So in our very random chats with a number of friends on HU, we got talking about the issue of our bowels which just haven't returned to normal after chemo.. Fcr to be specific. So..
1. Very loose.....
2. When you have to go, YOU HAVE TO GO!
3. YOU GO MORE... UP TO 5 TIMES A DAY!
4.COLOUR RANGE.. A BROAD SPECTRUM... AUTUMNAL COLOURS!
5. NO WEIGHT LOSS DESPITE MORE COMING OUT OF BODY THAN PUTTING IN!
Other issues to add not linked to bowels are :
Nails splitting.. Brittle and discoloured
Nic says that she aches all over too...
What a bunch we are... It's getting used to our new normal! Otherwise fandabydozy... Apart from shares in Andrex!! 66
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Bethan49
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Sorry about the bowels. That would be the old normal for me being a long term suffer of Irritable bowel syndrome (IBS). I know exactly how you feel your describe it well and colourfully.
I have started FLAIR on Ibrutinib and rituximab arm. So far so good.
I am so please to hear that other than the bowels which you will get used to or even recover from that all is going well.
Mine are exactly the same and I am 5 years post FCR!! I recently contracted a stomach bug and that has really taken it's toll. It's taken over 2 weeks to clear and I only started eating normally again two days ago. The worst part is that I only lost a couple of pounds!!!
Sorry you've had trouble too! Although I joke about stuff like this, it's a different thing altogether talking about it seriously. I couldn't even take Matt to football this morning. I've had it on and off for weeks but it's bad now. I just googled my symptoms but Dr Del just told me to stop it. I wish I hadn't cancelled my GP appointment last Friday. I'll have to wait weeks for another. None of what's wrong is a big deal but added together I feel cr@p, literally!
And what gets me is this is the heaviest I've ever been in my life. If I was a 🐝 I'd doubt there would be any take off...I'd have to walk up to the flower and smack the stalk with my booty to get the pollen.
Fortunately we can joke amongst ourselves about this Nic and all but it’s not remotely funny when it starts limiting our activities. I had a long episode of this after having my gallbladder out so share your pain!
Does this happen with Ibrutinib too? I hear in the beginning of treatment this may be an issue, but don't know (on average) how long it lasts. Just about ready to start my meds. Carole
First I'd go for all the recommended tests to be sure.
I had problems before FCR and you are familiar with the rest. As result now I take Psyllium 3 times a day, otherwise I really wouldnt be very functional. I do have long term concerns.
Don't be depressed... Treatment can give you a new lease of life... Actually.. Not can but WILL! We can cope with a bit of bowel stuff if we can cope with cll. Not everyone feels like us... We're probably wimps. Keep your chin up x
I thought it was just me, sorry to hear of others suffering. My bowels were sort of normal while having chemo but have taken on a life of their own since I finished the course and yes 4-5 times a day seems to now be the norm unfortunately. More embarrassing is the wind that seems to happen at the most inappropriate times, like on the treadmill at the gym! I expected some change as i’ve been eating lots more veg and fruit but not to this extent. No other symptoms to suggest an infection, hopefully all will revert to normal in time, in the meantime i’m going to audition for the wind section of the London Philharmonic, all good fun!
I’m sitting here tittering away to myself, I reckon if we were all in a room together we could strike up the National Anthem! Whoops, time to dash haha
Saw the doc. Blood tests for diabetes, under active thyroid and vitamins or whatever. Plus I need to take in a sample of the unspeakable stuff. I had to present to the directors at work yesterday and so I wasn't the first person to 'literally' sh1t themselves as well as metaphorically, I took so many immoudium I'm unlikely to want to go again until 2019. If my sample is clear I'm heading for a camera job in an area that has so far avoided a medical visit. Back for results on the 10th. My GP was very nice. I wrote it all down because I waffle like hell normally.
this is a reply to all, very funny posts, although if we didn't laugh because of this bowely stuff, I reckon we would cry, this morning, just was talking on the phone, when I had to "run" unfortunately, didn't make it, everything had to go in the wash including me, then to add to my fun, both the washing machine and downstairs loo decided to pack up at the same time, do I cry, scream, or just carryon, my FCR finished over two years ago, couldn't take the R part of treatment, very bad reaction, so as they say "Keep Calm and Carry On". Wish you and me all well.
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