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Diagnosis and feeling like left in the wind
Good morning everyone prayers and hugs your way always. After all my recent diagnosis and finding out I actually do have lupus it’s been two months since I was diagnosed with lymphedema and still no treatments have been set up by my doctor. I saw my doctor on Friday and she’s been very good ( in regard
Good morning everyone prayers and hugs your way always. After all my recent diagnosis and finding out I actually do have lupus it’s been two months since I was diagnosed with lymphedema and still no treatments have been set up by my doctor. I saw my doctor on Friday and she’s been very good ( in regard
franklin1970
in
Neuropathy Support
6 years ago
Sex and incontinence
It’s been a little more than two months since my radical prostatectomy so I tried to do some normal stuff. I had a somewhat successful attempt at sex. My worst nightmare was present due the experience but, as I wrote, there was some success. Just no standing ovation. (Could I be anymore obvious and
It’s been a little more than two months since my radical prostatectomy so I tried to do some normal stuff. I had a somewhat successful attempt at sex. My worst nightmare was present due the experience but, as I wrote, there was some success. Just no standing ovation. (Could I be anymore obvious and
Auman
in
Prostate Cancer Network
6 years ago
Surgery vs Radiotherapy for Gleason 9-10.
New study below. I think that surgery was not considered to be a good option for GS=9/10 in 2004. "Can treatment with radical prostatectomy, adjuvant external beam radiotherapy, and androgen deprivation therapy (termed MaxRP) or external beam radiotherapy, brachytherapy, and androgen deprivation therapy
New study below. I think that surgery was not considered to be a good option for GS=9/10 in 2004. "Can treatment with radical prostatectomy, adjuvant external beam radiotherapy, and androgen deprivation therapy (termed MaxRP) or external beam radiotherapy, brachytherapy, and androgen deprivation therapy
pjoshea13
in
Advanced Prostate Cancer
6 years ago
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Informative article with links re PD and Gut microbiome
Gut-Brain Gateways to Parkinson's Once it was thought that Parkinson’s disease (PD) was primarily a central nervous system condition that impinges upon motor function, but now we know that it entails critical inputs from the enteric nervous system (ENS), intestinal and brain barriers, exposome,
Gut-Brain Gateways to Parkinson's Once it was thought that Parkinson’s disease (PD) was primarily a central nervous system condition that impinges upon motor function, but now we know that it entails critical inputs from the enteric nervous system (ENS), intestinal and brain barriers, exposome,
Jandeb
in
Cure Parkinson's
6 years ago
Effectiveness of Radical Prostatectomy Versus External Beam Radiation Therapy Plus Brachytherapy in Patients with High-risk Localized PCa.
New study below. When I opted for Radical Prostatectomy [RP] 14 years ago it was on the basis of 10-year survival (from an online tool that used a half-dozen parameters, including age. Over the years I have heard oncologists saying that RP is no loger the gold standard, but survival studies continue
New study below. When I opted for Radical Prostatectomy [RP] 14 years ago it was on the basis of 10-year survival (from an online tool that used a half-dozen parameters, including age. Over the years I have heard oncologists saying that RP is no loger the gold standard, but survival studies continue
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Emerging cell cycle inhibitors for treating metastatic castration-resistant prostate cancer.
