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Update on trametinib (Mekinist) for low grade serous ovarian cancer
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
Hormone Therapy
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
debbiejayn
in
Advanced Prostate Cancer
26 days ago
The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
27 days ago
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Are teeth affected by ADT or Xtandi?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
CousinGrandpa
in
Prostate Cancer Network
27 days ago
Elgard v Lupron
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
Papa1
in
Advanced Prostate Cancer
28 days ago
PSA still undetectable and testosterone doubles to 1.6
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Brysonal
in
Fight Prostate Cancer
28 days ago
Docetaxel
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
JolleySprings
in
Advanced Prostate Cancer
28 days ago
New to this group/been dealing with FND for a few years
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
eclipsetucker
in
Functional Neurological Disorder - FND Hope
28 days ago
Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
28 days ago
Thyroid and HRT- help please
Hello everyone, This is the first time I've posted. I have been taking Thyroxine for underactive Thyroid for around 10 years now. My dose is currently (and has been for the last 3.5 years) 87.5mg per day and I suspect I am undermedicated. I am also taking HRT (Evorel 25 patch (change twice weekly
Hello everyone, This is the first time I've posted. I have been taking Thyroxine for underactive Thyroid for around 10 years now. My dose is currently (and has been for the last 3.5 years) 87.5mg per day and I suspect I am undermedicated. I am also taking HRT (Evorel 25 patch (change twice weekly
Gertrude7
in
Thyroid UK
1 year ago
Buprenorphine and antidepressants
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
teakabeagle
in
Restless Legs Syndrome
6 months ago
Anyone else suffering arm pains in conjunction with ADT hot flashes?
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
LeakyLad
in
Advanced Prostate Cancer
30 days ago
Five years later
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
ArnieAfrica
in
Advanced Prostate Cancer
30 days ago
Auortic valve replacement
Good morning I'm wondering if anyone Has had simula problems Had auortic valve replaced June And recently have found I'm having a reaction fv coughing wheezing Ftwr certain foods Anyone else noticed that they have similar Regards peanuts Had birthday cake same happened
Good morning I'm wondering if anyone Has had simula problems Had auortic valve replaced June And recently have found I'm having a reaction fv coughing wheezing Ftwr certain foods Anyone else noticed that they have similar Regards peanuts Had birthday cake same happened
Queenielover
in
British Heart Foundation
10 months ago
After Lupron I have been having seizures
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
darrylw
in
Advanced Prostate Cancer
1 month ago
Article about hair loss and hormones
https://www.msn.com/en-gb/health/familyhealth/everything-you-need-to-know-about-menopausal-hair-loss/ar-AA18kDuV?ocid=msedgntp&cvid=7b188e11adcd47a9afab630f47128635&ei=18 HRT and extra protein in the form of full spectrum amino acids has me back to a shaggy mop head 👱♀️
https://www.msn.com/en-gb/health/familyhealth/everything-you-need-to-know-about-menopausal-hair-loss/ar-AA18kDuV?ocid=msedgntp&cvid=7b188e11adcd47a9afab630f47128635&ei=18 HRT and extra protein in the form of full spectrum amino acids has me back to a shaggy mop head 👱♀️
TiggerMe
in
Thyroid UK
1 year ago
How do I update my bio?
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
happycamperguy
in
Advanced Prostate Cancer
1 month ago
T never recovered after ADT and 44 EBRT sessions.
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
Chasu
in
Advanced Prostate Cancer
1 month ago
skin redness after 3 weeks of pelvic radiation
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
brilliant17
in
Advanced Prostate Cancer
1 month ago
Minor psa increase again
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Runner1957
in
Prostate Cancer Network
1 month ago
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