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Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Evidence used for my decision process with (IMO)
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and practitioners in the field. occasionally I have vetted a specialist or two and will make an appointment to ask questions about current research. my
Robgump
in
CLL Support
6 years ago
Introduction.
In 2004 following the most incredible pain in a wrist I was diagnosed with RA which hit most joints in very quick succession, the stiffness was incredible to the point of almost losing the ability to walk by the third year, I was then approved biologics and more recently
Rituximab
infusions.
In 2004 following the most incredible pain in a wrist I was diagnosed with RA which hit most joints in very quick succession, the stiffness was incredible to the point of almost losing the ability to walk by the third year, I was then approved biologics and more recently
Rituximab
infusions.
juneann
in
NRAS
6 years ago
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Bruising
Hi I have completed my first week on the Flair Trial with Ibrutinib &
Rituximab
. First thing that I have noticed which is different is the large bruising where my cannula was put in & where bloods were taken.
Hi I have completed my first week on the Flair Trial with Ibrutinib &
Rituximab
. First thing that I have noticed which is different is the large bruising where my cannula was put in & where bloods were taken.
Sanphil
in
CLL Support
6 years ago
Night sweats are back
Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my Onc. today but how worried should I be?
cwturley
in
CLL Support
6 years ago
Chemo
Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this treatment what where the side effects? Did you manage to work during the treatment?
Flabal
in
CLL Support
6 years ago
What about the AQP4 antibody? Just another twist in this sordid tale to diagnosis...
NMO is treated more aggressively and with many of the same drugs (cellcept/mm, azathioprine,
rituximab
). But, if you have an acute attack it requires 5 days of MP I.V. or plasmapheresis. I'm just feeling a bit out of sorts.
NMO is treated more aggressively and with many of the same drugs (cellcept/mm, azathioprine,
rituximab
). But, if you have an acute attack it requires 5 days of MP I.V. or plasmapheresis. I'm just feeling a bit out of sorts.
DRunnerchick
in
LUPUS UK
6 years ago
Relapse or something else?
Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years
rituximab
maintenance I have lived well until now. I am now experiencing regular night sweats and fairly rapid weight loss. My consultant is arranging a ct scan.
Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years
rituximab
maintenance I have lived well until now. I am now experiencing regular night sweats and fairly rapid weight loss. My consultant is arranging a ct scan.
pmurdo
in
Non Hodgkin's Lymphoma Friends
6 years ago
CLL and sinusitis
Hi 9 years ago I was diagnosed with CLL. I have since had FCR and feel great. Over the last 12 months, my platelet count has dropped and I have had 2 bouts of sinusitis. Does anyone else have experience of this? Anyone got any advice or do I keep battling on?!
Hi 9 years ago I was diagnosed with CLL. I have since had FCR and feel great. Over the last 12 months, my platelet count has dropped and I have had 2 bouts of sinusitis. Does anyone else have experience of this? Anyone got any advice or do I keep battling on?!
hammyj
in
CLL Support
6 years ago
Still neutropenic 5 months post FCR :-(
Hi all I am wondering if anyone else who has been through the FCR regime has had issues with neutropenia for such a lengthy period of time, post chemo. It's really getting me down now. I still cannot return to work, in fact I may have to resign within the next few weeks as it's now been 11 months since
Hi all I am wondering if anyone else who has been through the FCR regime has had issues with neutropenia for such a lengthy period of time, post chemo. It's really getting me down now. I still cannot return to work, in fact I may have to resign within the next few weeks as it's now been 11 months since
Sucee
in
CLL Support
6 years ago
Venetoclax plus Rituximab
http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-
rituximab
-improves-survival-relapsedrefractory-cll —Dennis, 71, Ibrutinib
http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-
rituximab
-improves-survival-relapsedrefractory-cll —Dennis, 71, Ibrutinib
Fant1924
in
CLL Support
6 years ago
Biosimilars compared with rituximab
My next infusion will be Truxima, a biosimilar for
Rituximab
. Has anyone noticed any difference when changed to Truxima?
