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Radioactive iodine
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Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
7 months ago
pills, pills & more pills.
Turns out, on top of adding four stones in weight since my Thyroid “treatment”(
radioactive
iodine
), I’ve got gout. Clever chaps, these doctors. This wins me…yes you’ve got, folks…another, pat on the head from my own, personal Jesus aaaaaaand another prescription.
Turns out, on top of adding four stones in weight since my Thyroid “treatment”(
radioactive
iodine
), I’ve got gout. Clever chaps, these doctors. This wins me…yes you’ve got, folks…another, pat on the head from my own, personal Jesus aaaaaaand another prescription.
Bigthensmallthenbig
in
Thyroid UK
10 months ago
A study supporting long term AntiThyroid Drug usage (useful for any patients feeling pushed into having RAI/ Thyroidectomy)
just come across this , posting it in case it useful to anyone pennyannie PurpleNails https://pubmed.ncbi.nlm.nih.gov/35274339/ [u]Audit of long-term treatment outcomes of thyrotoxicosis in a single-centre virtual clinic: The utility of long-term antithyroid drugs[/u] Miles J Levy , Narendra Reddy
just come across this , posting it in case it useful to anyone pennyannie PurpleNails https://pubmed.ncbi.nlm.nih.gov/35274339/ [u]Audit of long-term treatment outcomes of thyrotoxicosis in a single-centre virtual clinic: The utility of long-term antithyroid drugs[/u] Miles J Levy , Narendra Reddy
tattybogle
in
Thyroid UK
7 months ago
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why wouldn't the consultant order a scan of a goiter ( I have confirmed Graves Disease?)
When I asked they said it's because the treatment plan is the same regardless in first instance - ie carbimazole - in hope that stops growth/ balances the hormones and so avoid
radioactive
iodine
treatment / surgery. If all goes to plan - sorted.
When I asked they said it's because the treatment plan is the same regardless in first instance - ie carbimazole - in hope that stops growth/ balances the hormones and so avoid
radioactive
iodine
treatment / surgery. If all goes to plan - sorted.
Littlefoot1thyroiduk
in
Thyroid UK
1 year ago
parathyroid
Today tcpace raised a good point about the parathyroid and if surgeons aim to preserve them. This is something I’ve wondered about with relation to RAI, as I can’t imagine anything in its wake would survive. Any thoughts/knowledge?
Today tcpace raised a good point about the parathyroid and if surgeons aim to preserve them. This is something I’ve wondered about with relation to RAI, as I can’t imagine anything in its wake would survive. Any thoughts/knowledge?
Milkyway88
in
Thyroid UK
8 months ago
Blood Results TSH Low need your help with adjusting Dosage
Hi everyone I need some help again with my blood test results please. Ive been to the Endocronologist recently and based on my blood tests TSH too low she has decreased my Thyroxine by 1 tablet a week ie 75mg. (I was taking 75mg/day 7 days). I also take this 2hours before breakfast to help absorption
Hi everyone I need some help again with my blood test results please. Ive been to the Endocronologist recently and based on my blood tests TSH too low she has decreased my Thyroxine by 1 tablet a week ie 75mg. (I was taking 75mg/day 7 days). I also take this 2hours before breakfast to help absorption
Anic
in
Thyroid UK
8 months ago
Thyroidectomy
I have severe Graves for about 8 years with high antibodies and told will not be likely to achieve remission and am likely to go overactive very quickly. I have severe symptoms with bad effect on my heart, breathing etc. and have been taken into A&E by ambulance a number of times with relapses. I have
I have severe Graves for about 8 years with high antibodies and told will not be likely to achieve remission and am likely to go overactive very quickly. I have severe symptoms with bad effect on my heart, breathing etc. and have been taken into A&E by ambulance a number of times with relapses. I have
LonelyPlace
in
Thyroid UK
8 months ago
Blood test results
In the past i had graves disease, then rai to correct it. This left me hypothyroid, so i now take levothyroxine. My last thyroid function test on 100mg was t.s.h 0.82. T4 25 . Does this sound good doc did nt test t3. I felt good but my t4 was above range which was 2 2
In the past i had graves disease, then rai to correct it. This left me hypothyroid, so i now take levothyroxine. My last thyroid function test on 100mg was t.s.h 0.82. T4 25 . Does this sound good doc did nt test t3. I felt good but my t4 was above range which was 2 2
Ganggywaller
in
Graves Disease Support
8 months ago
Thyroid results
Hello, I hope you can help me make sense of my results as I've got a doctor's appointment to discuss my medication.I was diagnosed with graves disease about 2010 and had RAI in 2015. I've been under active since and for the past 6 years been on 125mg of levo. My symptoms have been up and down over the
Hello, I hope you can help me make sense of my results as I've got a doctor's appointment to discuss my medication.I was diagnosed with graves disease about 2010 and had RAI in 2015. I've been under active since and for the past 6 years been on 125mg of levo. My symptoms have been up and down over the
Snap33
in
Thyroid UK
8 months ago
Non-zero Anti-Tg after total thyroidectomy
Hello again, actually I posted a result about my TSH level increase hours ago but while looking in to results I realized that, although my Tg is <0.04 my anti tg is : AntiTg 13.3 IU/mL 0 - 115 I had total thyroidectomy 8 years ago and had RAI. My previous post: https://healthunlocked.com/thyroiduk
Hello again, actually I posted a result about my TSH level increase hours ago but while looking in to results I realized that, although my Tg is <0.04 my anti tg is : AntiTg 13.3 IU/mL 0 - 115 I had total thyroidectomy 8 years ago and had RAI. My previous post: https://healthunlocked.com/thyroiduk
Renadom
in
Thyroid UK
8 months ago
Teva levothyroxine solution, any positive results for anyone?