New paper below. As someone who believes that halting cell cycle progression can be almost as good as inducing cell death in PCa, I was interested to see a paper on the topic. "Review of the current literature identified cell cycle inhibitors under study in early phase clinical trials targeting the G1
New paper below. As someone who believes that halting cell cycle progression can be almost as good as inducing cell death in PCa, I was interested to see a paper on the topic. "Review of the current literature identified cell cycle inhibitors under study in early phase clinical trials targeting the G1
pjoshea13
in
Advanced Prostate Cancer
6 years ago
16 years with metastatic prostate cancer - latest news
When I put up my last post, I expected the follow-up to be fairly straightforward - you know, radium 223 has worked a bit, but only a bit, and I’m moving onto something else/PSMA targeting/immunotherapy. But, that hasn’t really happened. The prostate cancer had other ideas. I’ll come to that, but first
When I put up my last post, I expected the follow-up to be fairly straightforward - you know, radium 223 has worked a bit, but only a bit, and I’m moving onto something else/PSMA targeting/immunotherapy. But, that hasn’t really happened. The prostate cancer had other ideas. I’ll come to that, but first
Hidden
in
Advanced Prostate Cancer
6 years ago
Effect of vitamins on thyroid blood test
When I have my next thyroid blood test I have read that you shouldn't take biotin for 4 days before the test so I will stop the vitamin b complex. Are there are other vitamins or minerals that impact the result. Curently I take Selenium and vitamin D. Do I need to have a so many days interval between
When I have my next thyroid blood test I have read that you shouldn't take biotin for 4 days before the test so I will stop the vitamin b complex. Are there are other vitamins or minerals that impact the result. Curently I take Selenium and vitamin D. Do I need to have a so many days interval between
carer999
in
Thyroid UK
6 years ago
Another short article on benefits of local therapy for advanced PCa
Local treatment of metastasis improves oncological outcome in men with prostate cancer undergoing cytoreductive radical prostatectomy (cRP) for metastatic prostate cancer (mPCA) https://www.eusupplements.europeanurology.com/article/S1569-9056(18)31247-8/abstract
Local treatment of metastasis improves oncological outcome in men with prostate cancer undergoing cytoreductive radical prostatectomy (cRP) for metastatic prostate cancer (mPCA) https://www.eusupplements.europeanurology.com/article/S1569-9056(18)31247-8/abstract
snoraste
in
Advanced Prostate Cancer
6 years ago
Help Required with Vitamin and mineral results
Hello. I have had tests for Vit B12, Folate, Vit D and Ferritin (done by the NHS) and need some advice as to whether the levels are OK or not. Serum Vitamin B12 438 ng/ml (187 - 883) Serum Folate 5.2 ng/ml (3.1 - 20.5) Serum Ferritin 136 ng/ml (20 - 204) Serum Vitamin D 27 nmol/l (80 - 150) I
Hello. I have had tests for Vit B12, Folate, Vit D and Ferritin (done by the NHS) and need some advice as to whether the levels are OK or not. Serum Vitamin B12 438 ng/ml (187 - 883) Serum Folate 5.2 ng/ml (3.1 - 20.5) Serum Ferritin 136 ng/ml (20 - 204) Serum Vitamin D 27 nmol/l (80 - 150) I
Happywalker
in
Thyroid UK
6 years ago
altered state after viral meningitis
I had viral meningitis the beginning of July and my brain swelled up so much, I lost consciousness and stopped breathing. Since then, I have had two incidents of "altered state"- total mental confusion. after not being able to sleep. The doctors at Banner accused me of drug overdose *um, no) amd were
I had viral meningitis the beginning of July and my brain swelled up so much, I lost consciousness and stopped breathing. Since then, I have had two incidents of "altered state"- total mental confusion. after not being able to sleep. The doctors at Banner accused me of drug overdose *um, no) amd were
mslindag
in
Meningitis Now
6 years ago
Latent Gleason Number 5.
New Japanese study. I don't know what percentage of U.S. men are diagnosed with Gleason score 4+5, 5+4 or 5+5, based on a biopsy, but in this Japanese cohort ~11% were 'GP5 positive'. However, ~25% (!!!) were 'latent GP5' "absence of GP5 in the biopsy specimen, but presence of GP5 in the prostatectomy
New Japanese study. I don't know what percentage of U.S. men are diagnosed with Gleason score 4+5, 5+4 or 5+5, based on a biopsy, but in this Japanese cohort ~11% were 'GP5 positive'. However, ~25% (!!!) were 'latent GP5' "absence of GP5 in the biopsy specimen, but presence of GP5 in the prostatectomy
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Grateful for any advice on taking a Vit B Complex plus a good mumtivitamin
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
Mandymoos8
in
Pernicious Anaemia Society
6 years ago
New, slow return of rising Psa
Hi fellows I am new here. Radical prostatectomy 2011 after sample analysis, Psa 7,5 and cancer in 4 out of 12 samples, gleason 3+4. Slow return of raising Psa, 0,22 in 2013. 32 radiation visit that year at prostate gland. Again slow PSA rising with result of reaching Psa 4,4 november 2016 with doubling
Hi fellows I am new here. Radical prostatectomy 2011 after sample analysis, Psa 7,5 and cancer in 4 out of 12 samples, gleason 3+4. Slow return of raising Psa, 0,22 in 2013. 32 radiation visit that year at prostate gland. Again slow PSA rising with result of reaching Psa 4,4 november 2016 with doubling
innon
in
Prostate Cancer Network
6 years ago
Robot‐assisted radical prostatectomy [RARP] experience.
