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Experiences with
Rituxan
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Dealing with Insurance companies is exhausting!
Humira, Orencia and now
Rituxan
. I have had ulcers, rashes, Pityriasis, gastric issues and worst of all Migraines. They are without question the worst. Then to top the cake, today I get a letter asking me to pay premiums on disabilty! WHAT!
Humira, Orencia and now
Rituxan
. I have had ulcers, rashes, Pityriasis, gastric issues and worst of all Migraines. They are without question the worst. Then to top the cake, today I get a letter asking me to pay premiums on disabilty! WHAT!
Damaged
in
Arthritis Action
7 years ago
RA Vs. Cancer. Looking for help or advice.
On Aug 1 2016 I was put on
RITUXAN
. I found out later it had Methotrexate in it. Feb 22 2017 I found out that I had Metastasize Melanoma in my lower left lung. I just had surgery on April 12, . I was told that I would have surgery and lots of scans. I now find out that I have to go on something.
On Aug 1 2016 I was put on
RITUXAN
. I found out later it had Methotrexate in it. Feb 22 2017 I found out that I had Metastasize Melanoma in my lower left lung. I just had surgery on April 12, . I was told that I would have surgery and lots of scans. I now find out that I have to go on something.
Danna
in
NRAS
7 years ago
All about Kay in France
Last year, after discovering that the bones in my right wrist were fussed (therefore other treatments weren't working) was put on
Rituxan
(by infusion in a clinic every 6 months). Apart from feeling exhausted all the time, everything is going well but can't wait for the sun to shine this year!
Last year, after discovering that the bones in my right wrist were fussed (therefore other treatments weren't working) was put on
Rituxan
(by infusion in a clinic every 6 months). Apart from feeling exhausted all the time, everything is going well but can't wait for the sun to shine this year!
KayEP
in
NRAS
7 years ago
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No Rituxan for me
What other meds can be taken instead of
Rituxan
? Ibreally want to get better soon and not have my MCTD progress in my lungs anymore.
What other meds can be taken instead of
Rituxan
? Ibreally want to get better soon and not have my MCTD progress in my lungs anymore.
Jaylowdancer
in
LUPUS UK
7 years ago
Convo with my neurologist about Ocrevus.
He further said since it's similar in mechanism to
Rituxan
, it will likely be a similar risk which is far lower than the risk with Tysabri. I read through the Ocrevus for RRMS guide he gave me. It mentions both the PML risk and the cancer risk.
He further said since it's similar in mechanism to
Rituxan
, it will likely be a similar risk which is far lower than the risk with Tysabri. I read through the Ocrevus for RRMS guide he gave me. It mentions both the PML risk and the cancer risk.
Raingrrl
in
My MSAA Community
7 years ago
More cautionary info about Ocrevus
I wanted to share this post from one of my favorite MS blogs in case anyone else is considering using Ocrevus. http://www.wheelchairkamikaze.com/2017/04/ocrevus-former-genentech-researcher.html Be sure to also read the article he refers to by the researcher that had worked on both
Rituxan
and Ocrevus
I wanted to share this post from one of my favorite MS blogs in case anyone else is considering using Ocrevus. http://www.wheelchairkamikaze.com/2017/04/ocrevus-former-genentech-researcher.html Be sure to also read the article he refers to by the researcher that had worked on both
Rituxan
and Ocrevus
Raingrrl
in
My MSAA Community
7 years ago
Unstable INR, Rashing Accompanying Migraines, and Hematologist considering Rituxan or Cytoxan- Reasonable?
Question: the hematologist who is investigating my son is suggesting suppressing the immune system with either
Rituxan
or cytoxan? He thinks
Rituxan
. (He saw my rash yesterday when I brought my son in for testing and was shocked at my rash.
Question: the hematologist who is investigating my son is suggesting suppressing the immune system with either
Rituxan
or cytoxan? He thinks
Rituxan
. (He saw my rash yesterday when I brought my son in for testing and was shocked at my rash.
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
7 years ago
Aggressive B Cell then Marginal Zone
I had 6 weekly
Rituxan
, then one every other month for one year. I have a PET Scan on Friday and see doct5on Monday. Has anyone had the Aggressive first?
I had 6 weekly
Rituxan
, then one every other month for one year. I have a PET Scan on Friday and see doct5on Monday. Has anyone had the Aggressive first?
dbalthrop
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bendamustine/Rituxan
My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine and
Rituxan
for six months in the near future. (two consecutive days a month) Being single and living far from family has me a little concerned as to how I will deal with this chemo.
My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine and
Rituxan
for six months in the near future. (two consecutive days a month) Being single and living far from family has me a little concerned as to how I will deal with this chemo.
mejiae
in
CLL Support
7 years ago
Cycles of illness are exhausting!
I am scheduled for
Rituxan
in June. It frightens me that my condition can change so radically from one day to the next. In fact there can at times be significant difference throughout the day. I need to look up research on Fragile Syndrome.
