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dental work while on V + O
As a result of the issues below, it looks like my only strictly dental salvage is 1. Having 3 molar implants Plus 2. A major bridge reconstruction for my front upper and lower teeth During my FCR in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed
As a result of the issues below, it looks like my only strictly dental salvage is 1. Having 3 molar implants Plus 2. A major bridge reconstruction for my front upper and lower teeth During my FCR in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed
skipro
in
CLL Support
1 year ago
Extreme fatigue with Rituximab and Venetoclax 24-month regimen
I am currently on the
Rituximab
and Venetoclax 24-month regimen scheduled to be completed in mid-August. After ramp up I am continuously on the 400 mg daily dose. All my test results are now within normal range with the exception of IgG 404 mg/dL, IgA 33 mg/dL and IgM <15 mg/dL.
I am currently on the
Rituximab
and Venetoclax 24-month regimen scheduled to be completed in mid-August. After ramp up I am continuously on the 400 mg daily dose. All my test results are now within normal range with the exception of IgG 404 mg/dL, IgA 33 mg/dL and IgM <15 mg/dL.
RamsesII
in
CLL Support
1 year ago
CAR T-cell Therapy Drives Disease Remission For 5 SLE Patients
Medications that target the CD20 protein on B-cells, such as
rituximab
, are sometimes used for SLE but have shown limited efficacy, especially for people with more severe disease.
Medications that target the CD20 protein on B-cells, such as
rituximab
, are sometimes used for SLE but have shown limited efficacy, especially for people with more severe disease.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
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Co Trimoxazole
My consultant has said that by December we will start steroid reduction & cease
rituximab
but carry on with the co Trimoxazole. Although i am excited to start reducing the steroids I am also worried about flaring.
My consultant has said that by December we will start steroid reduction & cease
rituximab
but carry on with the co Trimoxazole. Although i am excited to start reducing the steroids I am also worried about flaring.
juli-pa
in
Vasculitis UK
2 years ago
Concise summary of the treatment history of CLL from the 1950s to the present, by Dr Bruce Cheson, contributor to the iwCLL and much more
It took until the early 90's before Fludarabine, the 'F' in FCR joined, then
Rituximab
(the 'R') just over 20 years ago, started the long reign of FCR as the gold standard, a title it still holds in far too many countries.
It took until the early 90's before Fludarabine, the 'F' in FCR joined, then
Rituximab
(the 'R') just over 20 years ago, started the long reign of FCR as the gold standard, a title it still holds in far too many countries.
AussieNeil
Partner
in
CLL Support
2 years ago
An injection of iloprost and rituximab for systemic sclerosis Raynaud's phenomenon
Has anyone received an injection of iloprost and
rituximab
? After it is received, is there any improvement noticed? Also does insurance cover these 2 medicine?
Has anyone received an injection of iloprost and
rituximab
? After it is received, is there any improvement noticed? Also does insurance cover these 2 medicine?
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
sleepy
Can I ask if anyone gets really sleepy when the
Rituximab
is due? My partner is having his next week and for the past couple of weeks he’s slept most of the day. Just wondering if it’s to do with this. Thanks for taking the time to read this x
Can I ask if anyone gets really sleepy when the
Rituximab
is due? My partner is having his next week and for the past couple of weeks he’s slept most of the day. Just wondering if it’s to do with this. Thanks for taking the time to read this x
Dot1958
in
Vasculitis UK
2 years ago
Unexpected remission - Maybe it will help (even one person)
I have had prednisone, IVIG (a lot) finally
Rituximab
nothing seemed to help and Ritux was deemed a failure. Also a few nasty Dexmethsone pulses. Fast forward I got Covid recovered ok then got very sick again soo short of breath almost passing out.
I have had prednisone, IVIG (a lot) finally
Rituximab
nothing seemed to help and Ritux was deemed a failure. Also a few nasty Dexmethsone pulses. Fast forward I got Covid recovered ok then got very sick again soo short of breath almost passing out.
Loftyc
in
ITP Support Association
2 years ago
Severe Thigh Pain
I was diagnosed for CLL 12 months ago and had 6 courses of FCR Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period. Is it normal to
I was diagnosed for CLL 12 months ago and had 6 courses of FCR Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period. Is it normal to
Hrdy
in
CLL Support
1 year ago
Too many investigations making me anxious. How to tackle this with GP
I have regular blood tests for my RA medication (
rituximab
). When they throw up small anomalies the GP does a follow up test. This has got worse since September so that I've had almost fortnightly tests and phone calls to debrief. i've reached the point where this is undermining my self confidence.
I have regular blood tests for my RA medication (
rituximab
). When they throw up small anomalies the GP does a follow up test. This has got worse since September so that I've had almost fortnightly tests and phone calls to debrief. i've reached the point where this is undermining my self confidence.
cathie
in
NRAS
1 year ago
Rituxmab
Rhemuy wants to stop orencia and start
rituximab
. I'm wondering if you guys can talk about your experience with the Rituximab.I know everyone's experiences are different on different biologics. I'm also wondering why I wasn't tried on Imuran. I'm seronegative RA.