Hi Has anyone tried Teva levothyroxine solution, and had positive results compared to taking any levothyroxine tablets? To cut a very long story short, the 75 mcg Wockhardt tablets I take are causing terrible pressure all over body and excruiciating burning through top of my head. So bad I collapse.
Hi Has anyone tried Teva levothyroxine solution, and had positive results compared to taking any levothyroxine tablets? To cut a very long story short, the 75 mcg Wockhardt tablets I take are causing terrible pressure all over body and excruiciating burning through top of my head. So bad I collapse.
Razzydaz
in
Thyroid UK
8 months ago
T4 Reduction to increase TSH
In January I was taking 150 T4 daily and 2x5mg T3, my bloods were T4=18.1 (9-19) T3 4.98 (2.6-5.7) TSH <0.03(0.35-4.94). I have been taking T3 since Oct 2019 because I felt so ill, tired, hair loss, dry skin, muscle and joint problems. With the help of much advice on here I started taking supplements
In January I was taking 150 T4 daily and 2x5mg T3, my bloods were T4=18.1 (9-19) T3 4.98 (2.6-5.7) TSH <0.03(0.35-4.94). I have been taking T3 since Oct 2019 because I felt so ill, tired, hair loss, dry skin, muscle and joint problems. With the help of much advice on here I started taking supplements
SassyMH
in
Thyroid Cancer Support
8 months ago
Naturally high vitamin B12
I have had a few tests over the last few years which include Vitamin B12. I am worried that I may not be transporting it to cells as it is very high fir someone does not take supplements. See photo? Everything I question this the doctor just says we'll that's good isn't it. Is it? From what I read
I have had a few tests over the last few years which include Vitamin B12. I am worried that I may not be transporting it to cells as it is very high fir someone does not take supplements. See photo? Everything I question this the doctor just says we'll that's good isn't it. Is it? From what I read
Vixen54
in
Thyroid UK
9 months ago
Update re carbimazole.
If anyone has gone through
Radioactive
Iodine
therapy i would be very grateful of your experience. Thank you!
If anyone has gone through
Radioactive
Iodine
therapy i would be very grateful of your experience. Thank you!
1digits0
in
Thyroid UK
1 year ago
Replacement therapy and TSH levels
I have primary hypothyroidism after RAI 35years ago.I feel good on 200mg with a surpressed TSH Meds have been reduced again and my TSH is on the way up it’s now 81.32% through the range. I know that for my condition my levels should be low TSH with high T4 Is there any research or papers I could
I have primary hypothyroidism after RAI 35years ago.I feel good on 200mg with a surpressed TSH Meds have been reduced again and my TSH is on the way up it’s now 81.32% through the range. I know that for my condition my levels should be low TSH with high T4 Is there any research or papers I could
AustinHealeySprite
in
Thyroid UK
9 months ago
Comments On Blood Test Results Please
I had
radioactive
iodine
some years ago and am on levothyroxine (100mg). My results from the GP always come back as 'normal' but have fluctuated wildly within this over the years.
I had
radioactive
iodine
some years ago and am on levothyroxine (100mg). My results from the GP always come back as 'normal' but have fluctuated wildly within this over the years.
Ant5
in
Thyroid UK
1 year ago
How long between does changes?
Hi all 8 weeks ago I started 75mcg of levothyroxine daily following overly successful RAI. I think they left me too long before starting medication as the wanted to be sure the RAI had worked this time as I was slightly hypo before the treatment due to over medication. when I started the Levo my Tsh
Hi all 8 weeks ago I started 75mcg of levothyroxine daily following overly successful RAI. I think they left me too long before starting medication as the wanted to be sure the RAI had worked this time as I was slightly hypo before the treatment due to over medication. when I started the Levo my Tsh
MadM24
in
Thyroid UK
9 months ago
Blood results back
I posted a few weeks ago about an issue I was having with my thyroid. Had a visit to a new endo who requested a battery of tests and the results are back. I have been off Eltroxin since August when my TSH went low. Aug results when on 12.5mcg levo 5 days a week: TSH 0.21 (0.35- 4.95) FT4 12.2(
I posted a few weeks ago about an issue I was having with my thyroid. Had a visit to a new endo who requested a battery of tests and the results are back. I have been off Eltroxin since August when my TSH went low. Aug results when on 12.5mcg levo 5 days a week: TSH 0.21 (0.35- 4.95) FT4 12.2(
Agho
in
Thyroid UK
9 months ago
Hashis and Graves? Watch and Wait has now caught up.
About 15 months or so, I had an appointment for a thyroid specialist as my thyroid tests pointed towards Graves. I had been hypothyroid for about 17years when my different results meant my gp prescribing less and less levo. When the amount became 12.5mcg, (after an original 150 mcg) I asked to be
About 15 months or so, I had an appointment for a thyroid specialist as my thyroid tests pointed towards Graves. I had been hypothyroid for about 17years when my different results meant my gp prescribing less and less levo. When the amount became 12.5mcg, (after an original 150 mcg) I asked to be
Bluebell999
in
Thyroid UK
9 months ago
Can thyroid function recover after RAI
I received RAI in 2010 for alleged nodules but then consultant thought I may have had Graves disease instead. Over the last 13 years, I have had my levothyroxine reduced from 150 to 100 and I fear it will be reduced again. I am 55 years old. My question is why does the doseage need reducing? Is it
I received RAI in 2010 for alleged nodules but then consultant thought I may have had Graves disease instead. Over the last 13 years, I have had my levothyroxine reduced from 150 to 100 and I fear it will be reduced again. I am 55 years old. My question is why does the doseage need reducing? Is it
mscomputertutor101
in
Thyroid UK
9 months ago
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