I am scheduled for
Rituxan
in June. It frightens me that my condition can change so radically from one day to the next. In fact there can at times be significant difference throughout the day. I need to look up research on Fragile Syndrome.
Damaged
in
NRAS
7 years ago
Shingles again?
Was on
Rituxan
and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her immunity is very low.
Was on
Rituxan
and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her immunity is very low.
J-123
in
CLL Support
7 years ago
Looking for words of wisdom !
I am due for
Rituxan
in June. It has not changed anything so far. No improvement but no side effects , so far. I know she wants to treat Lymphoma, however, mine is Tclonal not Bclonal. I do not see how it will affect it. The other issue is MTX. I discontinued in Dec.
I am due for
Rituxan
in June. It has not changed anything so far. No improvement but no side effects , so far. I know she wants to treat Lymphoma, however, mine is Tclonal not Bclonal. I do not see how it will affect it. The other issue is MTX. I discontinued in Dec.
Damaged
in
NRAS
7 years ago
Do you have experience with rituxan infusions?
I have had
rituxan
infusions for my RA and MS for about two years. I used to be very tired after infusion 1 of 2 and sleep the remainder of the day. Two days agoI had a day 1 infusion. It was reduced to only being 3 hours (used to be close to 5). Today I am totally out of gas.
I have had
rituxan
infusions for my RA and MS for about two years. I used to be very tired after infusion 1 of 2 and sleep the remainder of the day. Two days agoI had a day 1 infusion. It was reduced to only being 3 hours (used to be close to 5). Today I am totally out of gas.
Multijo
in
Cure Arthritis Community
7 years ago
Rituxan (Rituximab) round two three for and five
Yesterday I had a call from my Rheumatologist to advise that the treat meant has not had the desired effect at all and perhaps we should think about retrying the
Rituxan
again in smaller doses over a number of appointments. Has anyone else tried this or even had a reaction to
Rituxan
???
Yesterday I had a call from my Rheumatologist to advise that the treat meant has not had the desired effect at all and perhaps we should think about retrying the
Rituxan
again in smaller doses over a number of appointments. Has anyone else tried this or even had a reaction to
Rituxan
???
wotshernameagain
in
LUPUS UK
7 years ago
Eye twitch
I do still have
Rituxan
in my body. It is exhausting. I get such a strange array of symptoms. I never know what is illnesses and what is drug effects. I had a good day yesterday. I managed to clean bathrooms, kitchen and windows Wow. Paying for it today lol. My husband is not a housekeeper or cook.
I do still have
Rituxan
in my body. It is exhausting. I get such a strange array of symptoms. I never know what is illnesses and what is drug effects. I had a good day yesterday. I managed to clean bathrooms, kitchen and windows Wow. Paying for it today lol. My husband is not a housekeeper or cook.
Damaged
in
NRAS
7 years ago
Living in fear of what is to come
Since July 2015 I have tried all the following drugs: Prednisone, Methotrexate, paquenil, Lefludimide, Pregabalin, Humira, Orencia,
Rituxan
, Bisoprolol, to name a few..I was on so many I have forgotten. My body has not responded well to any drug. Also an endless line of opiates.
Since July 2015 I have tried all the following drugs: Prednisone, Methotrexate, paquenil, Lefludimide, Pregabalin, Humira, Orencia,
Rituxan
, Bisoprolol, to name a few..I was on so many I have forgotten. My body has not responded well to any drug. Also an endless line of opiates.
Damaged
in
NRAS
7 years ago
Hi! I'm new.
I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a
Rituxan
regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as mine? I would appreciate your feedback. Thanks!
I had R-CHOP in the beginning, Bendamustine and VinChristine 8 years ago, and am on a
Rituxan
regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as mine? I would appreciate your feedback. Thanks!
MsMindy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Hello
Doing
Rituxan
.
Doing
Rituxan
.
cnichols
in
My MSAA Community
7 years ago
Zydelig (idelalisib) first line... NO!
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with
rituxan
. I direct you to the newly revised drug label, which states...
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with
rituxan
. I direct you to the newly revised drug label, which states...
Cllcanada
Top Poster CURE Hero
in
CLL Support
7 years ago
My experience with NHL
I am followed with
Rituxan
every three months for prevention . I am seventy five years old and was diagnosed in 2012 with Follicular,non-Hodgkin, Lymphoma, grade three. I took
Rituxan
x one day & Bendamustinr x two days monthly . Also Neutropenia on Neulasta.
I am followed with
Rituxan
every three months for prevention . I am seventy five years old and was diagnosed in 2012 with Follicular,non-Hodgkin, Lymphoma, grade three. I took
Rituxan
x one day & Bendamustinr x two days monthly . Also Neutropenia on Neulasta.
R615-r1122_
in
Non Hodgkin's Lymphoma Friends
7 years ago
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