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Join our Speech Therapy Session
Come and join us this
Friday, the 21st of July at 11 am - 12 pm
for a session of
Speech Therapy combined with a holistic approach
hosted by our speech therapist, Mandy Ngo. This will incorporate:
-
Exercises to strengthen the head and neck control to aid with swallowing difficulties
Come and join us this
Friday, the 21st of July at 11 am - 12 pm
for a session of
Speech Therapy combined with a holistic approach
hosted by our speech therapist, Mandy Ngo. This will incorporate:
-
Exercises to strengthen the head and neck control to aid with swallowing difficulties
Irmmy
in
Ataxia UK
1 year ago
How to convince your GP a suppressed TSH is ok?
For years I’ve had a suppressed TSH following a trial of T3 probably 5 years ago which didn’t work and I haven’t taken it for around 4 years (need to check my records for exact dates). My GP has always been fine with it, and even the rubbish NHS endo agreed it would take time to recover - or as I know
For years I’ve had a suppressed TSH following a trial of T3 probably 5 years ago which didn’t work and I haven’t taken it for around 4 years (need to check my records for exact dates). My GP has always been fine with it, and even the rubbish NHS endo agreed it would take time to recover - or as I know
CornishChick
in
Thyroid UK
9 months ago
Low cortisol but within normal nhs range
I have had 2 blood cortisol tests at 9am 1st one was 133 nmol/L and the 2nd one was 233 nmol/L . I asked to have a short synacten test to see if my pituitary is failing ( hypopituitarism) , as one of my big symptoms is low motivation, tiredness, hypothyroidism and zero libido for years despite being
I have had 2 blood cortisol tests at 9am 1st one was 133 nmol/L and the 2nd one was 233 nmol/L . I asked to have a short synacten test to see if my pituitary is failing ( hypopituitarism) , as one of my big symptoms is low motivation, tiredness, hypothyroidism and zero libido for years despite being
minus
in
Thyroid UK
9 months ago
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CT and Bone Scan 2 weeks after PSMA PET?
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
sixmongoos
in
Advanced Prostate Cancer
9 months ago
Post-ADT, does one's ability to maintain weight get better?
This is for those lucky ones whose treatment has reached the point where their PCa is not active and ADT has ended. Does the ability to maintain a healthy weight get better? How long after?
This is for those lucky ones whose treatment has reached the point where their PCa is not active and ADT has ended. Does the ability to maintain a healthy weight get better? How long after?
Derf4223
in
Advanced Prostate Cancer
9 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
9 months ago
Hashimotos?
I have had elevated TSH for about 10 years and my GP did not seem very keen to do anything. I got a monitor my health test on the 12/9/23 and advanced thyroid check with Medichecks on the 11/10/23. The results are below and I would really appreciate any support. I have booked an appointment with one
I have had elevated TSH for about 10 years and my GP did not seem very keen to do anything. I got a monitor my health test on the 12/9/23 and advanced thyroid check with Medichecks on the 11/10/23. The results are below and I would really appreciate any support. I have booked an appointment with one
Susanmcg
in
Thyroid UK
9 months ago
INCA033989 phase 1 clinical trial is recruiting patients
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
flamboyant_hawking
in
MPN Voice
1 year ago
Very promising trial!
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Maxone73
in
Advanced Prostate Cancer
9 months ago
advice please
hi everyone . Here’s my story so far .. haven’t been ‘right’ since May 2021 . First symptoms were hair loss and tiredness. I contacted the GP who did my bloods and said my thyroid was slightly low and wanted to recheck in 8 weeks T4 = 10.4 and TSH 0-8 So they rechecked in july 22 and said again
hi everyone . Here’s my story so far .. haven’t been ‘right’ since May 2021 . First symptoms were hair loss and tiredness. I contacted the GP who did my bloods and said my thyroid was slightly low and wanted to recheck in 8 weeks T4 = 10.4 and TSH 0-8 So they rechecked in july 22 and said again
Jacksondog
in
Thyroid UK
10 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
10 months ago
High-Dose Transdermal Estradiol as ADT
Does anyone have any experience with this? According to my understanding: It's not FDA approved, but used here in the U.S., and all over the rest of the world. It's at least as effective in lowering T to castrate levels. It carries a far more tolerable profile of SEs than LHRH drugs, presumably
Does anyone have any experience with this? According to my understanding: It's not FDA approved, but used here in the U.S., and all over the rest of the world. It's at least as effective in lowering T to castrate levels. It carries a far more tolerable profile of SEs than LHRH drugs, presumably
Horse12888
in
Advanced Prostate Cancer
10 months ago
Question re:periods
Hello everyone, Up until I started Levo in May this year I was having regular periods every 4 weeks. I think it was my own cycle rather than just an hrt “withdrawal bleed” from my hrt, as the periods were very heavy each time and lasted about 7 days. I had spells of missing a couple of periods here
Hello everyone, Up until I started Levo in May this year I was having regular periods every 4 weeks. I think it was my own cycle rather than just an hrt “withdrawal bleed” from my hrt, as the periods were very heavy each time and lasted about 7 days. I had spells of missing a couple of periods here
JoJoloveschocolate
in
Thyroid UK
10 months ago
Gynecology appointment update
Good Morning Just giving you an update after my gynecology appointment 12th October at the hospital. I have to go for a hysteroscopy the doctor thinks the thickening in my womb is lack of hormone or was due to the HRT I was taking previously, she also may do a biopsy to make sure all is fine. She has
Good Morning Just giving you an update after my gynecology appointment 12th October at the hospital. I have to go for a hysteroscopy the doctor thinks the thickening in my womb is lack of hormone or was due to the HRT I was taking previously, she also may do a biopsy to make sure all is fine. She has
harryhonda25
in
Menopause and Perimenopause Support
10 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
Newby
Hi I'm a new to here, I'm a 62yr female looking to improve my overall health, lose more weight and gain some physical stamina . Hopefully I will get lots of tips ect from here
Hi I'm a new to here, I'm a 62yr female looking to improve my overall health, lose more weight and gain some physical stamina . Hopefully I will get lots of tips ect from here
Smileylady36
in
My EXI Community
11 months ago
PSA testing comparison question
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
LongevityAT
in
Advanced Prostate Cancer
10 months ago
Add back hrt with Zoladex
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Saffie123
in
Endometriosis UK
10 months ago
Anxiety and Tinnitus
HiSo I came off HRT because it increased my tinnitus it's been over 6 weeks now and over the past week I've now developed morning anxiety which is a peri-menopause symptom and obviously increasing my tinnitus awareness, I work from home and have started going in to the office a few days a week to break
HiSo I came off HRT because it increased my tinnitus it's been over 6 weeks now and over the past week I've now developed morning anxiety which is a peri-menopause symptom and obviously increasing my tinnitus awareness, I work from home and have started going in to the office a few days a week to break
Coxy00
in
Tinnitus UK
10 months ago
New treatment for Parkinson
Has anybody tried LENs Biofeedback?, it is a relatively new and non invasive therapy to Parkinson to improve parkinson's symptoms like tremors and bradykinesia.
Has anybody tried LENs Biofeedback?, it is a relatively new and non invasive therapy to Parkinson to improve parkinson's symptoms like tremors and bradykinesia.
UncleCharlieyoyo
in
Cure Parkinson's
1 year ago
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