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IBD and RA
Hi, I’m going through some investigations for IBD atm - the gastroenterologist is being very thorough and linked the inflammatory markers to my RA quite quickly. Does anyone else have any experience of living with both conditions? What sort of things should I be asking and looking for? Thank you in advance
Hi, I’m going through some investigations for IBD atm - the gastroenterologist is being very thorough and linked the inflammatory markers to my RA quite quickly. Does anyone else have any experience of living with both conditions? What sort of things should I be asking and looking for? Thank you in advance
FlaringFascinator
in
NRAS
5 months ago
Gas in CT Simulation
Did anyone have trouble getting good imagery in CT simulation or have advice? Went on a low residue diet to prepare for CT simulation. Both times too much gas for imaging despite cutting out so much fiber and plants from diet. I read that about a practice in Austin, TX suggesting Gas-X (simethicone)
Did anyone have trouble getting good imagery in CT simulation or have advice? Went on a low residue diet to prepare for CT simulation. Both times too much gas for imaging despite cutting out so much fiber and plants from diet. I read that about a practice in Austin, TX suggesting Gas-X (simethicone)
Hope49823
in
Advanced Prostate Cancer
5 months ago
new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
Dragonfly2
in
SHARE Metastatic Breast Cancer
7 months ago
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Blood test result - iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Lindsayf
in
Thyroid UK
5 months ago
Stressing.
hi everyone I hope your all keeping as well as possible. I’ll start with ,I do have IBS,but to the end of last year I was told I also have Diverticulum/ Diverticulitis. I’m trying to understand it,but I’m not doing to good. Since December I’ve had 3 courses of antibiotics,until then I haven’t had any
hi everyone I hope your all keeping as well as possible. I’ll start with ,I do have IBS,but to the end of last year I was told I also have Diverticulum/ Diverticulitis. I’m trying to understand it,but I’m not doing to good. Since December I’ve had 3 courses of antibiotics,until then I haven’t had any
Breathless1943
in
IBS Network
5 months ago
Help with blood results
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Lindsayf
in
Pernicious Anaemia Society
5 months ago
Does anyone have CtDna blood test added In their monitoring routine?
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
KimberlyB40
in
SHARE Metastatic Breast Cancer
7 months ago
Ascites drain
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Breakfastbabe
in
British Liver Trust
5 months ago
How often and duration of the Tass gloves?
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Furch
in
Cure Parkinson's
8 months ago
more bleeding and pain after Colonoscopy 2 weeks ago
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Bunnygirl1
in
Crohn's and Colitis Support
5 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
5 months ago
Tumour marker
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
Gramat
in
SHARE Metastatic Breast Cancer
7 months ago
Gazyva and Ventalox
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
CityL
in
CLL Support
7 months ago
Knowledge is Power
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
cycli
in
PMRGCAuk
5 months ago
positive fit test
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Liv56
in
Colon Cancer Connected
5 months ago
Info needed before sending letter to GP
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
BeachArt
in
Pernicious Anaemia Society
5 months ago
Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
5 months ago
will it cause anything during this few months
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
Mondlee
in
Colon Cancer Connected
5 months ago
solaraze for actinic keratosis
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
Profound15
in
Atrial Fibrillation Support
7 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
4 months ago
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