My next infusion will be Truxima, a biosimilar for
Rituximab
. Has anyone noticed any difference when changed to Truxima?
amms43
in
Vasculitis UK
6 years ago
The unspeakable bowel issues after chemo..... Do you ever get back to normal? From Beth, Nic, Del, and sue... And Maria
So in our very random chats with a number of friends on HU, we got talking about the issue of our bowels which just haven't returned to normal after chemo.. Fcr to be specific. So.. 1. Very loose..... 2. When you have to go, YOU HAVE TO GO! 3. YOU GO MORE... UP TO 5 TIMES A DAY! 4.COLOUR RANGE.
So in our very random chats with a number of friends on HU, we got talking about the issue of our bowels which just haven't returned to normal after chemo.. Fcr to be specific. So.. 1. Very loose..... 2. When you have to go, YOU HAVE TO GO! 3. YOU GO MORE... UP TO 5 TIMES A DAY! 4.COLOUR RANGE.
Bethan49
in
CLL Support
6 years ago
Help with drug choice please - rituximab or methotrexate?
Has anyone got any advice as to which to go for please or anyone had a hypersensitivy reaction to MMF/ AZA then been ok with methotrexate or
rituximab
?
Has anyone got any advice as to which to go for please or anyone had a hypersensitivy reaction to MMF/ AZA then been ok with methotrexate or
rituximab
?
Melba1
in
LUPUS UK
6 years ago
Rituximab
I just came across this study. May be a good conversation to have with one's doctor....http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0190425&utm_content=buffer1327d&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
I just came across this study. May be a good conversation to have with one's doctor....http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0190425&utm_content=buffer1327d&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
arcr
in
PMRGCAuk
6 years ago
Ongoing post re Rituximab infusions
Hi everyone Just a quick update following my first cycle of
Rituximab
infusions in December. As I said on my last post the 2 infusions went pretty well and I had no side affects apart from extreme tiredness on the days I had the infusions.
Hi everyone Just a quick update following my first cycle of
Rituximab
infusions in December. As I said on my last post the 2 infusions went pretty well and I had no side affects apart from extreme tiredness on the days I had the infusions.
Bakbre
in
LUPUS UK
6 years ago
Has my daughter got cerebral vasculitis? Google 'Girl with mystery illness' photos & illness description were in newspapers Nov 2016
Vicky's had antibiotics, steroids, immunoglobulin, plasmatherasis,
rituximab
and been on Mycophenolate Mofetil since Oct 17, with methlprednisolo intravenous steroids last week, the rash is not disappearing, however, speech has improved, consultants are not sure what to do next.
Vicky's had antibiotics, steroids, immunoglobulin, plasmatherasis,
rituximab
and been on Mycophenolate Mofetil since Oct 17, with methlprednisolo intravenous steroids last week, the rash is not disappearing, however, speech has improved, consultants are not sure what to do next.
Vickysmum
in
Vasculitis UK
6 years ago
Second Rituximab Infusion
Hi, after my last post I was seen by my consultant last Thursday and the second MRI results were pretty much identical to the first MRI. So it was decided I have a neck ultrasound to have a closer look at my carotid artery. I had the ultrasound done yesterday morning and the sonologist said there was
Hi, after my last post I was seen by my consultant last Thursday and the second MRI results were pretty much identical to the first MRI. So it was decided I have a neck ultrasound to have a closer look at my carotid artery. I had the ultrasound done yesterday morning and the sonologist said there was
Vo321
in
Vasculitis UK
6 years ago
First-Line Rituximab Bests Other MS Drugs in Sweden
First-Line
Rituximab
Bests Other MS Drugs in Sweden Click https://www.medpagetoday.com/neurology/multiplesclerosis/70393 for the full story:
First-Line
Rituximab
Bests Other MS Drugs in Sweden Click https://www.medpagetoday.com/neurology/multiplesclerosis/70393 for the full story:
erash
in
My MSAA Community
6 years ago
Newbie with questions
Had chemo (
rituximab
/floudarabine) in 2010. Now on Acalabrutinib at an NIH protocol. I'm into my fourth month (200 mg every morning since November 5, 2017).
Had chemo (
rituximab
/floudarabine) in 2010. Now on Acalabrutinib at an NIH protocol. I'm into my fourth month (200 mg every morning since November 5, 2017).
sundancing
in
CLL Support
6 years ago
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