any advice on QUESTRAN: - Children's Liver ...
any advice on QUESTRAN
I struggled with this when told my daughter needed it, as it tastes and smells awful :(. Yes i did try it myself before i gave it to her :DWhen she was little (5) I mixed it with petit foulis yoghurt and tried various juices and concoctions. Yoghurt was the most successful. As she got older is secondary school.. I made it up in raspberry grape and apple juice(cartons from supermarkets). It wad a constant battle to get her to take it, but the relief she got from itching was good. My daughter now takes it willingly when the itching is problematic. because
she has itched all of her life, she has learnt to block it out. So when she takes questrann I know her itching is severe.hope this is helpful claresmom
Hi. My daughter is 4 and has alagilles. She is on Rifampicin and Urso along with lots of supplements.
We tried ondansitron (excuse the spelling) but this didn't work. Then we tried Questran for about 18mths. There was a marginal improvement though she was still very itchy especially at night and suffered the usual scratches to the face, legs and hands resulting in lots of little scabs. The itching also led to increasingly broken sleep.
We tried a few ways of getting her to take it, including milk shakes (trying to sweeten the nasty flavour) and yoghurts. We gave up on mixing it in yoghurt because we were worried that it was putting her off yoghurt - at the time she was suffering from rickets (Vit D & calcium deficiency) and she loved yoghurt so this was one reliable source of calcium along with her milk. So we tried fresh juice (not from concentrate) as this masked the nasty flavour. This was successful although she still took a lot of persuading. It got harder too as she got older. So we started giving her a sweet as a reward for taking it. We were very conscious of her having too much sugar resulting in a risk to her teeth so we tried to brush her teeth after each dose.
The timing of when to take the Questran was difficult too as it needs to be taken at least two hours before or after any medicines and taken twice a day which made for quite a lot of pressure to get it taken in time. We found that the second dose, taken after school, was really testing as she was so tired and crabby and it always resulted in a flare-up.
Eventually, weighing up the pros and the cons we realised that the pros were outweighed - timing; sugar on teeth; relatively low effectiveness; huge and growing reluctance to take it.
We discussed it with the consultant and decided to stop and try alternatives - Naltrexone, piriton and alimemazine, all of which have their own pros and cons.
Having said all this I know that some people have found Questran to be really effective at reducing the itching. I wonder if it is easier when children are really young - perhaps they accept the flavour/texture more easily (my daughter certainly did with all her other unpleasant tasting meds). Or maybe it is easier when they are older as they can perhaps recognise the link between taking the Questran and reduced itching.
Hope this helps. Feel free to ask more questions.
the problem were having with questran is the timing my son is onlu 9 weeks old and were syringing it in his mouth and hes taking it ok weve been told conflicting things regarding times and meds to avoide but now after checking with kings cns they have advised it can be taken with all his meds except the vits so can now take it at eassier times as before would feed him then wake him up a hour later give him questran then wake him a hour later for another feed tried urso but his weight gain slowed down so decided to go back on questran again
