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Cardiovascular issues
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
winfong
in
PMRGCAuk
6 months ago
Tetanus Vaccine Decreases Incidence of Parkinson’s Disease and Slows Its Progression
Very interesting article: [u]
Tetanus Vaccine Decreases Incidence of Parkinson’s Disease and Slows Its Progression
[/u]
2024
https://www.gilmorehealth.com/tetanus-vaccine-decreases-incidence-of-parkinsons-disease-and-slows-its-progression/ It is based on this paper: [u]
Tetanus vaccination
Very interesting article: [u]
Tetanus Vaccine Decreases Incidence of Parkinson’s Disease and Slows Its Progression
[/u]
2024
https://www.gilmorehealth.com/tetanus-vaccine-decreases-incidence-of-parkinsons-disease-and-slows-its-progression/ It is based on this paper: [u]
Tetanus vaccination
Bolt_Upright
in
Cure Parkinson's
2 months ago
Vestibular Neuritis
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Ipsofacto01
in
Pernicious Anaemia Society
6 months ago
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My first COVID positive test ever came up twice positive
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
Stewie_1968
in
CLL Support
4 months ago
Severely bitter taste when eating & drinking - ?FostairNEXThaler
Wondering if anyone else has experienced a very bitter taste in the mouth - both whilst eating & drinking (& generally too) when taking FostairNEXThaler? I’ve recently been discharged home after another hospital admission (asthma exacerbation secondary to Covid) so the dysguesia may very well be Covid-related
Wondering if anyone else has experienced a very bitter taste in the mouth - both whilst eating & drinking (& generally too) when taking FostairNEXThaler? I’ve recently been discharged home after another hospital admission (asthma exacerbation secondary to Covid) so the dysguesia may very well be Covid-related
Easybreath
in
Asthma Community Forum
6 months ago
Covid vaccine
Hi haven’t been on for a while -all the Healthunlocked notifications going into junk - so not been prompted! Does anyone know when we can get next Covid booster -my lady was 6 months ago. I seem to recall something about a spring booster ? Thank you ! Happy Easter—have a lovely April x
Hi haven’t been on for a while -all the Healthunlocked notifications going into junk - so not been prompted! Does anyone know when we can get next Covid booster -my lady was 6 months ago. I seem to recall something about a spring booster ? Thank you ! Happy Easter—have a lovely April x
Mozart150
in
NRAS
4 months ago
Is this gastritis???
Hello, I'm new to this group. I caught (1st time) covid 19 this past Christmas 2023. It took me 3 weeks to recover. On the tail end I notice I pretty much lost my appetite then my symptoms upper middle abdomen area (diaphragm) daily bloating, fullness, dull pain, nausea, no appetite, shortness of breath
Hello, I'm new to this group. I caught (1st time) covid 19 this past Christmas 2023. It took me 3 weeks to recover. On the tail end I notice I pretty much lost my appetite then my symptoms upper middle abdomen area (diaphragm) daily bloating, fullness, dull pain, nausea, no appetite, shortness of breath
Marc787
in
IBS Network
4 months ago
TINGLY FEET
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Has anyone on here experienced tingly feet during the night after having steroid injections in the knees. I had the injections in both of my knees for arthritis only four days ago. The tingly feeling seems just like having a flare when I need to increase my steroids. It goes as soon as I get up in the
Wallydb
in
PMRGCAuk
4 months ago
13 years on
I was put in an induced coma because of the swine flu. I was that poorly, I still have flash backs now, and the dreams I had are surreal.
I was put in an induced coma because of the swine flu. I was that poorly, I still have flash backs now, and the dreams I had are surreal.
Aioos
in
ICUsteps
1 year ago
Emergency use authorization of a new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222)
Hi, Great news for the immunocompromised community including us. Invivyd announced late last week the emergency use authorization of their new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222). It’s a one-hour infusion and lasts 3 months and based on titers should be effective against
Hi, Great news for the immunocompromised community including us. Invivyd announced late last week the emergency use authorization of their new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222). It’s a one-hour infusion and lasts 3 months and based on titers should be effective against
bkoffman
CLL CURE Hero
in
CLL Support
4 months ago
PV and shingles
Hi. I am on Hydroxyurea unfortunately, since a year ago, one capsule, although I certainly need a second one with my platelets nearing 750. It lowers my immune system, years ago it did the same and I stopped it then. After a terrible cold with persistent cough this winter, that lasted one month, now
Hi. I am on Hydroxyurea unfortunately, since a year ago, one capsule, although I certainly need a second one with my platelets nearing 750. It lowers my immune system, years ago it did the same and I stopped it then. After a terrible cold with persistent cough this winter, that lasted one month, now
Kelly2
in
MPN Voice
1 year ago
Covid and injections
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
prunus
in
PMRGCAuk
4 months ago
mid-year covid vaccine
the CDC has recommended we immuno-suppressed get a second covid vaccine this year. i am getting mine tomorrow, six months after the 2023-24 first dose. What has your experience been with a second shot in a year? I have normally only gotten one but with this advisory, I decided to do. Your thoughts
the CDC has recommended we immuno-suppressed get a second covid vaccine this year. i am getting mine tomorrow, six months after the 2023-24 first dose. What has your experience been with a second shot in a year? I have normally only gotten one but with this advisory, I decided to do. Your thoughts
ElMaga
in
CLL Support
4 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
TiredTavern
in
Myalgic Encephalomyelitis Community
4 months ago
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid?
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Shewulf
Administrator
in
LDN Research Trust
4 months ago
Chondocalcitis incurable?
At least that's how I think it's spelt. It's a specialised form of RA and I have it in my left knee (along with normal RA in shoulders, elbows, wrists and fingers.It's also called Pseudogout but as the crystals in Chondocalcitis are calcium they can't be dispersed as the uric acid crystals in ordinary
At least that's how I think it's spelt. It's a specialised form of RA and I have it in my left knee (along with normal RA in shoulders, elbows, wrists and fingers.It's also called Pseudogout but as the crystals in Chondocalcitis are calcium they can't be dispersed as the uric acid crystals in ordinary
Jeff1943
in
NRAS
4 months ago
COVID
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
lbenmaor
in
My MSAA Community
4 months ago
New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
4 months ago
Getting Off of Painkillers
I started seeing a pain management doctor about 4 years ago for severe lower back pain. One of the first things she did was put me on 5 mg Hydrocodone four times a day and gave me a steroid injection. Over the years, I have had several radio frequency ablations and a handful of steroid injections. The
I started seeing a pain management doctor about 4 years ago for severe lower back pain. One of the first things she did was put me on 5 mg Hydrocodone four times a day and gave me a steroid injection. Over the years, I have had several radio frequency ablations and a handful of steroid injections. The
Hidden
in
Pain Concern
4 months ago
starting again!
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
Aclotintrainers
in
Anticoagulation Support
4 months ago
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