Non Hodgkin's Lymphoma Friends

My experience with NHL

Hello Everyone , my name is Rose

And I have NHL , and have been in remission since July 2016 .

I am followed with Rituxan every three months for prevention .

I am seventy five years old and was diagnosed in 2012 with Follicular,non-Hodgkin, Lymphoma,

grade three.

I took Rituxan x one day & Bendamustinr x two days monthly . Also Neutropenia on Neulasta.

I did every thing after chemo that I did before ,

I walked four miles every day and worked .thank God and my oncologist !!

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Well done, Rose. The walking is great for getting the circulation going and oxyqen into your lungs. Everything that we can do for ourselves helps keep us well for longer. I am 61 with FL as well and walk and swim daily.

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Yes, I strongly believe exercise , water and diet keeps me in great shape.

I have PET scan the 19th and believing I am still cancer free .

I am in my third month after return of colon cancer.. Surgery was resection and Lymph nodes removed . No more cancer !!

Thank you for your reply , and stay well ..

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Sharon what is your story...when were your first diagnosed, what stage etc?

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Josie2rulrs, I discovered node in my neck in April 2014;GP not concerned; went to my dentist to check whether dental infection was causing it, which it wasn't; he referred me to a maxillofacial surgeon who removed it and was diagnosed Sept 2014. Referred on to oncologist who sent me for a PET Scan and bone marrow sample. The bone marrow result was unclear so had to be redone a fortnight later - thank God came back ok. Was offered radiotherapy for node but refused and went on w&w. Have since developed another node also neck but it has not progressed to date. I attend oncologist every few months for blood tests and examination. So far so good - that's it in brief.

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similar to me...except I had one node removed.

no treatment just W&W, since July 2015..

scan and bone marrow was clear...I m stage 1 grade 1...

feel grateful at this point for such a manageable disease...hopefully it will stay this way.

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Hi Rose, I love the part "thank God and my oncologist". I'm sure we're not alone with this thought. I credit my oncologist for going on two years of near normal life because he found me a program for zydelig. God gets credit for putting it all together, including the scientists who created the stuff.

Dave

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Congratulations to you! My treatment was in 2010..I am just starting to come alive again. Moving on. I am so happy you did so well!

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Best wishes and healing thoughts.

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Rose, I'd like to talk with you personally. It seems I have the same situation. Have not had chemo yet...just bone marrow biopsy in December , 2016. Waiting for Feb. 2017 visit at Cancer Centre for results and more blood work. I can give you my e-mail if you answer and wish to discuss, Thanks, Sandy

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Hello Sandy_mouse,

I will be happy to speak with you .

We are all fighting the same disease.

I will go Thursday for consult after CAT Scan , still believing I am in remission .

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Thank you....contact me and I'll call you...We have an unlimited calling plan with Rogers! I hope you are in remission.....

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You were lucky Rose. I began losing my energy at 74 in 2015 with NHL. I went through 2 1/2 years of Leukeran then Rituxin with no results. Imbruvica had now taken all of my blood counts to normal. I am not considering this to be remission - I consider it as managed. As I understand it the NHL will always be there so the continued follow-ups are ongoing. I am curious to see what dosage if any of the Imbruvica now that the lymph nodes are of normal size. js in Pa.

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