Rhemuy wants to stop orencia and start
rituximab
. I'm wondering if you guys can talk about your experience with the Rituximab.I know everyone's experiences are different on different biologics. I'm also wondering why I wasn't tried on Imuran. I'm seronegative RA.
Avi2013
in
NRAS
2 years ago
Immunoglobulin substitution in patients with secondary antibody deficiency in chronic lymphocytic leukemia and multiple myeloma...
In contrast to other studies [32], no increased risk for CLL patients treated with CD20 antibodies such as
rituximab
and subsequent hypogammaglobulinemia could be measured in this study.
In contrast to other studies [32], no increased risk for CLL patients treated with CD20 antibodies such as
rituximab
and subsequent hypogammaglobulinemia could be measured in this study.
Yalokin
in
CLL Support
2 years ago
Good news and Bad news?
So do I start treatment - likely A only, A&V, or V&G, or A&O, or O&V (Gazyva is not recommended if platelets are less than 70K) - or do I try to deal with platelets with
Rituximab
, prednisone and IVIG and possibly Dexamethazone and kick the can down the road again on W&W, or PROMACTA or simply try some
So do I start treatment - likely A only, A&V, or V&G, or A&O, or O&V (Gazyva is not recommended if platelets are less than 70K) - or do I try to deal with platelets with
Rituximab
, prednisone and IVIG and possibly Dexamethazone and kick the can down the road again on W&W, or PROMACTA or simply try some
bertie260
in
CLL Support
2 years ago
Flu jab
I am on
Rituximab
. I took a blood test to test if the Covid injections worked for me and it showed a negligible immunity. I just wondered if anyone on Ritux had tested whether the flu jab had given any immunity. I am thinking not. I do have all these vaccines anyway.
I am on
Rituximab
. I took a blood test to test if the Covid injections worked for me and it showed a negligible immunity. I just wondered if anyone on Ritux had tested whether the flu jab had given any immunity. I am thinking not. I do have all these vaccines anyway.
Evie3
in
NRAS
2 years ago
Covid testing PCR or LFT tests
Fortunately he has not had to use either, however should he need to, as he recently had
Rituximab
for the first time so his immune system is zilch, should he use the PCR or the LFT tests ? Thanks
Fortunately he has not had to use either, however should he need to, as he recently had
Rituximab
for the first time so his immune system is zilch, should he use the PCR or the LFT tests ? Thanks
sunshineday
in
Lung Conditions Community Forum
2 years ago
V + O adverse affects
To anyone who has been treated with V +O, could you answer a few questions for me as I have just started? I am relapsed after FCR, have enlarged spleen (2-3 fold normal) ALC of 200,000, Hbg of 12.1 and platelets of 105,000 and EXTREME fatigue before starting treatment. After test dose of 100 mg of
To anyone who has been treated with V +O, could you answer a few questions for me as I have just started? I am relapsed after FCR, have enlarged spleen (2-3 fold normal) ALC of 200,000, Hbg of 12.1 and platelets of 105,000 and EXTREME fatigue before starting treatment. After test dose of 100 mg of
skipro
in
CLL Support
1 year ago
CoVid 19 and CLL
Fall of 2019 I had a near fatal fungal infection that started in the ear then was invading the inner table of my mastoid nearly breaking through to brain. 2 years later, June 2020 CLL relapsed in the midst of Covid pandemic snd my docs told me that due to the relapse, low IgG, prior treatment with
Rituximab
Fall of 2019 I had a near fatal fungal infection that started in the ear then was invading the inner table of my mastoid nearly breaking through to brain. 2 years later, June 2020 CLL relapsed in the midst of Covid pandemic snd my docs told me that due to the relapse, low IgG, prior treatment with
Rituximab
skipro
in
CLL Support
2 years ago
POST-HERPETIC NEURALGIA
This went reasonably well and I then went 4 years before it was decided that I would need the next round of treatment (Venetoclax and
Rituximab
). This was October 2021.
This went reasonably well and I then went 4 years before it was decided that I would need the next round of treatment (Venetoclax and
Rituximab
). This was October 2021.
OWLS26
in
CLL Support
1 year ago
Rituximab covid paxlovid etc...
Last
rituximab
infusion was 6/22 (two total). Question: Should discontinuing methotrexate be considered at this point? It has been 2 weeks since the last dose. It did not reduce joint/muscle pain at all and was ineffective in reducing "bad levels" in labs after 7 months (these levels increased).
Last
rituximab
infusion was 6/22 (two total). Question: Should discontinuing methotrexate be considered at this point? It has been 2 weeks since the last dose. It did not reduce joint/muscle pain at all and was ineffective in reducing "bad levels" in labs after 7 months (these levels increased).
irishponies
in
Vasculitis UK
2 years ago
CLL symptoms and Obin reactions
Hi I was diagnosed with CLL 12 years ago while doing evaluations for worsening muscle pain for 10 years My oncologists say and I’ve never found any literature about any correlation between CLL and muscle pain. What do any group members know about it Next I remember feeling sick and have spleen
Hi I was diagnosed with CLL 12 years ago while doing evaluations for worsening muscle pain for 10 years My oncologists say and I’ve never found any literature about any correlation between CLL and muscle pain. What do any group members know about it Next I remember feeling sick and have spleen
skipro
in
CLL Support
1 year ago
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