Rituximab treatment

[Anniw]

Hi everyone

So my rheumatologist started me on Rituximab and it has me feeling so exhausted. I also found that I am having a bit of a palpitation too with this second dose and a cough occasionally.

Can anyone tell how long it would last if they have had any of these symptoms

[Rescue5]

Anniw, I had Rituximab transfusions quite recently. I did find myself feeling "very" tired for a few days following the infusions.

I have felt to slightly lesser degree the tiredness has continued. I'm not sure whether this is normal or not. I haven't compared notes with A N Other regarding Rituximab.

It's possible the Rituximab has caused the tiredness.

It's possible I would have experienced the tiredness anyway, due to the Systemic Sclerosis symptoms stepping up.

Hope you get through these symptoms.

If they persist and you're not completely happy I would advise reporting back to the rheumatology team.

Hope this helps.

Kind regards.

[Anniw in reply to Rescue5]

Thanks for your reply. Yes I am wondering if it’s apart of the treatment response. I did feel tired the first time around but the second one I was more tired. I did message my rheumatologist secretary but will call again.

[OldTed60]

Hi. I had my first infusions September -October last year. I had a mild allergic reaction next day to the first one so stayed over after the second - but was fine. For the next few days I felt amazing but then came down with a bit of a bump so I’m guessing the immediate energy boost was due to the steroid infusions that give us first. I did seen to have more energy and felt better for a while but now it’s worn off and I’m not feeling great. I’m getting my next round next month. I’d report any new or worsening symptoms to your rheumatology team.

[Jaq1971]

Hey I too had Rituximab in October and I’m due to have next lot in May I felt tired for the first two days and a bit sick but then by 3 rd week I felt amazing, it only lasted for 3.5 months for me but I’m willing to take that as managed to enjoy Christmas with my family I would say the same as the others any concerns speak to your doctor unfortunately with this disease they can only reduce symptoms if it’s not right for you maybe other options available good luck x