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Richter's syndrome
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Cannabis and Restless Leg
Hi all, I was told recently that cannabis, in whichever form you choose, may be helpful in relieving restless leg. Do any of you try this with any success? I had a weed cookie last night, very low dose, and it SEEMED to help, but I had only reduced my Mirapexin, not refrained completely, so I'm not
Hi all, I was told recently that cannabis, in whichever form you choose, may be helpful in relieving restless leg. Do any of you try this with any success? I had a weed cookie last night, very low dose, and it SEEMED to help, but I had only reduced my Mirapexin, not refrained completely, so I'm not
Farmgurl1
in
Restless Legs Syndrome
1 year ago
RLS-UK New Film - Ropinirole/Pramipexole/Neupro Patch
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
Kaarina
Administrator
in
Restless Legs Syndrome
1 year ago
Could my son have Ehlers-Danlos? Who to ask about diagnosis?
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
CN4321
in
Ehlers-Danlos Support UK
1 year ago
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finished Neupro taper and looking for guidance on increasing my Gabapentin dosage
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
Discopage
in
Restless Legs Syndrome
1 year ago
This might be found useful?
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
Dedou
in
Restless Legs Syndrome
1 year ago
Lyrica pregabalin
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
tagaxel
in
Restless Legs Syndrome
1 year ago
Aids post knee replacement
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
greynot
in
NRAS
1 year ago
restless legs
I suffer terribly with pain in my legs,the only med that helps my rls is morphine.
I suffer terribly with pain in my legs,the only med that helps my rls is morphine.
Horsham
in
Restless Legs Syndrome
1 year ago
Gabapentin and Dihydrocodeine
Hello, does anyone have experience in taking Gabapentin with Dihydrocodeine? I was on 5 x Gabapentin 300mg per day (1 in the morning and 4 at night). Gabapentin had worked well for me, but then I was waking with an attack of RLS at around 4am every morning. It usually took about an hour at least to
Hello, does anyone have experience in taking Gabapentin with Dihydrocodeine? I was on 5 x Gabapentin 300mg per day (1 in the morning and 4 at night). Gabapentin had worked well for me, but then I was waking with an attack of RLS at around 4am every morning. It usually took about an hour at least to
HelenJS
in
Restless Legs Syndrome
1 year ago
Tramadol and Gabapentin?
My RLS hasvirtually disappeared with 50/100mgs of Tramadol, but l still have difficulty getting of to sleep. In fact the longer l lie in bed unable to sleep, the. more likely my RLS comes back. I have been taking Gabapentin 300mgs 30 mins before going to bed and this has solved the problem. I’m 67
My RLS hasvirtually disappeared with 50/100mgs of Tramadol, but l still have difficulty getting of to sleep. In fact the longer l lie in bed unable to sleep, the. more likely my RLS comes back. I have been taking Gabapentin 300mgs 30 mins before going to bed and this has solved the problem. I’m 67
Springfiel1
in
Restless Legs Syndrome
1 year ago
Weaning off high dose Pramipexole
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
lessergoldfinch
in
Restless Legs Syndrome
1 year ago
Going off Horizont help
The 600mg Horizont started causing the same alerting that the pregabalin and gabapentin had so my very understanding primary care doctor suggested clonodine. Started last night, while staying on the 600mg Horizont and had a good night, so the plan was to reduce the Horizont to 300mg for 4 days and then
The 600mg Horizont started causing the same alerting that the pregabalin and gabapentin had so my very understanding primary care doctor suggested clonodine. Started last night, while staying on the 600mg Horizont and had a good night, so the plan was to reduce the Horizont to 300mg for 4 days and then
wantokporo
in
Restless Legs Syndrome
1 year ago
Oxycodone
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Hello everyone & especially Sue & Jules. I have now had 4 blissful months sleep on 10mg of Oxycodone.I have now successfully reduced my gabapentin from 2,100 to 1,500mg. But am now starting to get one breakthrough session of rls a night & am worried it will get worse. Should I stop reducing the gabapentin
Simkin
in
Restless Legs Syndrome
1 year ago
22pagents22
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
22pagets22
in
Fibromyalgia Action UK
1 year ago
Hypothetical question re Pramipexole
Just hypothetically. if I had no symptoms of RLS at age 50 what is the probability of my developing the disease at age 60 or 70? If at age 50 with no symptoms I started to take a regular dose of pramipexole for some other reason what is the probability having a reaction that would appear to fit
Just hypothetically. if I had no symptoms of RLS at age 50 what is the probability of my developing the disease at age 60 or 70? If at age 50 with no symptoms I started to take a regular dose of pramipexole for some other reason what is the probability having a reaction that would appear to fit
Graham3196
in
Restless Legs Syndrome
1 year ago
magnesium
I’ve been a RLS sufferer since 2006. I am on (4 x 1mg) and Gabapentin (7 x 300mg) daily. I fully sympathise with anyone who suffers from this debilitating condition. There have been times I’ve not wanted to be here. There is only so much you can cope with! Recently I heard that Magnesium was good for
I’ve been a RLS sufferer since 2006. I am on (4 x 1mg) and Gabapentin (7 x 300mg) daily. I fully sympathise with anyone who suffers from this debilitating condition. There have been times I’ve not wanted to be here. There is only so much you can cope with! Recently I heard that Magnesium was good for
RLSKaren
in
Restless Legs Syndrome
1 year ago
Ropinirole reduction
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the majority of this time. I am now suffer with augmentation, there is never the right time to wean yourself off, but know I just have to do it before
21years
in
Restless Legs Syndrome
1 year ago
A wonderful GP
I started seeing a new GP who started work in my local GP practice just before covid and she has been Marvellous, she's from South Africa and really listens to me and I've told her about the advice I've been getting here and she said that she is going to look further into buprenorphine being used here
I started seeing a new GP who started work in my local GP practice just before covid and she has been Marvellous, she's from South Africa and really listens to me and I've told her about the advice I've been getting here and she said that she is going to look further into buprenorphine being used here
Loopylegs
in
Restless Legs Syndrome
1 year ago
HELP PLEASE
HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropinirole and am now down to 1.5 mg. from the original 4 mg. per day. I was in hospital for 2 1/2 days on May2nd for successful bowel cancer surgery and this did not worsen my RLS. However I returned home yesterday after a further
HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropinirole and am now down to 1.5 mg. from the original 4 mg. per day. I was in hospital for 2 1/2 days on May2nd for successful bowel cancer surgery and this did not worsen my RLS. However I returned home yesterday after a further
milly-22
in
Restless Legs Syndrome
1 year ago
Methadone adjustment/Horizant
Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. After years on pregabalin more or less successfully treating my PLMD, it started making me nervous/anxious so I tried Tylenol #2 which made me very nervous and now I am trying the methadone. Years ago I tried 5mg of methadone
Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. After years on pregabalin more or less successfully treating my PLMD, it started making me nervous/anxious so I tried Tylenol #2 which made me very nervous and now I am trying the methadone. Years ago I tried 5mg of methadone
wantokporo
in
Restless Legs Syndrome
1 year ago
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