New study. I had open surgery 14 years ago. When RARP became more available I believe that it was oversold to patients, in the sense that experience was lacking. I kept reading that it took a lot of operations to become proficient. My friend & neighbor Jim rushed into RARP & his first day home woke
New study. I had open surgery 14 years ago. When RARP became more available I believe that it was oversold to patients, in the sense that experience was lacking. I kept reading that it took a lot of operations to become proficient. My friend & neighbor Jim rushed into RARP & his first day home woke
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Ovary removal
Hi I had cervical cancer 10 years ago and kept my ovaries. Next week I’m getting one out as it’s attached to bowel and I get cysts on it..about 6 a year. I had a cyst removed 7 years ago and remember the pain being just as bad as the radical hysterectomy. Anyone had ovary removed recently? Just wondering
Hi I had cervical cancer 10 years ago and kept my ovaries. Next week I’m getting one out as it’s attached to bowel and I get cysts on it..about 6 a year. I had a cyst removed 7 years ago and remember the pain being just as bad as the radical hysterectomy. Anyone had ovary removed recently? Just wondering
Debrunning
in
My Ovacome
6 years ago
Estradiol & PCa.
New French study. Nalakrats will get a kick out of this one. "Our objective was to assess the concentration levels of sex steroids in prostatic tissue and serum, in two cohorts of patients with localized PCa or benign prostatic hyperplasia (BPH)." "The levels of Total Testosterone (TT), Di-Hydro-Testosterone
New French study. Nalakrats will get a kick out of this one. "Our objective was to assess the concentration levels of sex steroids in prostatic tissue and serum, in two cohorts of patients with localized PCa or benign prostatic hyperplasia (BPH)." "The levels of Total Testosterone (TT), Di-Hydro-Testosterone
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Have I got a thyroid prob
I am freezing all the time, I cant run a bath for my children because what is okay for me is scalding for them, even with the elbow test. Ive had no appetite for ages, probably due to my depression,so im not overweight. I have got really dry hair that never seems to grow, balding patches in my hair,
I am freezing all the time, I cant run a bath for my children because what is okay for me is scalding for them, even with the elbow test. Ive had no appetite for ages, probably due to my depression,so im not overweight. I have got really dry hair that never seems to grow, balding patches in my hair,
mariawolf
in
Thyroid UK
6 years ago
Now what?
Hello lovely people. So I went for the emergency appointment at the rheumy clinic today. Lovely rheumy nurse examined my joints and said she could find no evidence of active disease but accepted that they hurt. She was more concerned about the weight loss (now about 12lbs) and the low vitamin b levels
Hello lovely people. So I went for the emergency appointment at the rheumy clinic today. Lovely rheumy nurse examined my joints and said she could find no evidence of active disease but accepted that they hurt. She was more concerned about the weight loss (now about 12lbs) and the low vitamin b levels
Gnarli
in
NRAS
6 years ago
PCa Abbreviation List UPDATED 1/26/2023
UPDATED WITH ADDENDUM BELOW 1/26/2023 Prostate cancer-related abbreviations The following is a (non-comprehensive) list of abbreviations that you may come across in reading about prostate cancer. •AAT = androgen ablation therapy (same as ADT and HT) •AAWR = anti-androgen withdrawal response •ABDCTSCAN
UPDATED WITH ADDENDUM BELOW 1/26/2023 Prostate cancer-related abbreviations The following is a (non-comprehensive) list of abbreviations that you may come across in reading about prostate cancer. •AAT = androgen ablation therapy (same as ADT and HT) •AAWR = anti-androgen withdrawal response •ABDCTSCAN
Moespy
in
Advanced Prostate Cancer
6 years ago
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