and have had tons of body aches and flu like symptoms.
Went through 5 cycles of chemo and
rituximab
. Had serious Allergic reaction’s to the ritux so got started on Imbruvica. I’ve had many side effects so the Dr. and I decided to try coming off to give my body a break. It’s been a week and have had tons of body aches and flu like symptoms.
Rmendez3
in
CLL Support
7 years ago
Lupus nephritis
He was classed at a 4 for his kidneys and has been started on IV
rituximab
, had 3 pulses of IV methylpred and is on oral pred, mycopehalate, Adcal and ranitidine. His BP is roughly 90/45 average at the moment. His haemoglobing has risen to the dizzy heights of 77 from 70 on discharge!
He was classed at a 4 for his kidneys and has been started on IV
rituximab
, had 3 pulses of IV methylpred and is on oral pred, mycopehalate, Adcal and ranitidine. His BP is roughly 90/45 average at the moment. His haemoglobing has risen to the dizzy heights of 77 from 70 on discharge!
Deegraham
in
LUPUS UK
7 years ago
FCR Cycle one
Had cycle 1 FCR - was a little rough but come time for 2nd cycle my BW is normal why continue
Had cycle 1 FCR - was a little rough but come time for 2nd cycle my BW is normal why continue
Mathild
in
CLL Support
6 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
Reimbursement for
rituximab
is limited to the NHS England 2013 Interim Clinical Commissioning Policy statement for
rituximab
in adult SLE patients (https://www.england.nhs.uk/wp-content/uploads/2013/09/a13-psa.pdf). SLE is a multisystem autoimmune disorder.
Reimbursement for
rituximab
is limited to the NHS England 2013 Interim Clinical Commissioning Policy statement for
rituximab
in adult SLE patients (https://www.england.nhs.uk/wp-content/uploads/2013/09/a13-psa.pdf). SLE is a multisystem autoimmune disorder.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
FCR + Ibrutinib trial
This is a wonderful community and I thank everyone who responded to my previos post with an opinion or just a message of support. I have the opportunity to participate in a trial that combines ibrutinib with FCR for 6 months and after that ends i would continue to take the ibrutinib for 2 years. I’
This is a wonderful community and I thank everyone who responded to my previos post with an opinion or just a message of support. I have the opportunity to participate in a trial that combines ibrutinib with FCR for 6 months and after that ends i would continue to take the ibrutinib for 2 years. I’
Haesl
in
CLL Support
6 years ago
Golimumab (Simponi)
Has anyone got any recent experience with above biologic, I'm so desperate for it to work as my previous treatment (
rituximab
) had no effect. The information leaflet says it can take up to 12 weeks to work, has anyone had it work any quicker?
Has anyone got any recent experience with above biologic, I'm so desperate for it to work as my previous treatment (
rituximab
) had no effect. The information leaflet says it can take up to 12 weeks to work, has anyone had it work any quicker?
premierscfc
in
NRAS
7 years ago
Just diagnosed
I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if FCR is an option, I hope I can get it asap.
I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if FCR is an option, I hope I can get it asap.
TXteacher
in
CLL Support
6 years ago
Rituximab
Loads of things have failed, so having my first
Rituximab
infusion on Thursday, how should I expect to feel in the days following? I'm a big coward! Thanks in advance to the good folks out there.
Loads of things have failed, so having my first
Rituximab
infusion on Thursday, how should I expect to feel in the days following? I'm a big coward! Thanks in advance to the good folks out there.
Peterborough67
in
NRAS
7 years ago
Lenolidamide
Recently finished 5 months of Bendamustine/
Rituximab
infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in a week. Any information on side effects experienced with Lenalidamide would be very much appreciated.
Recently finished 5 months of Bendamustine/
Rituximab
infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in a week. Any information on side effects experienced with Lenalidamide would be very much appreciated.
Howie40
in
Lymphoma Canada
7 years ago
Venetoclax CLL 11q, Trisomy 12, MDS
Good day to everyone. I observed for a couple of weeks and felt the love. So I decided to post and share my story. Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 ) WW until August 2011 FCR August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came
Good day to everyone. I observed for a couple of weeks and felt the love. So I decided to post and share my story. Husband was Diagnosed with CLL with MDS in 2008. ( he’s now 50 ) WW until August 2011 FCR August 2011 -January 2012 - reached good #’s and he felt great until March 2015 when CLL came
Midgey_
in
CLL Support
6 years ago
Update
Anyway I was started on
rituximab
treatment and had to continue with the steroids. Anyway all done consultant felt I may need one a week for six weeks. She booked four weeks to start with. Well low and behold, my platelets are at 64 ! So not having anymore ritux.
Anyway I was started on
rituximab
treatment and had to continue with the steroids. Anyway all done consultant felt I may need one a week for six weeks. She booked four weeks to start with. Well low and behold, my platelets are at 64 ! So not having anymore ritux.
Olivia2812
in
ITP Support Association
7 years ago
Monthly injections
But he is amazing and I'm feeling so much better despite being on loads of tablets and weekly
rituximab
infusions. My question is I notice that most people seem to be on 3 monthly injections, where as I have had the loading dose and now I am on monthly injections.
But he is amazing and I'm feeling so much better despite being on loads of tablets and weekly
rituximab
infusions. My question is I notice that most people seem to be on 3 monthly injections, where as I have had the loading dose and now I am on monthly injections.
HFox
in
Pernicious Anaemia Society
7 years ago
Belimumab?
HI all, i have been on
rituximab
for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects!
HI all, i have been on
rituximab
for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects!
Rach459
in
LUPUS UK
7 years ago
Have Relapsed From FCR and looking for best choice for Round Two
Was diagnosed cll 6 yrs ago. At age 49 first time Id ever been to doctor in my life. Living in Canada. Never went back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in ears so loud couldn't watch Tv without sound cranked up. Spleen so large I looked 8 months
Was diagnosed cll 6 yrs ago. At age 49 first time Id ever been to doctor in my life. Living in Canada. Never went back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in ears so loud couldn't watch Tv without sound cranked up. Spleen so large I looked 8 months
CLLCOLIN
in
CLL Support
6 years ago
Avacopan trial update.
I have had the last of my weekly
Rituximab
infusions.... As I have lost 8kg in 6 weeks I decided I would celebrate with KFC!!
I have had the last of my weekly
Rituximab
infusions.... As I have lost 8kg in 6 weeks I decided I would celebrate with KFC!!
HFox
in
Vasculitis UK
7 years ago
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